Cargando…
The family talk intervention in palliative care: a study protocol
BACKGROUND: In palliative care contexts, support programs for families with a severely ill parent and minor children are few, and even fewer have been evaluated scientifically. The aims of this study are to examine feasibility and potential effects of a modified version of the Family Talk Interventi...
Autores principales: | , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2018
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5824474/ https://www.ncbi.nlm.nih.gov/pubmed/29471826 http://dx.doi.org/10.1186/s12904-018-0290-8 |
_version_ | 1783302031826485248 |
---|---|
author | Eklund, Rakel Kreicbergs, Ulrika Alvariza, Anette Lövgren, Malin |
author_facet | Eklund, Rakel Kreicbergs, Ulrika Alvariza, Anette Lövgren, Malin |
author_sort | Eklund, Rakel |
collection | PubMed |
description | BACKGROUND: In palliative care contexts, support programs for families with a severely ill parent and minor children are few, and even fewer have been evaluated scientifically. The aims of this study are to examine feasibility and potential effects of a modified version of the Family Talk Intervention (FTI) in palliative care. METHODS: This ongoing family-centered intervention has a quasi-experimental design comparing one intervention and one comparison group. The intervention includes severely ill parents who have minor children (aged 6–19 yrs) and are receiving advanced homecare in Stockholm, Sweden between March 2017 and March 2018. The main goal of the FTI is to support family communication through psycho-education and narrative theory. The modified FTI consists of six meetings with family members, and is held by two interventionists. Each family sets up needs-based goals for the intervention. For evaluation purposes, data are collected by questionnaire before the intervention, within two months after baseline, and one year after baseline. Interviews will be conducted within two months after FTI is completed. Notes taken by one of the interventionists during the family meetings will also be used. Questionnaire data analysis will focus on patterns over time using descriptive statistics. For interview data and notes, content analysis will be used. DISCUSSION: This study will add knowledge about palliative care for parents who have minor children. It will contribute by testing use of FTI in palliative care, and point out directions for future evaluations of FTI in palliative care settings. TRIAL REGISTRATION: ClinicalTrials.gov Identifier NCT03119545, retrospectively registered in April 18, 2017. |
format | Online Article Text |
id | pubmed-5824474 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-58244742018-02-26 The family talk intervention in palliative care: a study protocol Eklund, Rakel Kreicbergs, Ulrika Alvariza, Anette Lövgren, Malin BMC Palliat Care Study Protocol BACKGROUND: In palliative care contexts, support programs for families with a severely ill parent and minor children are few, and even fewer have been evaluated scientifically. The aims of this study are to examine feasibility and potential effects of a modified version of the Family Talk Intervention (FTI) in palliative care. METHODS: This ongoing family-centered intervention has a quasi-experimental design comparing one intervention and one comparison group. The intervention includes severely ill parents who have minor children (aged 6–19 yrs) and are receiving advanced homecare in Stockholm, Sweden between March 2017 and March 2018. The main goal of the FTI is to support family communication through psycho-education and narrative theory. The modified FTI consists of six meetings with family members, and is held by two interventionists. Each family sets up needs-based goals for the intervention. For evaluation purposes, data are collected by questionnaire before the intervention, within two months after baseline, and one year after baseline. Interviews will be conducted within two months after FTI is completed. Notes taken by one of the interventionists during the family meetings will also be used. Questionnaire data analysis will focus on patterns over time using descriptive statistics. For interview data and notes, content analysis will be used. DISCUSSION: This study will add knowledge about palliative care for parents who have minor children. It will contribute by testing use of FTI in palliative care, and point out directions for future evaluations of FTI in palliative care settings. TRIAL REGISTRATION: ClinicalTrials.gov Identifier NCT03119545, retrospectively registered in April 18, 2017. BioMed Central 2018-02-23 /pmc/articles/PMC5824474/ /pubmed/29471826 http://dx.doi.org/10.1186/s12904-018-0290-8 Text en © The Author(s). 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. |
spellingShingle | Study Protocol Eklund, Rakel Kreicbergs, Ulrika Alvariza, Anette Lövgren, Malin The family talk intervention in palliative care: a study protocol |
title | The family talk intervention in palliative care: a study protocol |
title_full | The family talk intervention in palliative care: a study protocol |
title_fullStr | The family talk intervention in palliative care: a study protocol |
title_full_unstemmed | The family talk intervention in palliative care: a study protocol |
title_short | The family talk intervention in palliative care: a study protocol |
title_sort | family talk intervention in palliative care: a study protocol |
topic | Study Protocol |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5824474/ https://www.ncbi.nlm.nih.gov/pubmed/29471826 http://dx.doi.org/10.1186/s12904-018-0290-8 |
work_keys_str_mv | AT eklundrakel thefamilytalkinterventioninpalliativecareastudyprotocol AT kreicbergsulrika thefamilytalkinterventioninpalliativecareastudyprotocol AT alvarizaanette thefamilytalkinterventioninpalliativecareastudyprotocol AT lovgrenmalin thefamilytalkinterventioninpalliativecareastudyprotocol AT eklundrakel familytalkinterventioninpalliativecareastudyprotocol AT kreicbergsulrika familytalkinterventioninpalliativecareastudyprotocol AT alvarizaanette familytalkinterventioninpalliativecareastudyprotocol AT lovgrenmalin familytalkinterventioninpalliativecareastudyprotocol |