The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and healthcare providers

There remain many treatment uncertainties in cystic fibrosis (CF). With limited resources, research should focus on questions which are most important to the CF community. We conducted a James Lind Alliance Priority Setting Partnership in CF. Research questions were elicited and then prioritised in...

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Detalles Bibliográficos
Autores principales: Rowbotham, Nicola J, Smith, Sherie, Leighton, Paul A, Rayner, Oli C, Gathercole, Katie, Elliott, Zoe C, Nash, Edward F, Daniels, Tracey, Duff, Alistair J A, Collins, Sarah, Chandran, Suja, Peaple, Ursula, Hurley, Matthew N, Brownlee, Keith, Smyth, Alan R
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2018
Materias:
Research Letter
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5870449/
https://www.ncbi.nlm.nih.gov/pubmed/28778919
http://dx.doi.org/10.1136/thoraxjnl-2017-210473
Descripción
Sumario:There remain many treatment uncertainties in cystic fibrosis (CF). With limited resources, research should focus on questions which are most important to the CF community. We conducted a James Lind Alliance Priority Setting Partnership in CF. Research questions were elicited and then prioritised in successive surveys. A workshop agreed the final top 10. Online methods avoided cross infection and widened participation. The elicitation survey had 482 respondents (1080 questions) and prioritisation survey 677 respondents. Participants were drawn equally from the patient and clinical communities globally. We have achieved a consensus on 10 research priorities which will be attractive to funders.

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