The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and healthcare providers

There remain many treatment uncertainties in cystic fibrosis (CF). With limited resources, research should focus on questions which are most important to the CF community. We conducted a James Lind Alliance Priority Setting Partnership in CF. Research questions were elicited and then prioritised in...

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Autores principales: Rowbotham, Nicola J, Smith, Sherie, Leighton, Paul A, Rayner, Oli C, Gathercole, Katie, Elliott, Zoe C, Nash, Edward F, Daniels, Tracey, Duff, Alistair J A, Collins, Sarah, Chandran, Suja, Peaple, Ursula, Hurley, Matthew N, Brownlee, Keith, Smyth, Alan R
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2018
Materias:
Research Letter
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5870449/
https://www.ncbi.nlm.nih.gov/pubmed/28778919
http://dx.doi.org/10.1136/thoraxjnl-2017-210473
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author Rowbotham, Nicola J
Smith, Sherie
Leighton, Paul A
Rayner, Oli C
Gathercole, Katie
Elliott, Zoe C
Nash, Edward F
Daniels, Tracey
Duff, Alistair J A
Collins, Sarah
Chandran, Suja
Peaple, Ursula
Hurley, Matthew N
Brownlee, Keith
Smyth, Alan R
author_facet Rowbotham, Nicola J
Smith, Sherie
Leighton, Paul A
Rayner, Oli C
Gathercole, Katie
Elliott, Zoe C
Nash, Edward F
Daniels, Tracey
Duff, Alistair J A
Collins, Sarah
Chandran, Suja
Peaple, Ursula
Hurley, Matthew N
Brownlee, Keith
Smyth, Alan R
author_sort Rowbotham, Nicola J
collection PubMed
description There remain many treatment uncertainties in cystic fibrosis (CF). With limited resources, research should focus on questions which are most important to the CF community. We conducted a James Lind Alliance Priority Setting Partnership in CF. Research questions were elicited and then prioritised in successive surveys. A workshop agreed the final top 10. Online methods avoided cross infection and widened participation. The elicitation survey had 482 respondents (1080 questions) and prioritisation survey 677 respondents. Participants were drawn equally from the patient and clinical communities globally. We have achieved a consensus on 10 research priorities which will be attractive to funders.
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spelling pubmed-58704492018-03-28 The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and healthcare providers Rowbotham, Nicola J Smith, Sherie Leighton, Paul A Rayner, Oli C Gathercole, Katie Elliott, Zoe C Nash, Edward F Daniels, Tracey Duff, Alistair J A Collins, Sarah Chandran, Suja Peaple, Ursula Hurley, Matthew N Brownlee, Keith Smyth, Alan R Thorax Research Letter There remain many treatment uncertainties in cystic fibrosis (CF). With limited resources, research should focus on questions which are most important to the CF community. We conducted a James Lind Alliance Priority Setting Partnership in CF. Research questions were elicited and then prioritised in successive surveys. A workshop agreed the final top 10. Online methods avoided cross infection and widened participation. The elicitation survey had 482 respondents (1080 questions) and prioritisation survey 677 respondents. Participants were drawn equally from the patient and clinical communities globally. We have achieved a consensus on 10 research priorities which will be attractive to funders. BMJ Publishing Group 2018-04 2017-08-04 /pmc/articles/PMC5870449/ /pubmed/28778919 http://dx.doi.org/10.1136/thoraxjnl-2017-210473 Text en © Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2018. All rights reserved. No commercial use is permitted unless otherwise expressly granted. This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/
spellingShingle Research Letter
Rowbotham, Nicola J
Smith, Sherie
Leighton, Paul A
Rayner, Oli C
Gathercole, Katie
Elliott, Zoe C
Nash, Edward F
Daniels, Tracey
Duff, Alistair J A
Collins, Sarah
Chandran, Suja
Peaple, Ursula
Hurley, Matthew N
Brownlee, Keith
Smyth, Alan R
The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and healthcare providers
title The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and healthcare providers
title_full The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and healthcare providers
title_fullStr The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and healthcare providers
title_full_unstemmed The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and healthcare providers
title_short The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and healthcare providers
title_sort top 10 research priorities in cystic fibrosis developed by a partnership between people with cf and healthcare providers
topic Research Letter
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5870449/
https://www.ncbi.nlm.nih.gov/pubmed/28778919
http://dx.doi.org/10.1136/thoraxjnl-2017-210473
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