Evolving perspectives on broad consent for genomics research and biobanking in Africa. Report of the Second H3Africa Ethics Consultation Meeting, 11 May 2015

A report on the Second H3Africa Ethics Consultation Meeting, which was held in Livingstone, Zambia on 11 May 2015. The meeting demonstrated considerable evolution by African Research Ethics Committees on thinking about broad consent as a consent option for genomics research and biobanking. The meeti...

Descripción completa

Detalles Bibliográficos
Autores principales: de Vries, J., Littler, K., Matimba, A., McCurdy, S., Ouwe Missi Oukem-Boyer, O., Seeley, J., Tindana, P.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2016
Materias:
Brief Report
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5870421/
https://www.ncbi.nlm.nih.gov/pubmed/29868205
http://dx.doi.org/10.1017/gheg.2016.5
_version_ 1783309478935920640
author de Vries, J.
Littler, K.
Matimba, A.
McCurdy, S.
Ouwe Missi Oukem-Boyer, O.
Seeley, J.
Tindana, P.
author_facet de Vries, J.
Littler, K.
Matimba, A.
McCurdy, S.
Ouwe Missi Oukem-Boyer, O.
Seeley, J.
Tindana, P.
author_sort de Vries, J.
collection PubMed
description A report on the Second H3Africa Ethics Consultation Meeting, which was held in Livingstone, Zambia on 11 May 2015. The meeting demonstrated considerable evolution by African Research Ethics Committees on thinking about broad consent as a consent option for genomics research and biobanking. The meeting concluded with a call for broader engagement with policy makers across the continent in order to help these recognise the need for guidance and regulation where these do not exist and to explore harmonisation where appropriate and possible.
format Online
Article
Text
id pubmed-5870421
institution National Center for Biotechnology Information
language English
publishDate 2016
publisher Cambridge University Press
record_format MEDLINE/PubMed
spelling pubmed-58704212018-06-04 Evolving perspectives on broad consent for genomics research and biobanking in Africa. Report of the Second H3Africa Ethics Consultation Meeting, 11 May 2015 de Vries, J. Littler, K. Matimba, A. McCurdy, S. Ouwe Missi Oukem-Boyer, O. Seeley, J. Tindana, P. Glob Health Epidemiol Genom Brief Report A report on the Second H3Africa Ethics Consultation Meeting, which was held in Livingstone, Zambia on 11 May 2015. The meeting demonstrated considerable evolution by African Research Ethics Committees on thinking about broad consent as a consent option for genomics research and biobanking. The meeting concluded with a call for broader engagement with policy makers across the continent in order to help these recognise the need for guidance and regulation where these do not exist and to explore harmonisation where appropriate and possible. Cambridge University Press 2016-07-25 /pmc/articles/PMC5870421/ /pubmed/29868205 http://dx.doi.org/10.1017/gheg.2016.5 Text en © The Author(s) 2016 http://creativecommons.org/licenses/by-nc-sa/4.0/ This is an Open Access article, distributed under the terms of the Creative Commons Attribution- NonCommercial-ShareAlike licence (http://creativecommons.org/licenses/by-nc-sa/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the same Creative Commons licence is included and the original work is properly cited. The written permission of Cambridge University Press must be obtained for commercial re-use.
spellingShingle Brief Report
de Vries, J.
Littler, K.
Matimba, A.
McCurdy, S.
Ouwe Missi Oukem-Boyer, O.
Seeley, J.
Tindana, P.
Evolving perspectives on broad consent for genomics research and biobanking in Africa. Report of the Second H3Africa Ethics Consultation Meeting, 11 May 2015
title Evolving perspectives on broad consent for genomics research and biobanking in Africa. Report of the Second H3Africa Ethics Consultation Meeting, 11 May 2015
title_full Evolving perspectives on broad consent for genomics research and biobanking in Africa. Report of the Second H3Africa Ethics Consultation Meeting, 11 May 2015
title_fullStr Evolving perspectives on broad consent for genomics research and biobanking in Africa. Report of the Second H3Africa Ethics Consultation Meeting, 11 May 2015
title_full_unstemmed Evolving perspectives on broad consent for genomics research and biobanking in Africa. Report of the Second H3Africa Ethics Consultation Meeting, 11 May 2015
title_short Evolving perspectives on broad consent for genomics research and biobanking in Africa. Report of the Second H3Africa Ethics Consultation Meeting, 11 May 2015
title_sort evolving perspectives on broad consent for genomics research and biobanking in africa. report of the second h3africa ethics consultation meeting, 11 may 2015
topic Brief Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5870421/
https://www.ncbi.nlm.nih.gov/pubmed/29868205
http://dx.doi.org/10.1017/gheg.2016.5
work_keys_str_mv AT devriesj evolvingperspectivesonbroadconsentforgenomicsresearchandbiobankinginafricareportofthesecondh3africaethicsconsultationmeeting11may2015
AT littlerk evolvingperspectivesonbroadconsentforgenomicsresearchandbiobankinginafricareportofthesecondh3africaethicsconsultationmeeting11may2015
AT matimbaa evolvingperspectivesonbroadconsentforgenomicsresearchandbiobankinginafricareportofthesecondh3africaethicsconsultationmeeting11may2015
AT mccurdys evolvingperspectivesonbroadconsentforgenomicsresearchandbiobankinginafricareportofthesecondh3africaethicsconsultationmeeting11may2015
AT ouwemissioukemboyero evolvingperspectivesonbroadconsentforgenomicsresearchandbiobankinginafricareportofthesecondh3africaethicsconsultationmeeting11may2015
AT seeleyj evolvingperspectivesonbroadconsentforgenomicsresearchandbiobankinginafricareportofthesecondh3africaethicsconsultationmeeting11may2015
AT tindanap evolvingperspectivesonbroadconsentforgenomicsresearchandbiobankinginafricareportofthesecondh3africaethicsconsultationmeeting11may2015

Ejemplares similares