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Renal manifestations of tuberous sclerosis complex: patients’ and parents’ knowledge and routines for renal follow-up – a questionnaire study
BACKGROUND: Renal angiomyolipomas (AMLs) are a major clinical feature in patients with tuberous sclerosis complex (TSC). Spontaneous bleeding can be life threatening, and appropriate information and proper surveillance and management are important to limit morbidity and mortality. Because TSC is a r...
Autores principales: | Cockerell, I., Guenin, M., Heimdal, K., Bjørnvold, M., Selmer, K. K., Rouvière, O. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5812037/ https://www.ncbi.nlm.nih.gov/pubmed/29439672 http://dx.doi.org/10.1186/s12882-018-0835-3 |
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