Cargando…

A Web-Based Platform to Collect Data from ESRD Patients Undergoing Dialysis: Methods and Preliminary Results from the Brazilian Dialysis Registry

INTRODUCTION: The methods and initial results of a web-based platform to collect data from patients receiving maintenance dialysis in Brazil are reported. METHODS: Companies providing management software for dialysis centers adapted their system to comply with a formulary of the Brazilian Society of...

Descripción completa

Detalles Bibliográficos
Autores principales: Lugon, Jocemir R., Gordan, Pedro A., Thomé, Fernando S., Lopes, Antonio A., Watanabe, Yoshimi J. A., Tzanno, Carmen, Sesso, Ricardo C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Hindawi 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5859861/
https://www.ncbi.nlm.nih.gov/pubmed/29692934
http://dx.doi.org/10.1155/2018/9894754
_version_ 1783307913982377984
author Lugon, Jocemir R.
Gordan, Pedro A.
Thomé, Fernando S.
Lopes, Antonio A.
Watanabe, Yoshimi J. A.
Tzanno, Carmen
Sesso, Ricardo C.
author_facet Lugon, Jocemir R.
Gordan, Pedro A.
Thomé, Fernando S.
Lopes, Antonio A.
Watanabe, Yoshimi J. A.
Tzanno, Carmen
Sesso, Ricardo C.
author_sort Lugon, Jocemir R.
collection PubMed
description INTRODUCTION: The methods and initial results of a web-based platform to collect data from patients receiving maintenance dialysis in Brazil are reported. METHODS: Companies providing management software for dialysis centers adapted their system to comply with a formulary of the Brazilian Society of Nephrology. Baseline and follow-up individual patients' data were transmitted via Internet on monthly bases to the coordinating center from 2011 to 2017. RESULTS: 73 dialysis centers provided information of 24,930 patients: 57% were male, 28% were 64 years old or older, and 13% were overweight/obese. Median dialysis vintage was 28 months. Hemodialysis was the most frequent initial therapy (93%) with venous catheters used in 64% of cases. Conventional hemodialysis remained the main current therapy (90%). Seropositivity for hepatitis C, hepatitis B, and HIV was 2.7%, 1.1%, and 0.5%, respectively. Erythropoietin (53.9%), iron (35.1%), and sevelamer (23.4%) were the most used medications. Hemoglobin < 100 g/L and serum P > 1.74 mmol/L were present in 33.1% and 36.6% of the cases, respectively. The 5-year survival of incident cases (n = 7,538) was 57%. CONCLUSION: The initiative represents an innovative strategy to collect clinical and epidemiologic data of dialysis patients which may be applied to other settings and provides information that can contribute to guiding clinical practice and health care policy.
format Online
Article
Text
id pubmed-5859861
institution National Center for Biotechnology Information
language English
publishDate 2018
publisher Hindawi
record_format MEDLINE/PubMed
spelling pubmed-58598612018-04-24 A Web-Based Platform to Collect Data from ESRD Patients Undergoing Dialysis: Methods and Preliminary Results from the Brazilian Dialysis Registry Lugon, Jocemir R. Gordan, Pedro A. Thomé, Fernando S. Lopes, Antonio A. Watanabe, Yoshimi J. A. Tzanno, Carmen Sesso, Ricardo C. Int J Nephrol Research Article INTRODUCTION: The methods and initial results of a web-based platform to collect data from patients receiving maintenance dialysis in Brazil are reported. METHODS: Companies providing management software for dialysis centers adapted their system to comply with a formulary of the Brazilian Society of Nephrology. Baseline and follow-up individual patients' data were transmitted via Internet on monthly bases to the coordinating center from 2011 to 2017. RESULTS: 73 dialysis centers provided information of 24,930 patients: 57% were male, 28% were 64 years old or older, and 13% were overweight/obese. Median dialysis vintage was 28 months. Hemodialysis was the most frequent initial therapy (93%) with venous catheters used in 64% of cases. Conventional hemodialysis remained the main current therapy (90%). Seropositivity for hepatitis C, hepatitis B, and HIV was 2.7%, 1.1%, and 0.5%, respectively. Erythropoietin (53.9%), iron (35.1%), and sevelamer (23.4%) were the most used medications. Hemoglobin < 100 g/L and serum P > 1.74 mmol/L were present in 33.1% and 36.6% of the cases, respectively. The 5-year survival of incident cases (n = 7,538) was 57%. CONCLUSION: The initiative represents an innovative strategy to collect clinical and epidemiologic data of dialysis patients which may be applied to other settings and provides information that can contribute to guiding clinical practice and health care policy. Hindawi 2018-03-05 /pmc/articles/PMC5859861/ /pubmed/29692934 http://dx.doi.org/10.1155/2018/9894754 Text en Copyright © 2018 Jocemir R. Lugon et al. https://creativecommons.org/licenses/by/4.0/ This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Article
Lugon, Jocemir R.
Gordan, Pedro A.
Thomé, Fernando S.
Lopes, Antonio A.
Watanabe, Yoshimi J. A.
Tzanno, Carmen
Sesso, Ricardo C.
A Web-Based Platform to Collect Data from ESRD Patients Undergoing Dialysis: Methods and Preliminary Results from the Brazilian Dialysis Registry
title A Web-Based Platform to Collect Data from ESRD Patients Undergoing Dialysis: Methods and Preliminary Results from the Brazilian Dialysis Registry
title_full A Web-Based Platform to Collect Data from ESRD Patients Undergoing Dialysis: Methods and Preliminary Results from the Brazilian Dialysis Registry
title_fullStr A Web-Based Platform to Collect Data from ESRD Patients Undergoing Dialysis: Methods and Preliminary Results from the Brazilian Dialysis Registry
title_full_unstemmed A Web-Based Platform to Collect Data from ESRD Patients Undergoing Dialysis: Methods and Preliminary Results from the Brazilian Dialysis Registry
title_short A Web-Based Platform to Collect Data from ESRD Patients Undergoing Dialysis: Methods and Preliminary Results from the Brazilian Dialysis Registry
title_sort web-based platform to collect data from esrd patients undergoing dialysis: methods and preliminary results from the brazilian dialysis registry
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5859861/
https://www.ncbi.nlm.nih.gov/pubmed/29692934
http://dx.doi.org/10.1155/2018/9894754
work_keys_str_mv AT lugonjocemirr awebbasedplatformtocollectdatafromesrdpatientsundergoingdialysismethodsandpreliminaryresultsfromthebraziliandialysisregistry
AT gordanpedroa awebbasedplatformtocollectdatafromesrdpatientsundergoingdialysismethodsandpreliminaryresultsfromthebraziliandialysisregistry
AT thomefernandos awebbasedplatformtocollectdatafromesrdpatientsundergoingdialysismethodsandpreliminaryresultsfromthebraziliandialysisregistry
AT lopesantonioa awebbasedplatformtocollectdatafromesrdpatientsundergoingdialysismethodsandpreliminaryresultsfromthebraziliandialysisregistry
AT watanabeyoshimija awebbasedplatformtocollectdatafromesrdpatientsundergoingdialysismethodsandpreliminaryresultsfromthebraziliandialysisregistry
AT tzannocarmen awebbasedplatformtocollectdatafromesrdpatientsundergoingdialysismethodsandpreliminaryresultsfromthebraziliandialysisregistry
AT sessoricardoc awebbasedplatformtocollectdatafromesrdpatientsundergoingdialysismethodsandpreliminaryresultsfromthebraziliandialysisregistry
AT lugonjocemirr webbasedplatformtocollectdatafromesrdpatientsundergoingdialysismethodsandpreliminaryresultsfromthebraziliandialysisregistry
AT gordanpedroa webbasedplatformtocollectdatafromesrdpatientsundergoingdialysismethodsandpreliminaryresultsfromthebraziliandialysisregistry
AT thomefernandos webbasedplatformtocollectdatafromesrdpatientsundergoingdialysismethodsandpreliminaryresultsfromthebraziliandialysisregistry
AT lopesantonioa webbasedplatformtocollectdatafromesrdpatientsundergoingdialysismethodsandpreliminaryresultsfromthebraziliandialysisregistry
AT watanabeyoshimija webbasedplatformtocollectdatafromesrdpatientsundergoingdialysismethodsandpreliminaryresultsfromthebraziliandialysisregistry
AT tzannocarmen webbasedplatformtocollectdatafromesrdpatientsundergoingdialysismethodsandpreliminaryresultsfromthebraziliandialysisregistry
AT sessoricardoc webbasedplatformtocollectdatafromesrdpatientsundergoingdialysismethodsandpreliminaryresultsfromthebraziliandialysisregistry