Using Self-Reported Patient Experiences to Understand Patient Burden: Learnings from Digital Patient Communities in Ankylosing Spondylitis

INTRODUCTION: Online communities contain a wealth of information containing unsolicited patient experiences that may go beyond what is captured by guided surveys or patient-reported outcome (PRO) instruments used in clinical settings. This study described patient experiences reported online to bette...

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Detalles Bibliográficos
Autores principales: Sunkureddi, Prashanth, Gibson, Dawn, Doogan, Stephen, Heid, John, Benosman, Samir, Park, Yujin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Healthcare 2018
Materias:
Original Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5859700/
https://www.ncbi.nlm.nih.gov/pubmed/29450863
http://dx.doi.org/10.1007/s12325-018-0669-1

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