Cargando…

Enhancing the Validity of a Quality of Life Measure for Autistic People

Accurate measurement of quality of life (QoL) is important for evaluation of autism services and trials of interventions. We undertook psychometric validation of the World Health Organisation measure—WHOQoL-BREF, examined construct validity of the WHO Disabilities module and developed nine additiona...

Descripción completa

Detalles Bibliográficos
Autores principales:	McConachie, Helen, Mason, David, Parr, Jeremy R., Garland, Deborah, Wilson, Colin, Rodgers, Jacqui
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Springer US 2017
Materias:	Original Paper
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5889785/ https://www.ncbi.nlm.nih.gov/pubmed/29188584 http://dx.doi.org/10.1007/s10803-017-3402-z

Ejemplares similares

Predictors of quality of life for autistic adults
por: Mason, David, et al.
Publicado: (2018)

Reducing Specific Phobia/Fear in Young People with Autism Spectrum Disorders (ASDs) through a Virtual Reality Environment Intervention
por: Maskey, Morag, et al.
Publicado: (2014)

“We couldn’t think in the box if we tried. We can’t even find the damn box”: A qualitative study of the lived experiences of autistic adults and relatives of autistic adults
por: Finch, Tracy L., et al.
Publicado: (2022)

A Randomised Controlled Feasibility Trial of Immersive Virtual Reality Treatment with Cognitive Behaviour Therapy for Specific Phobias in Young People with Autism Spectrum Disorder
por: Maskey, Morag, et al.
Publicado: (2019)

Experience of transfer from child to adult mental health services of young people with autism spectrum disorder
por: Merrick, Hannah, et al.
Publicado: (2020)

The importance and availability of adjustments to improve access for autistic adults who need mental and physical healthcare: findings from UK surveys
por: Brice, Samuel, et al.
Publicado: (2021)

Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families
por: Goodwin, Jane, et al.
Publicado: (2021)

Mental Wellbeing of Family Members of Autistic Adults
por: Herrema, Renske, et al.
Publicado: (2017)

Factors Affecting Age at ASD Diagnosis in UK: No Evidence that Diagnosis Age has Decreased Between 2004 and 2014
por: Brett, Denise, et al.
Publicado: (2016)

Characteristics of young people with long term conditions close to transfer to adult health services
por: Merrick, Hannah, et al.
Publicado: (2015)

Comparisons of the Factor Structure and Measurement Invariance of the Spence Children’s Anxiety Scale—Parent Version in Children with Autism Spectrum Disorder and Typically Developing Anxious Children
por: Glod, Magdalena, et al.
Publicado: (2017)

Coping with Uncertainty in Everyday Situations (CUES©) to address intolerance of uncertainty in autistic children: study protocol for an intervention feasibility trial
por: Rodgers, Jacqui, et al.
Publicado: (2019)

Parents Suggest Which Indicators of Progress and Outcomes Should be Measured in Young Children with Autism Spectrum Disorder
por: McConachie, Helen, et al.
Publicado: (2017)

Coping with uncertainty in everyday situations (CUES©) to address intolerance of uncertainty in autistic children: an intervention feasibility trial
por: Rodgers, Jacqui, et al.
Publicado: (2022)

Development and validation of the suicidal behaviours questionnaire - autism spectrum conditions in a community sample of autistic, possibly autistic and non-autistic adults
por: Cassidy, Sarah A., et al.
Publicado: (2021)

Systematic Review of the Measurement Properties of Tools Used to Measure Behaviour Problems in Young Children with Autism
por: Hanratty, Jennifer, et al.
Publicado: (2015)

Systematic Review of the Properties of Tools Used to Measure Outcomes in Anxiety Intervention Studies for Children with Autism Spectrum Disorders
por: Wigham, Sarah, et al.
Publicado: (2014)

Using Virtual Reality Environments to Augment Cognitive Behavioral Therapy for Fears and Phobias in Autistic Adults
por: Maskey, Morag, et al.
Publicado: (2019)

