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Openness, inclusion and transparency in the practice of public involvement in research: A reflective exercise to develop best practice recommendations
CONTEXT: Reflective accounts of public involvement in research (PI) are important for helping researchers plan and deliver more effective PI activities. In particular, there is a need to address power differentials between team members that can prohibit effective and meaningful involvement. OBJECTIV...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2017
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5867325/ https://www.ncbi.nlm.nih.gov/pubmed/29105227 http://dx.doi.org/10.1111/hex.12609 |
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author | Brown, Laura J.E. Dickinson, Tommy Smith, Stuart Brown Wilson, Christine Horne, Maria Torkington, Kate Simpson, Paul |
author_facet | Brown, Laura J.E. Dickinson, Tommy Smith, Stuart Brown Wilson, Christine Horne, Maria Torkington, Kate Simpson, Paul |
author_sort | Brown, Laura J.E. |
collection | PubMed |
description | CONTEXT: Reflective accounts of public involvement in research (PI) are important for helping researchers plan and deliver more effective PI activities. In particular, there is a need to address power differentials between team members that can prohibit effective and meaningful involvement. OBJECTIVE: To critically reflect on the PI practices that underpinned our research project on intimacy and sexuality in care homes, to develop a series of recommendations for improving future PI activities. SETTING: The research team comprised five academics from nursing, public health, sociology and psychology, and two members of the public with experience of sex education, and lesbian, gay, bisexual and trans issues in older populations. In order to address power differentials within the group, we developed an approach to PI practice that was grounded in values of openness, inclusion and transparency. METHOD: Reflective commentaries on the strengths and weaknesses of the team's approach to PI were gathered through interviews and open‐ended questionnaires with research team members. These views were collated and discussed at a workshop comprising research team members and an additional member of the public to generate recommendations for future PI practice. RESULTS: A number of strengths and limitations of our approach to PI were identified. Clear recommendations for improving PI practice were developed for three broad areas of identified difficulty: (i) communication within and between meetings; (ii) the roles and responsibilities of team members; and (iii) PI resources and productivity. DISCUSSION AND CONCLUSION: These recommendations add to the developing body of guidance for conducting effective PI. |
format | Online Article Text |
id | pubmed-5867325 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2017 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-58673252018-04-01 Openness, inclusion and transparency in the practice of public involvement in research: A reflective exercise to develop best practice recommendations Brown, Laura J.E. Dickinson, Tommy Smith, Stuart Brown Wilson, Christine Horne, Maria Torkington, Kate Simpson, Paul Health Expect Original Research Papers CONTEXT: Reflective accounts of public involvement in research (PI) are important for helping researchers plan and deliver more effective PI activities. In particular, there is a need to address power differentials between team members that can prohibit effective and meaningful involvement. OBJECTIVE: To critically reflect on the PI practices that underpinned our research project on intimacy and sexuality in care homes, to develop a series of recommendations for improving future PI activities. SETTING: The research team comprised five academics from nursing, public health, sociology and psychology, and two members of the public with experience of sex education, and lesbian, gay, bisexual and trans issues in older populations. In order to address power differentials within the group, we developed an approach to PI practice that was grounded in values of openness, inclusion and transparency. METHOD: Reflective commentaries on the strengths and weaknesses of the team's approach to PI were gathered through interviews and open‐ended questionnaires with research team members. These views were collated and discussed at a workshop comprising research team members and an additional member of the public to generate recommendations for future PI practice. RESULTS: A number of strengths and limitations of our approach to PI were identified. Clear recommendations for improving PI practice were developed for three broad areas of identified difficulty: (i) communication within and between meetings; (ii) the roles and responsibilities of team members; and (iii) PI resources and productivity. DISCUSSION AND CONCLUSION: These recommendations add to the developing body of guidance for conducting effective PI. John Wiley and Sons Inc. 2017-11-03 2018-04 /pmc/articles/PMC5867325/ /pubmed/29105227 http://dx.doi.org/10.1111/hex.12609 Text en © 2017 The Authors Health Expectations Published by John Wiley & Sons Ltd This is an open access article under the terms of the Creative Commons Attribution (http://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Original Research Papers Brown, Laura J.E. Dickinson, Tommy Smith, Stuart Brown Wilson, Christine Horne, Maria Torkington, Kate Simpson, Paul Openness, inclusion and transparency in the practice of public involvement in research: A reflective exercise to develop best practice recommendations |
title | Openness, inclusion and transparency in the practice of public involvement in research: A reflective exercise to develop best practice recommendations |
title_full | Openness, inclusion and transparency in the practice of public involvement in research: A reflective exercise to develop best practice recommendations |
title_fullStr | Openness, inclusion and transparency in the practice of public involvement in research: A reflective exercise to develop best practice recommendations |
title_full_unstemmed | Openness, inclusion and transparency in the practice of public involvement in research: A reflective exercise to develop best practice recommendations |
title_short | Openness, inclusion and transparency in the practice of public involvement in research: A reflective exercise to develop best practice recommendations |
title_sort | openness, inclusion and transparency in the practice of public involvement in research: a reflective exercise to develop best practice recommendations |
topic | Original Research Papers |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5867325/ https://www.ncbi.nlm.nih.gov/pubmed/29105227 http://dx.doi.org/10.1111/hex.12609 |
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