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Acceptability of mindfulness from the perspective of stroke survivors and caregivers: a qualitative study

BACKGROUND: Depression is very common among stroke survivors with estimated prevalence rates of approximately 33% among stroke survivors, but treatment options are limited. Mindfulness-Based Stress Reduction (MBSR) is an effective treatment for depression generally, but benefits in stroke patients a...

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Autores principales: Jani, Bhautesh Dinesh, Simpson, Robert, Lawrence, Maggie, Simpson, Sharon, Mercer, Stewart W.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5827989/
https://www.ncbi.nlm.nih.gov/pubmed/29497560
http://dx.doi.org/10.1186/s40814-018-0244-1
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author Jani, Bhautesh Dinesh
Simpson, Robert
Lawrence, Maggie
Simpson, Sharon
Mercer, Stewart W.
author_facet Jani, Bhautesh Dinesh
Simpson, Robert
Lawrence, Maggie
Simpson, Sharon
Mercer, Stewart W.
author_sort Jani, Bhautesh Dinesh
collection PubMed
description BACKGROUND: Depression is very common among stroke survivors with estimated prevalence rates of approximately 33% among stroke survivors, but treatment options are limited. Mindfulness-Based Stress Reduction (MBSR) is an effective treatment for depression generally, but benefits in stroke patients are unclear. The aim of this study was to determine the feasibility of delivering MBSR to stroke survivors and their caregivers in the community. We conducted a study to gain views of MBSR as a potential treatment option among stroke survivors and their caregivers in the community. METHODS: Participants were recruited from an urban community in Scotland (UK) using newspaper adverts, social media and support groups run by health charities. A 2-h MBSR taster session was delivered by two experienced mindfulness instructors, followed by focus group sessions with all participants on their user experience and suggestions for MBSR modifications for stroke survivors. The focus group sessions were audio recorded and transcribed verbatim. Transcript data were analysed thematically using the framework approach. RESULTS: The study sample consisted of 28 participants (16 females); there were 21 stroke survivors (11 females) and 7 caregivers (5 females). The median age for participants was 60 years. Most participants described the MBSR taster session as a positive experience. The main challenge reported was trying to maintain focus and concentration throughout the MBSR session. Some participants expressed reservations about the duration of standard mindfulness course sessions, suggesting a preference for shorter sessions. The potential for achieving better control over negative thoughts and emotions was viewed as a potential facilitator for future MBSR participation. Participants suggested having an orientation session prior to starting an 8-week course as a means of developing familiarity with the MBSR instructor and other participants. CONCLUSION: It was feasible to recruit 21 stroke survivors and 7 caregivers for MBSR taster sessions in the community. A shorter MBSR session and an orientation session prior to the full course are suggestions for potential MBSR modifications for stroke survivors, which needs further research and evaluation. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1186/s40814-018-0244-1) contains supplementary material, which is available to authorized users.
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spelling pubmed-58279892018-03-01 Acceptability of mindfulness from the perspective of stroke survivors and caregivers: a qualitative study Jani, Bhautesh Dinesh Simpson, Robert Lawrence, Maggie Simpson, Sharon Mercer, Stewart W. Pilot Feasibility Stud Research BACKGROUND: Depression is very common among stroke survivors with estimated prevalence rates of approximately 33% among stroke survivors, but treatment options are limited. Mindfulness-Based Stress Reduction (MBSR) is an effective treatment for depression generally, but benefits in stroke patients are unclear. The aim of this study was to determine the feasibility of delivering MBSR to stroke survivors and their caregivers in the community. We conducted a study to gain views of MBSR as a potential treatment option among stroke survivors and their caregivers in the community. METHODS: Participants were recruited from an urban community in Scotland (UK) using newspaper adverts, social media and support groups run by health charities. A 2-h MBSR taster session was delivered by two experienced mindfulness instructors, followed by focus group sessions with all participants on their user experience and suggestions for MBSR modifications for stroke survivors. The focus group sessions were audio recorded and transcribed verbatim. Transcript data were analysed thematically using the framework approach. RESULTS: The study sample consisted of 28 participants (16 females); there were 21 stroke survivors (11 females) and 7 caregivers (5 females). The median age for participants was 60 years. Most participants described the MBSR taster session as a positive experience. The main challenge reported was trying to maintain focus and concentration throughout the MBSR session. Some participants expressed reservations about the duration of standard mindfulness course sessions, suggesting a preference for shorter sessions. The potential for achieving better control over negative thoughts and emotions was viewed as a potential facilitator for future MBSR participation. Participants suggested having an orientation session prior to starting an 8-week course as a means of developing familiarity with the MBSR instructor and other participants. CONCLUSION: It was feasible to recruit 21 stroke survivors and 7 caregivers for MBSR taster sessions in the community. A shorter MBSR session and an orientation session prior to the full course are suggestions for potential MBSR modifications for stroke survivors, which needs further research and evaluation. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1186/s40814-018-0244-1) contains supplementary material, which is available to authorized users. BioMed Central 2018-02-26 /pmc/articles/PMC5827989/ /pubmed/29497560 http://dx.doi.org/10.1186/s40814-018-0244-1 Text en © The Author(s). 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research
Jani, Bhautesh Dinesh
Simpson, Robert
Lawrence, Maggie
Simpson, Sharon
Mercer, Stewart W.
Acceptability of mindfulness from the perspective of stroke survivors and caregivers: a qualitative study
title Acceptability of mindfulness from the perspective of stroke survivors and caregivers: a qualitative study
title_full Acceptability of mindfulness from the perspective of stroke survivors and caregivers: a qualitative study
title_fullStr Acceptability of mindfulness from the perspective of stroke survivors and caregivers: a qualitative study
title_full_unstemmed Acceptability of mindfulness from the perspective of stroke survivors and caregivers: a qualitative study
title_short Acceptability of mindfulness from the perspective of stroke survivors and caregivers: a qualitative study
title_sort acceptability of mindfulness from the perspective of stroke survivors and caregivers: a qualitative study
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5827989/
https://www.ncbi.nlm.nih.gov/pubmed/29497560
http://dx.doi.org/10.1186/s40814-018-0244-1
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