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Registry-based stroke research in Taiwan: past and future
Stroke registries are observational databases focusing on the clinical information and outcomes of stroke patients. They play an important role in the cycle of quality improvement. Registry data are collected from real-world experiences of stroke care and are suitable for measuring quality of care....
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Korean Society of Epidemiology
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5847969/ https://www.ncbi.nlm.nih.gov/pubmed/29421864 http://dx.doi.org/10.4178/epih.e2018004 |
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author | Hsieh, Cheng-Yang Wu, Darren Philbert Sung, Sheng-Feng |
author_facet | Hsieh, Cheng-Yang Wu, Darren Philbert Sung, Sheng-Feng |
author_sort | Hsieh, Cheng-Yang |
collection | PubMed |
description | Stroke registries are observational databases focusing on the clinical information and outcomes of stroke patients. They play an important role in the cycle of quality improvement. Registry data are collected from real-world experiences of stroke care and are suitable for measuring quality of care. By exposing inadequacies in performance measures of stroke care, research from stroke registries has changed how we manage stroke patients in Taiwan. With the success of various quality improvement campaigns, mortality from stroke and recurrence of stroke have decreased in the past decade. After the implementation of a nationwide stroke registry, researchers have been creatively expanding how they use and collect registry data for research. Through the use of the nationwide stroke registry as a common data model, researchers from many hospitals have built their own stroke registries with extended data elements to meet the needs of research. In collaboration with information technology professionals, stroke registry systems have changed from web-based, manual submission systems to automated fill-in systems in some hospitals. Furthermore, record linkage between stroke registries and administrative claims databases or other existing databases has widened the utility of registry data in research. Using stroke registry data as the reference standard, researchers have validated several algorithms for ascertaining the diagnosis of stroke and its risk factors from claims data, and have also developed a claims-based index to estimate stroke severity. By making better use of registry data, we believe that we will provide better care to patients with stroke. |
format | Online Article Text |
id | pubmed-5847969 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | Korean Society of Epidemiology |
record_format | MEDLINE/PubMed |
spelling | pubmed-58479692018-03-26 Registry-based stroke research in Taiwan: past and future Hsieh, Cheng-Yang Wu, Darren Philbert Sung, Sheng-Feng Epidemiol Health Review Stroke registries are observational databases focusing on the clinical information and outcomes of stroke patients. They play an important role in the cycle of quality improvement. Registry data are collected from real-world experiences of stroke care and are suitable for measuring quality of care. By exposing inadequacies in performance measures of stroke care, research from stroke registries has changed how we manage stroke patients in Taiwan. With the success of various quality improvement campaigns, mortality from stroke and recurrence of stroke have decreased in the past decade. After the implementation of a nationwide stroke registry, researchers have been creatively expanding how they use and collect registry data for research. Through the use of the nationwide stroke registry as a common data model, researchers from many hospitals have built their own stroke registries with extended data elements to meet the needs of research. In collaboration with information technology professionals, stroke registry systems have changed from web-based, manual submission systems to automated fill-in systems in some hospitals. Furthermore, record linkage between stroke registries and administrative claims databases or other existing databases has widened the utility of registry data in research. Using stroke registry data as the reference standard, researchers have validated several algorithms for ascertaining the diagnosis of stroke and its risk factors from claims data, and have also developed a claims-based index to estimate stroke severity. By making better use of registry data, we believe that we will provide better care to patients with stroke. Korean Society of Epidemiology 2018-02-04 /pmc/articles/PMC5847969/ /pubmed/29421864 http://dx.doi.org/10.4178/epih.e2018004 Text en ©2018, Korean Society of Epidemiology This is an open-access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Review Hsieh, Cheng-Yang Wu, Darren Philbert Sung, Sheng-Feng Registry-based stroke research in Taiwan: past and future |
title | Registry-based stroke research in Taiwan: past and future |
title_full | Registry-based stroke research in Taiwan: past and future |
title_fullStr | Registry-based stroke research in Taiwan: past and future |
title_full_unstemmed | Registry-based stroke research in Taiwan: past and future |
title_short | Registry-based stroke research in Taiwan: past and future |
title_sort | registry-based stroke research in taiwan: past and future |
topic | Review |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5847969/ https://www.ncbi.nlm.nih.gov/pubmed/29421864 http://dx.doi.org/10.4178/epih.e2018004 |
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