Cargando…

T240. CAREGIVER BURDEN OF OUTPATIENTS WITH SCHIZOPHRENIA IN UNIVERSITY CLINIC IN SAO PAULO, BRAZIL

BACKGROUND: The impact of schizophrenia on the family is complex1 and affects not only the patient, but his/her whole family. The adverse consequences involve physical, emotional, social, and economic restrictions and imply an objective and subjective burden for caregivers.2 This study aims to evalu...

Descripción completa

Detalles Bibliográficos
Autores principales: Di Sarno, Elaine, Napolitano, Isabel Cristina, Louzã Neto, Mario Rodrigues
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5888126/
http://dx.doi.org/10.1093/schbul/sby016.516
_version_ 1783312452675436544
author Di Sarno, Elaine
Napolitano, Isabel Cristina
Louzã Neto, Mario Rodrigues
author_facet Di Sarno, Elaine
Napolitano, Isabel Cristina
Louzã Neto, Mario Rodrigues
author_sort Di Sarno, Elaine
collection PubMed
description BACKGROUND: The impact of schizophrenia on the family is complex1 and affects not only the patient, but his/her whole family. The adverse consequences involve physical, emotional, social, and economic restrictions and imply an objective and subjective burden for caregivers.2 This study aims to evaluate the burden of caregiving in a sample of outpatients with schizophrenia, in Sao Paulo, Brazil. METHODS: Cross-sectional observational study. Patients with diagnosis of schizophrenia (DSM-5), 18–50 years, both sexes, and a relative/caregiver, both sexes, aged 18 to 70 years, living in contact with the patient at least 20 hours/week. Measures included patients and caregivers’ demographic variables. Family burden was evaluated using the Brazilian version of the Family Burden Interview Schedule (FBIS-BR), a semi-structured interview, considering objective and/or subjective burden, distributed in five subscales (assistance to the patient in daily life [objective and subjective burden]; supervision of patients’ problematic behaviors [objective and subjective burden]; financial burden; impact on family routine [objective and subjective]; worries about the patients’ present and future life [subjective]). The questions of FBIS-BR refer to the last thirty days prior to the interview, except for one item, which evaluates the overload during the last year. The objective burden is assessed in a Likert scale (1 = never to 5 = every day), and subjective burden, in Likert scale (1 = not at all to 4 = very much). RESULTS: Patients: n= 56: 69.6% male; mean age: 36.04 ± 9.62 years; 89.3% single; duration of disease: 15.07 ± 9.83 years; number of hospitalizations: 2.95 ± 3.76; 76.8% with elementary or middle school; 66.1% without social security. Caregivers n=56: 76.8% female; mean age: 56.30 ± 11.46 years; 57.1% mothers; 10.7 % fathers; 23.2% siblings; 57.1% married; 62.5% with elementary or middle school; in contact with the patient 81.71 ± 37.04 hours/week, most of them live with the patient; 53.6% without social security. The mean total score of the objective and subjective burden was 2.43 ± 0.57 and 2.14 ± 0.53, respectively. In the analysis of subscales the assistance to the patient in daily life (objective) was 3.26 ± 0.71 and it subjective aspect was 1.82 ± 0.89; supervision of patients’ problematic behaviors (objective) was 1.80 ± 0.53 and it subjective aspect was 0.95 ± 0.71. The impact on family routine (objective and subjective) was 2.21 ± 0.93 and worries about the patients’ present and future life (subjective) 3.64 ± 0.61; financial burden: 3.39 ± 1.54. The mean total family income was US$1008.49 ± $526.02. There were no significant differences in FBIS-BR scores between male and female patients, except for “supervision of patients’ problematic behaviors”, both objective (p=.013, uncorrected for multiple comparisons) and subjective (p= .032. uncorrected for multiple comparisons) aspects, in which female patients were responsible for a higher burden for their caregivers. Regarding the family’s perception of the financial burden in the last year, 57.3% considered their spending on patients as frequent, almost always or always heavy, in the same period. DISCUSSION: Our results are consistent with the study of Barroso et al. (2007), according to which providing care to psychiatric patients generates the feeling of overload, since the caregiver undergoes changes in his / her routine of life, failing to satisfy his / her needs to meet the needs of the patient. The burden affects almost equally male and female patients. REFERENCES: 1. Caqueo-Urízar A.,Castillo M., Giráldez S. et al.. Psicothema 2014: 26(2): 235–243 2. Barroso et al. Rev. Psiq. Clín 34 (6); 270–277
format Online
Article
Text
id pubmed-5888126
institution National Center for Biotechnology Information
language English
publishDate 2018
publisher Oxford University Press
record_format MEDLINE/PubMed
