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Support needs of patients with COPD: a systematic literature search and narrative review
INTRODUCTION: Understanding the breadth of patients’ support needs is important for the delivery of person-centered care, particularly in progressive long-term conditions such as chronic obstructive pulmonary disease (COPD). Existing reviews identify important aspects of managing life with COPD with...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Dove Medical Press
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5877489/ https://www.ncbi.nlm.nih.gov/pubmed/29628760 http://dx.doi.org/10.2147/COPD.S155622 |
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author | Gardener, A Carole Ewing, Gail Kuhn, Isla Farquhar, Morag |
author_facet | Gardener, A Carole Ewing, Gail Kuhn, Isla Farquhar, Morag |
author_sort | Gardener, A Carole |
collection | PubMed |
description | INTRODUCTION: Understanding the breadth of patients’ support needs is important for the delivery of person-centered care, particularly in progressive long-term conditions such as chronic obstructive pulmonary disease (COPD). Existing reviews identify important aspects of managing life with COPD with which patients may need support (support needs); however, none of these comprehensively outlines the full range of support needs that patients can experience. We therefore sought to systematically determine the full range of support needs for patients with COPD to inform development of an evidence-based tool to enable person-centered care. METHODS: We conducted a systematic search and narrative review of the literature. Medline (Ovid), EMBASE, PsycINFO, Cochrane Library, and CINAHL were systematically searched for papers which included data addressing key aspects of support need, as identified by patients with COPD. Relevant data were extracted, and a narrative analysis was conducted. RESULTS: Thirty-one papers were included in the review, and the following 13 domains (broad areas) of support need were identified: 1) understanding COPD, 2) managing symptoms and medication, 3) healthy lifestyle, 4) managing feelings and worries, 5) living positively with COPD, 6) thinking about the future, 7) anxiety and depression, 8) practical support, 9) finance work and housing, 10) families and close relationships, 11) social and recreational life, 12) independence, and 13) navigating services. These 13 domains of support need were mapped to three of the four overarching categories of need commonly used in relevant national strategy documents (ie, physical, psychological, and social); however, support needs related to the fourth category (spiritual) were notably absent. CONCLUSION: This review systematically identifies the comprehensive set of domains of support need for patients with COPD. The findings provide the evidence base for a tool to help patients identify and express their support needs, which underpins a proposed intervention to enable the delivery of person-centered care: the Support Needs Approach for Patients (SNAP). |
format | Online Article Text |
id | pubmed-5877489 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | Dove Medical Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-58774892018-04-06 Support needs of patients with COPD: a systematic literature search and narrative review Gardener, A Carole Ewing, Gail Kuhn, Isla Farquhar, Morag Int J Chron Obstruct Pulmon Dis Review INTRODUCTION: Understanding the breadth of patients’ support needs is important for the delivery of person-centered care, particularly in progressive long-term conditions such as chronic obstructive pulmonary disease (COPD). Existing reviews identify important aspects of managing life with COPD with which patients may need support (support needs); however, none of these comprehensively outlines the full range of support needs that patients can experience. We therefore sought to systematically determine the full range of support needs for patients with COPD to inform development of an evidence-based tool to enable person-centered care. METHODS: We conducted a systematic search and narrative review of the literature. Medline (Ovid), EMBASE, PsycINFO, Cochrane Library, and CINAHL were systematically searched for papers which included data addressing key aspects of support need, as identified by patients with COPD. Relevant data were extracted, and a narrative analysis was conducted. RESULTS: Thirty-one papers were included in the review, and the following 13 domains (broad areas) of support need were identified: 1) understanding COPD, 2) managing symptoms and medication, 3) healthy lifestyle, 4) managing feelings and worries, 5) living positively with COPD, 6) thinking about the future, 7) anxiety and depression, 8) practical support, 9) finance work and housing, 10) families and close relationships, 11) social and recreational life, 12) independence, and 13) navigating services. These 13 domains of support need were mapped to three of the four overarching categories of need commonly used in relevant national strategy documents (ie, physical, psychological, and social); however, support needs related to the fourth category (spiritual) were notably absent. CONCLUSION: This review systematically identifies the comprehensive set of domains of support need for patients with COPD. The findings provide the evidence base for a tool to help patients identify and express their support needs, which underpins a proposed intervention to enable the delivery of person-centered care: the Support Needs Approach for Patients (SNAP). Dove Medical Press 2018-03-26 /pmc/articles/PMC5877489/ /pubmed/29628760 http://dx.doi.org/10.2147/COPD.S155622 Text en © 2018 Gardener et al. This work is published by Dove Medical Press Limited, and licensed under a Creative Commons Attribution License The full terms of the License are available at http://creativecommons.org/licenses/by/4.0/. The license permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. |
spellingShingle | Review Gardener, A Carole Ewing, Gail Kuhn, Isla Farquhar, Morag Support needs of patients with COPD: a systematic literature search and narrative review |
title | Support needs of patients with COPD: a systematic literature search and narrative review |
title_full | Support needs of patients with COPD: a systematic literature search and narrative review |
title_fullStr | Support needs of patients with COPD: a systematic literature search and narrative review |
title_full_unstemmed | Support needs of patients with COPD: a systematic literature search and narrative review |
title_short | Support needs of patients with COPD: a systematic literature search and narrative review |
title_sort | support needs of patients with copd: a systematic literature search and narrative review |
topic | Review |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5877489/ https://www.ncbi.nlm.nih.gov/pubmed/29628760 http://dx.doi.org/10.2147/COPD.S155622 |
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