Translating Biobank Science into Patient-Centered Language

Introduction: This project used Boot Camp Translation (BCT) to translate the complex medical jargon of biobanking into locally relevant evidence-based messages and materials to support increased knowledge and understanding in the local community. Methods: Biobank BCT was a partnership of 16 communit...

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Detalles Bibliográficos
Autores principales: Coors, Marilyn E., Westfall, Noah, Zittleman, Linda, Taylor, Matthew, Westfall, John M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Mary Ann Liebert, Inc. 2018
Materias:
Original Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5808390/
https://www.ncbi.nlm.nih.gov/pubmed/29190122
http://dx.doi.org/10.1089/bio.2017.0089
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author Coors, Marilyn E.
Westfall, Noah
Zittleman, Linda
Taylor, Matthew
Westfall, John M.
author_facet Coors, Marilyn E.
Westfall, Noah
Zittleman, Linda
Taylor, Matthew
Westfall, John M.
author_sort Coors, Marilyn E.
collection PubMed
description Introduction: This project used Boot Camp Translation (BCT) to translate the complex medical jargon of biobanking into locally relevant evidence-based messages and materials to support increased knowledge and understanding in the local community. Methods: Biobank BCT was a partnership of 16 community members and 5 academic researchers. The partnership met for 8 months. Results: The partnership developed five main and seven submessages to assist patients and community members in making an informed decision about enrollment in a biobank. Discussion: The resulting messages balance an individual's right to privacy and choice, while encouraging participation for the greater good.
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spelling pubmed-58083902018-02-14 Translating Biobank Science into Patient-Centered Language Coors, Marilyn E. Westfall, Noah Zittleman, Linda Taylor, Matthew Westfall, John M. Biopreserv Biobank Original Articles Introduction: This project used Boot Camp Translation (BCT) to translate the complex medical jargon of biobanking into locally relevant evidence-based messages and materials to support increased knowledge and understanding in the local community. Methods: Biobank BCT was a partnership of 16 community members and 5 academic researchers. The partnership met for 8 months. Results: The partnership developed five main and seven submessages to assist patients and community members in making an informed decision about enrollment in a biobank. Discussion: The resulting messages balance an individual's right to privacy and choice, while encouraging participation for the greater good. Mary Ann Liebert, Inc. 2018-02-01 2018-02-01 /pmc/articles/PMC5808390/ /pubmed/29190122 http://dx.doi.org/10.1089/bio.2017.0089 Text en © Marilyn E. Coors et al., 2018; Published by Mary Ann Liebert, Inc. This article is available under the Creative Commons License CC-BY-NC (http://creativecommons.org/licenses/by-nc/4.0). This license permits non-commercial use, distribution and reproduction in any medium, provided the original work is properly cited. Permission only needs to be obtained for commercial use and can be done via RightsLink.
spellingShingle Original Articles
Coors, Marilyn E.
Westfall, Noah
Zittleman, Linda
Taylor, Matthew
Westfall, John M.
Translating Biobank Science into Patient-Centered Language
title Translating Biobank Science into Patient-Centered Language
title_full Translating Biobank Science into Patient-Centered Language
title_fullStr Translating Biobank Science into Patient-Centered Language
title_full_unstemmed Translating Biobank Science into Patient-Centered Language
title_short Translating Biobank Science into Patient-Centered Language
title_sort translating biobank science into patient-centered language
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5808390/
https://www.ncbi.nlm.nih.gov/pubmed/29190122
http://dx.doi.org/10.1089/bio.2017.0089
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