spelling pubmed-58881262018-04-11 T240. CAREGIVER BURDEN OF OUTPATIENTS WITH SCHIZOPHRENIA IN UNIVERSITY CLINIC IN SAO PAULO, BRAZIL Di Sarno, Elaine Napolitano, Isabel Cristina Louzã Neto, Mario Rodrigues Schizophr Bull Abstracts BACKGROUND: The impact of schizophrenia on the family is complex1 and affects not only the patient, but his/her whole family. The adverse consequences involve physical, emotional, social, and economic restrictions and imply an objective and subjective burden for caregivers.2 This study aims to evaluate the burden of caregiving in a sample of outpatients with schizophrenia, in Sao Paulo, Brazil. METHODS: Cross-sectional observational study. Patients with diagnosis of schizophrenia (DSM-5), 18–50 years, both sexes, and a relative/caregiver, both sexes, aged 18 to 70 years, living in contact with the patient at least 20 hours/week. Measures included patients and caregivers’ demographic variables. Family burden was evaluated using the Brazilian version of the Family Burden Interview Schedule (FBIS-BR), a semi-structured interview, considering objective and/or subjective burden, distributed in five subscales (assistance to the patient in daily life [objective and subjective burden]; supervision of patients’ problematic behaviors [objective and subjective burden]; financial burden; impact on family routine [objective and subjective]; worries about the patients’ present and future life [subjective]). The questions of FBIS-BR refer to the last thirty days prior to the interview, except for one item, which evaluates the overload during the last year. The objective burden is assessed in a Likert scale (1 = never to 5 = every day), and subjective burden, in Likert scale (1 = not at all to 4 = very much). RESULTS: Patients: n= 56: 69.6% male; mean age: 36.04 ± 9.62 years; 89.3% single; duration of disease: 15.07 ± 9.83 years; number of hospitalizations: 2.95 ± 3.76; 76.8% with elementary or middle school; 66.1% without social security. Caregivers n=56: 76.8% female; mean age: 56.30 ± 11.46 years; 57.1% mothers; 10.7 % fathers; 23.2% siblings; 57.1% married; 62.5% with elementary or middle school; in contact with the patient 81.71 ± 37.04 hours/week, most of them live with the patient; 53.6% without social security. The mean total score of the objective and subjective burden was 2.43 ± 0.57 and 2.14 ± 0.53, respectively. In the analysis of subscales the assistance to the patient in daily life (objective) was 3.26 ± 0.71 and it subjective aspect was 1.82 ± 0.89; supervision of patients’ problematic behaviors (objective) was 1.80 ± 0.53 and it subjective aspect was 0.95 ± 0.71. The impact on family routine (objective and subjective) was 2.21 ± 0.93 and worries about the patients’ present and future life (subjective) 3.64 ± 0.61; financial burden: 3.39 ± 1.54. The mean total family income was US$1008.49 ± $526.02. There were no significant differences in FBIS-BR scores between male and female patients, except for “supervision of patients’ problematic behaviors”, both objective (p=.013, uncorrected for multiple comparisons) and subjective (p= .032. uncorrected for multiple comparisons) aspects, in which female patients were responsible for a higher burden for their caregivers. Regarding the family’s perception of the financial burden in the last year, 57.3% considered their spending on patients as frequent, almost always or always heavy, in the same period. DISCUSSION: Our results are consistent with the study of Barroso et al. (2007), according to which providing care to psychiatric patients generates the feeling of overload, since the caregiver undergoes changes in his / her routine of life, failing to satisfy his / her needs to meet the needs of the patient. The burden affects almost equally male and female patients. REFERENCES: 1. Caqueo-Urízar A.,Castillo M., Giráldez S. et al.. Psicothema 2014: 26(2): 235–243 2. Barroso et al. Rev. Psiq. Clín 34 (6); 270–277 Oxford University Press 2018-04 2018-04-01 /pmc/articles/PMC5888126/ http://dx.doi.org/10.1093/schbul/sby016.516 Text en © Maryland Psychiatric Research Center 2018. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Abstracts
Di Sarno, Elaine
Napolitano, Isabel Cristina
Louzã Neto, Mario Rodrigues
T240. CAREGIVER BURDEN OF OUTPATIENTS WITH SCHIZOPHRENIA IN UNIVERSITY CLINIC IN SAO PAULO, BRAZIL
title T240. CAREGIVER BURDEN OF OUTPATIENTS WITH SCHIZOPHRENIA IN UNIVERSITY CLINIC IN SAO PAULO, BRAZIL
title_full T240. CAREGIVER BURDEN OF OUTPATIENTS WITH SCHIZOPHRENIA IN UNIVERSITY CLINIC IN SAO PAULO, BRAZIL
title_fullStr T240. CAREGIVER BURDEN OF OUTPATIENTS WITH SCHIZOPHRENIA IN UNIVERSITY CLINIC IN SAO PAULO, BRAZIL
title_full_unstemmed T240. CAREGIVER BURDEN OF OUTPATIENTS WITH SCHIZOPHRENIA IN UNIVERSITY CLINIC IN SAO PAULO, BRAZIL
title_short T240. CAREGIVER BURDEN OF OUTPATIENTS WITH SCHIZOPHRENIA IN UNIVERSITY CLINIC IN SAO PAULO, BRAZIL
title_sort t240. caregiver burden of outpatients with schizophrenia in university clinic in sao paulo, brazil
topic Abstracts
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5888126/
http://dx.doi.org/10.1093/schbul/sby016.516
work_keys_str_mv AT disarnoelaine t240caregiverburdenofoutpatientswithschizophreniainuniversityclinicinsaopaulobrazil
AT napolitanoisabelcristina t240caregiverburdenofoutpatientswithschizophreniainuniversityclinicinsaopaulobrazil
AT louzanetomariorodrigues t240caregiverburdenofoutpatientswithschizophreniainuniversityclinicinsaopaulobrazil