Enhancing the Validity of a Quality of Life Measure for Autistic People

Accurate measurement of quality of life (QoL) is important for evaluation of autism services and trials of interventions. We undertook psychometric validation of the World Health Organisation measure—WHOQoL-BREF, examined construct validity of the WHO Disabilities module and developed nine additiona...

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Autores principales: McConachie, Helen, Mason, David, Parr, Jeremy R., Garland, Deborah, Wilson, Colin, Rodgers, Jacqui
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2017
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5889785/
https://www.ncbi.nlm.nih.gov/pubmed/29188584
http://dx.doi.org/10.1007/s10803-017-3402-z
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author McConachie, Helen
Mason, David
Parr, Jeremy R.
Garland, Deborah
Wilson, Colin
Rodgers, Jacqui
author_facet McConachie, Helen
Mason, David
Parr, Jeremy R.
Garland, Deborah
Wilson, Colin
Rodgers, Jacqui
author_sort McConachie, Helen
collection PubMed
description Accurate measurement of quality of life (QoL) is important for evaluation of autism services and trials of interventions. We undertook psychometric validation of the World Health Organisation measure—WHOQoL-BREF, examined construct validity of the WHO Disabilities module and developed nine additional autism-specific items (ASQoL) from extensive consultation with the autism community. The sample of 309 autistic people was recruited from the Adult Autism Spectrum Cohort-UK. The WHOQoL-BREF had good psychometric properties, including criterion, convergent, divergent and discriminant validity. The WHO Disabilities module showed adequate construct validity and reliability. The ASQoL items form a unitary factor of QoL, with one global item. Future studies can use the WHO measures alongside the ASQoL items to measure QoL of autistic people. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1007/s10803-017-3402-z) contains supplementary material, which is available to authorized users.
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spelling pubmed-58897852018-04-12 Enhancing the Validity of a Quality of Life Measure for Autistic People McConachie, Helen Mason, David Parr, Jeremy R. Garland, Deborah Wilson, Colin Rodgers, Jacqui J Autism Dev Disord Original Paper Accurate measurement of quality of life (QoL) is important for evaluation of autism services and trials of interventions. We undertook psychometric validation of the World Health Organisation measure—WHOQoL-BREF, examined construct validity of the WHO Disabilities module and developed nine additional autism-specific items (ASQoL) from extensive consultation with the autism community. The sample of 309 autistic people was recruited from the Adult Autism Spectrum Cohort-UK. The WHOQoL-BREF had good psychometric properties, including criterion, convergent, divergent and discriminant validity. The WHO Disabilities module showed adequate construct validity and reliability. The ASQoL items form a unitary factor of QoL, with one global item. Future studies can use the WHO measures alongside the ASQoL items to measure QoL of autistic people. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1007/s10803-017-3402-z) contains supplementary material, which is available to authorized users. Springer US 2017-11-29 2018 /pmc/articles/PMC5889785/ /pubmed/29188584 http://dx.doi.org/10.1007/s10803-017-3402-z Text en © The Author(s) 2017 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Original Paper
McConachie, Helen
Mason, David
Parr, Jeremy R.
Garland, Deborah
Wilson, Colin
Rodgers, Jacqui
Enhancing the Validity of a Quality of Life Measure for Autistic People
title Enhancing the Validity of a Quality of Life Measure for Autistic People
title_full Enhancing the Validity of a Quality of Life Measure for Autistic People
title_fullStr Enhancing the Validity of a Quality of Life Measure for Autistic People
title_full_unstemmed Enhancing the Validity of a Quality of Life Measure for Autistic People
title_short Enhancing the Validity of a Quality of Life Measure for Autistic People
title_sort enhancing the validity of a quality of life measure for autistic people
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5889785/
https://www.ncbi.nlm.nih.gov/pubmed/29188584
http://dx.doi.org/10.1007/s10803-017-3402-z
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