Cargando…

The family talk intervention in palliative care: a study protocol

BACKGROUND: In palliative care contexts, support programs for families with a severely ill parent and minor children are few, and even fewer have been evaluated scientifically. The aims of this study are to examine feasibility and potential effects of a modified version of the Family Talk Interventi...

Descripción completa

Detalles Bibliográficos
Autores principales: Eklund, Rakel, Kreicbergs, Ulrika, Alvariza, Anette, Lövgren, Malin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5824474/
https://www.ncbi.nlm.nih.gov/pubmed/29471826
http://dx.doi.org/10.1186/s12904-018-0290-8
_version_ 1783302031826485248
author Eklund, Rakel
Kreicbergs, Ulrika
Alvariza, Anette
Lövgren, Malin
author_facet Eklund, Rakel
Kreicbergs, Ulrika
Alvariza, Anette
Lövgren, Malin
author_sort Eklund, Rakel
collection PubMed
description BACKGROUND: In palliative care contexts, support programs for families with a severely ill parent and minor children are few, and even fewer have been evaluated scientifically. The aims of this study are to examine feasibility and potential effects of a modified version of the Family Talk Intervention (FTI) in palliative care. METHODS: This ongoing family-centered intervention has a quasi-experimental design comparing one intervention and one comparison group. The intervention includes severely ill parents who have minor children (aged 6–19 yrs) and are receiving advanced homecare in Stockholm, Sweden between March 2017 and March 2018. The main goal of the FTI is to support family communication through psycho-education and narrative theory. The modified FTI consists of six meetings with family members, and is held by two interventionists. Each family sets up needs-based goals for the intervention. For evaluation purposes, data are collected by questionnaire before the intervention, within two months after baseline, and one year after baseline. Interviews will be conducted within two months after FTI is completed. Notes taken by one of the interventionists during the family meetings will also be used. Questionnaire data analysis will focus on patterns over time using descriptive statistics. For interview data and notes, content analysis will be used. DISCUSSION: This study will add knowledge about palliative care for parents who have minor children. It will contribute by testing use of FTI in palliative care, and point out directions for future evaluations of FTI in palliative care settings. TRIAL REGISTRATION: ClinicalTrials.gov Identifier NCT03119545, retrospectively registered in April 18, 2017.
format Online
Article
Text
id pubmed-5824474
institution National Center for Biotechnology Information
language English
publishDate 2018
publisher BioMed Central
record_format MEDLINE/PubMed
spelling pubmed-58244742018-02-26 The family talk intervention in palliative care: a study protocol Eklund, Rakel Kreicbergs, Ulrika Alvariza, Anette Lövgren, Malin BMC Palliat Care Study Protocol BACKGROUND: In palliative care contexts, support programs for families with a severely ill parent and minor children are few, and even fewer have been evaluated scientifically. The aims of this study are to examine feasibility and potential effects of a modified version of the Family Talk Intervention (FTI) in palliative care. METHODS: This ongoing family-centered intervention has a quasi-experimental design comparing one intervention and one comparison group. The intervention includes severely ill parents who have minor children (aged 6–19 yrs) and are receiving advanced homecare in Stockholm, Sweden between March 2017 and March 2018. The main goal of the FTI is to support family communication through psycho-education and narrative theory. The modified FTI consists of six meetings with family members, and is held by two interventionists. Each family sets up needs-based goals for the intervention. For evaluation purposes, data are collected by questionnaire before the intervention, within two months after baseline, and one year after baseline. Interviews will be conducted within two months after FTI is completed. Notes taken by one of the interventionists during the family meetings will also be used. Questionnaire data analysis will focus on patterns over time using descriptive statistics. For interview data and notes, content analysis will be used. DISCUSSION: This study will add knowledge about palliative care for parents who have minor children. It will contribute by testing use of FTI in palliative care, and point out directions for future evaluations of FTI in palliative care settings. TRIAL REGISTRATION: ClinicalTrials.gov Identifier NCT03119545, retrospectively registered in April 18, 2017. BioMed Central 2018-02-23 /pmc/articles/PMC5824474/ /pubmed/29471826 http://dx.doi.org/10.1186/s12904-018-0290-8 Text en © The Author(s). 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Study Protocol
Eklund, Rakel
Kreicbergs, Ulrika
Alvariza, Anette
Lövgren, Malin
The family talk intervention in palliative care: a study protocol
title The family talk intervention in palliative care: a study protocol
title_full The family talk intervention in palliative care: a study protocol
title_fullStr The family talk intervention in palliative care: a study protocol
title_full_unstemmed The family talk intervention in palliative care: a study protocol
title_short The family talk intervention in palliative care: a study protocol
title_sort family talk intervention in palliative care: a study protocol
topic Study Protocol
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5824474/
https://www.ncbi.nlm.nih.gov/pubmed/29471826
http://dx.doi.org/10.1186/s12904-018-0290-8
work_keys_str_mv AT eklundrakel thefamilytalkinterventioninpalliativecareastudyprotocol
AT kreicbergsulrika thefamilytalkinterventioninpalliativecareastudyprotocol
AT alvarizaanette thefamilytalkinterventioninpalliativecareastudyprotocol
AT lovgrenmalin thefamilytalkinterventioninpalliativecareastudyprotocol
AT eklundrakel familytalkinterventioninpalliativecareastudyprotocol
AT kreicbergsulrika familytalkinterventioninpalliativecareastudyprotocol
AT alvarizaanette familytalkinterventioninpalliativecareastudyprotocol
AT lovgrenmalin familytalkinterventioninpalliativecareastudyprotocol