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T243. RESOURCE GROUP-ACT: RELATIVES’ PERSPECTIVES

BACKGROUND: Relatives often take on great responsibility for helping the patient in his or her daily life, and many relatives experience lack of support from health care services. Cooperation with relatives is a central component in Resource groups Assertive Community Treatment (R-ACT). This person-...

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Autores principales: Sjöström, Nils, Ewertzon, Mats, Weimand, Bente, Johansson, Anita, Mellgren, Zophia, Johansson, Ola, Ek-Persson, Jane, Waern, Margda
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5887687/
http://dx.doi.org/10.1093/schbul/sby016.519
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author Sjöström, Nils
Ewertzon, Mats
Weimand, Bente
Johansson, Anita
Mellgren, Zophia
Johansson, Ola
Ek-Persson, Jane
Waern, Margda
author_facet Sjöström, Nils
Ewertzon, Mats
Weimand, Bente
Johansson, Anita
Mellgren, Zophia
Johansson, Ola
Ek-Persson, Jane
Waern, Margda
author_sort Sjöström, Nils
collection PubMed
description BACKGROUND: Relatives often take on great responsibility for helping the patient in his or her daily life, and many relatives experience lack of support from health care services. Cooperation with relatives is a central component in Resource groups Assertive Community Treatment (R-ACT). This person-centered model has been found to decrease symptoms, increase level of function, and strengthen well-being in patients with psychotic disorders. However, little is known about relatives’ experiences of the model. AIM: To examine relatives experiences of R-ACT. Further, to compare relatives’ experiences of treatment and feelings of being alienated from care services in relatives’ with and without experience of R-ACT. We hypothesize higher levels of family burden, and family stigma and lower quality of life in relatives without R-ACT. DESIGN: Cross-sectional study focusing on relatives of persons with psychotic disorders during the period of October 1, 2017 – May 31, 2018. PARTICIPANTS: Relatives of next of kin suffering from psychotic disorders, treated in health care clinics with and without R-ACT in Västra Götaland County in Sweden. MEASUREMENTS: The postal questionnaire includes four self-reported instruments: the Family Involvement and Alienation Questionnaire, the Burden Inventory for Relatives of Persons Psychotic Disturbances, the Inventory of Stigmatizing Experiences (family version), and RAND-36. RESULTS: Recruitment is ongoing. Preliminary results will be presented at the conference. DISCUSSION: Increased knowledge about relatives’ experiences of psychosis care can inform the development of R-ACT, a care model that focuses on participation of both patients and their relatives.
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spelling pubmed-58876872018-04-11 T243. RESOURCE GROUP-ACT: RELATIVES’ PERSPECTIVES Sjöström, Nils Ewertzon, Mats Weimand, Bente Johansson, Anita Mellgren, Zophia Johansson, Ola Ek-Persson, Jane Waern, Margda Schizophr Bull Abstracts BACKGROUND: Relatives often take on great responsibility for helping the patient in his or her daily life, and many relatives experience lack of support from health care services. Cooperation with relatives is a central component in Resource groups Assertive Community Treatment (R-ACT). This person-centered model has been found to decrease symptoms, increase level of function, and strengthen well-being in patients with psychotic disorders. However, little is known about relatives’ experiences of the model. AIM: To examine relatives experiences of R-ACT. Further, to compare relatives’ experiences of treatment and feelings of being alienated from care services in relatives’ with and without experience of R-ACT. We hypothesize higher levels of family burden, and family stigma and lower quality of life in relatives without R-ACT. DESIGN: Cross-sectional study focusing on relatives of persons with psychotic disorders during the period of October 1, 2017 – May 31, 2018. PARTICIPANTS: Relatives of next of kin suffering from psychotic disorders, treated in health care clinics with and without R-ACT in Västra Götaland County in Sweden. MEASUREMENTS: The postal questionnaire includes four self-reported instruments: the Family Involvement and Alienation Questionnaire, the Burden Inventory for Relatives of Persons Psychotic Disturbances, the Inventory of Stigmatizing Experiences (family version), and RAND-36. RESULTS: Recruitment is ongoing. Preliminary results will be presented at the conference. DISCUSSION: Increased knowledge about relatives’ experiences of psychosis care can inform the development of R-ACT, a care model that focuses on participation of both patients and their relatives. Oxford University Press 2018-04 2018-04-01 /pmc/articles/PMC5887687/ http://dx.doi.org/10.1093/schbul/sby016.519 Text en © Maryland Psychiatric Research Center 2018. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Abstracts
Sjöström, Nils
Ewertzon, Mats
Weimand, Bente
Johansson, Anita
Mellgren, Zophia
Johansson, Ola
Ek-Persson, Jane
Waern, Margda
T243. RESOURCE GROUP-ACT: RELATIVES’ PERSPECTIVES
title T243. RESOURCE GROUP-ACT: RELATIVES’ PERSPECTIVES
title_full T243. RESOURCE GROUP-ACT: RELATIVES’ PERSPECTIVES
title_fullStr T243. RESOURCE GROUP-ACT: RELATIVES’ PERSPECTIVES
title_full_unstemmed T243. RESOURCE GROUP-ACT: RELATIVES’ PERSPECTIVES
title_short T243. RESOURCE GROUP-ACT: RELATIVES’ PERSPECTIVES
title_sort t243. resource group-act: relatives’ perspectives
topic Abstracts
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5887687/
http://dx.doi.org/10.1093/schbul/sby016.519
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