Engaging a Community for Rare Genetic Disease: Best Practices and Education From Individual Crowdfunding Campaigns

BACKGROUND: Genetic sequencing is critically important to diagnostic health care efforts in the United States today, yet it is still inaccessible to many. Meanwhile, the internet and social networking have made crowdfunding a realistic avenue for individuals and groups hoping to fund medical and res...

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Detalles Bibliográficos
Autores principales: Ortiz, Romina Alicia, Witte, Steven, Gouw, Arvin, Sanfilippo, Ana, Tsai, Richard, Fumagalli, Danielle, Yu, Christine, Lant, Karla, Lipitz, Nicole, Shepphird, Jennifer, Alvina, Fidelia B, Cheng-Ho Lin, Jimmy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2018
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5818677/
https://www.ncbi.nlm.nih.gov/pubmed/29402763
http://dx.doi.org/10.2196/ijmr.7176

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