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DASH, the data and specimen hub of the National Institute of Child Health and Human Development

The benefits of data sharing are well-established and an increasing number of policies require that data be shared upon publication of the main study findings. As data sharing becomes the new norm, there is a heightened need for additional resources to drive efficient data reuse. This article descri...

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Autores principales: Hazra, Rohan, Tenney, Susan, Shlionskaya, Alexandra, Samavedam, Rajni, Baxter, Kristin, Ilekis, John, Weck, Jennifer, Willinger, Marian, Grave, Gilman, Tsilou, Katerina, Songco, David
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Nature Publishing Group 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5859878/
https://www.ncbi.nlm.nih.gov/pubmed/29557977
http://dx.doi.org/10.1038/sdata.2018.46
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author Hazra, Rohan
Tenney, Susan
Shlionskaya, Alexandra
Samavedam, Rajni
Baxter, Kristin
Ilekis, John
Weck, Jennifer
Willinger, Marian
Grave, Gilman
Tsilou, Katerina
Songco, David
author_facet Hazra, Rohan
Tenney, Susan
Shlionskaya, Alexandra
Samavedam, Rajni
Baxter, Kristin
Ilekis, John
Weck, Jennifer
Willinger, Marian
Grave, Gilman
Tsilou, Katerina
Songco, David
author_sort Hazra, Rohan
collection PubMed
description The benefits of data sharing are well-established and an increasing number of policies require that data be shared upon publication of the main study findings. As data sharing becomes the new norm, there is a heightened need for additional resources to drive efficient data reuse. This article describes the development and implementation of the Data and Specimen Hub (DASH) by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) to promote data sharing from NICHD-funded studies and enable researchers to comply with NIH data sharing policies. DASH’s flexible architecture is designed to archive diverse data types and formats from NICHD’s broad scientific portfolio in a manner that promotes FAIR data sharing principles. Performance of DASH over two years since launch is promising: the number of available studies and data requests are growing; three manuscripts have been published from data reanalysis, all within two years of access. Critical success factors included NICHD leadership commitment, stakeholder engagement and close coordination between the governance body and technical team.
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spelling pubmed-58598782018-03-24 DASH, the data and specimen hub of the National Institute of Child Health and Human Development Hazra, Rohan Tenney, Susan Shlionskaya, Alexandra Samavedam, Rajni Baxter, Kristin Ilekis, John Weck, Jennifer Willinger, Marian Grave, Gilman Tsilou, Katerina Songco, David Sci Data Article The benefits of data sharing are well-established and an increasing number of policies require that data be shared upon publication of the main study findings. As data sharing becomes the new norm, there is a heightened need for additional resources to drive efficient data reuse. This article describes the development and implementation of the Data and Specimen Hub (DASH) by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) to promote data sharing from NICHD-funded studies and enable researchers to comply with NIH data sharing policies. DASH’s flexible architecture is designed to archive diverse data types and formats from NICHD’s broad scientific portfolio in a manner that promotes FAIR data sharing principles. Performance of DASH over two years since launch is promising: the number of available studies and data requests are growing; three manuscripts have been published from data reanalysis, all within two years of access. Critical success factors included NICHD leadership commitment, stakeholder engagement and close coordination between the governance body and technical team. Nature Publishing Group 2018-03-20 /pmc/articles/PMC5859878/ /pubmed/29557977 http://dx.doi.org/10.1038/sdata.2018.46 Text en Copyright © 2018, The Author(s) http://creativecommons.org/licenses/by/4.0/ Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/
spellingShingle Article
Hazra, Rohan
Tenney, Susan
Shlionskaya, Alexandra
Samavedam, Rajni
Baxter, Kristin
Ilekis, John
Weck, Jennifer
Willinger, Marian
Grave, Gilman
Tsilou, Katerina
Songco, David
DASH, the data and specimen hub of the National Institute of Child Health and Human Development
title DASH, the data and specimen hub of the National Institute of Child Health and Human Development
title_full DASH, the data and specimen hub of the National Institute of Child Health and Human Development
title_fullStr DASH, the data and specimen hub of the National Institute of Child Health and Human Development
title_full_unstemmed DASH, the data and specimen hub of the National Institute of Child Health and Human Development
title_short DASH, the data and specimen hub of the National Institute of Child Health and Human Development
title_sort dash, the data and specimen hub of the national institute of child health and human development
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5859878/
https://www.ncbi.nlm.nih.gov/pubmed/29557977
http://dx.doi.org/10.1038/sdata.2018.46
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