Designing and recruiting to UK autism spectrum disorder research databases: do they include representative children with valid ASD diagnoses?
por: Warnell, F, et al.
Publicado: (2015)

Views about primary care health checks for autistic adults: UK survey findings
por: Mason, David, et al.
Publicado: (2022)

The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention
por: Leadbitter, Kathy, et al.
Publicado: (2017)

Co-design of an NHS primary care health check for autistic adults
por: Taylor, Helen, et al.
Publicado: (2022)

Study protocol: longitudinal study of the transition of young people with complex health needs from child to adult health services
por: Colver, Allan F, et al.
Publicado: (2013)

The Mediating Effects of Alexithymia, Intolerance of Uncertainty, and Anxiety on the Relationship Between Sensory Processing Differences and Restricted and Repetitive Behaviours in Autistic Adults
por: Moore, Heather L., et al.
Publicado: (2021)

A longitudinal, observational study examining the relationships of patient satisfaction with services and mental well‐being to their clinical course in young people with Type 1 diabetes mellitus during transition from child to adult health services
por: Gray, S., et al.
Publicado: (2018)

Are the health needs of young people with cerebral palsy met during transition from child to adult health care?
por: Solanke, F., et al.
Publicado: (2018)

Developing the FEEDS toolkit of parent-delivered interventions for eating, drinking and swallowing difficulties in young children with neurodisability: findings from a Delphi survey and stakeholder consultation workshops
por: Taylor, Helen, et al.
Publicado: (2022)

The New Colombo Plan: addressing the barriers to scholarship recipients’ contributing to Australia’s public diplomacy goals in China
por: McConachie, Bradley
Publicado: (2021)

Mechanical thrombectomy for acute ischaemic stroke during the COVID-19 pandemic: changes to UK practice and lessons learned
por: McConachie, D., et al.
Publicado: (2020)

Treating anxiety in autistic adults: study protocol for the Personalised Anxiety Treatment–Autism (PAT-A©) pilot randomised controlled feasibility trial
por: Parr, Jeremy R., et al.
Publicado: (2020)

A Measurement Invariance Analysis of the Interpersonal Needs Questionnaire and Acquired Capability for Suicide Scale in Autistic and Non-Autistic Adults
por: Pelton, Mirabel K., et al.
Publicado: (2020)

Combined social communication therapy at home and in education for young autistic children in England (PACT-G): a parallel, single-blind, randomised controlled trial
por: Green, Jonathan, et al.
Publicado: (2022)

How well do services for young people with long term conditions deliver features proposed to improve transition?
por: Colver, A., et al.
Publicado: (2018)

Parents' and child health professionals' attitudes to dietary interventions in autism spectrum disorder (ASD): findings from a UK survey
por: McColl, Elaine, et al.
Publicado: (2013)

Measurement Properties of the Suicidal Behaviour Questionnaire-Revised in Autistic Adults
por: Cassidy, Sarah A., et al.
Publicado: (2020)

The role of alexithymia and autistic traits in predicting quality of life in an online sample
por: Mason, David, et al.
Publicado: (2022)

Adapting and validating the Autism Diagnostic Observation Schedule Version 2 for use with deaf children and young people
por: Phillips, Helen, et al.
Publicado: (2021)

Scoring System for Multiple Organ Dysfunction in Adult Horses with Acute Surgical Gastrointestinal Disease
por: McConachie, E., et al.
Publicado: (2016)

A longitudinal, observational study of the features of transitional healthcare associated with better outcomes for young people with long-term conditions
por: Colver, A., et al.
Publicado: (2018)

Sensory Sensitivity and Intolerance of Uncertainty Influence Anxiety in Autistic Adults
por: Normansell-Mossa, Karys M., et al.
Publicado: (2021)

Cannot write session to /tmp/vufind_sessions/sess_6mcc5khgn058k1mugmh8m3tejq