The International Rare Diseases Research Consortium: Policies and Guidelines to maximize impact

The International Rare Diseases Research Consortium (IRDiRC) has agreed on IRDiRC Policies and Guidelines, following extensive deliberations and discussions in 2012 and 2013, as a first step towards improving coordination of research efforts worldwide. The 25 funding members and 3 patient umbrella o...

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Detalles Bibliográficos
Autores principales: Lochmüller, Hanns, Torrent i Farnell, Josep, Le Cam, Yann, Jonker, Anneliene H, Lau, Lilian PL, Baynam, Gareth, Kaufmann, Petra, Dawkins, Hugh JS, Lasko, Paul, Austin, Christopher P, Boycott, Kym M
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2017
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5865169/
https://www.ncbi.nlm.nih.gov/pubmed/29158551
http://dx.doi.org/10.1038/s41431-017-0008-z

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5865169/
https://www.ncbi.nlm.nih.gov/pubmed/29158551
http://dx.doi.org/10.1038/s41431-017-0008-z

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