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Rare disease: a national survey of paediatricians’ experiences and needs

OBJECTIVE: To describe the experiences of Australian paediatricians while caring for children with rare diseases, and their educational and resource needs. DESIGN: A brief online survey was developed and deployed to a representative sample of 679 paediatricians from the Australian Paediatric Surveil...

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Detalles Bibliográficos
Autores principales:	Zurynski, Yvonne, Gonzalez, Aranzazu, Deverell, Marie, Phu, Amy, Leonard, Helen, Christodoulou, John, Elliott, Elizabeth
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2017
Materias:	Original Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5862166/ https://www.ncbi.nlm.nih.gov/pubmed/29637168 http://dx.doi.org/10.1136/bmjpo-2017-000172

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