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Adding patient-reported outcomes to a multisite registry to quantify quality of life and experiences of disease and treatment for youth with juvenile idiopathic arthritis

BACKGROUND: Children with Juvenile Idiopathic Arthritis (JIA) often have poor health-related quality of life (HRQOL) despite advances in treatment. Patient-centered research may shed light on how patient experiences of treatment and disease contribute to HRQOL, pinpointing directions for improving c...

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Detalles Bibliográficos
Autores principales:	Weitzman, Elissa R., Wisk, Lauren E., Salimian, Parissa K., Magane, Kara M., Dedeoglu, Fatma, Hersh, Aimee O., Kimura, Yukiko, Mandl, Kenneth D., Ringold, Sarah, Natter, Marc
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Springer International Publishing 2018
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5891162/ https://www.ncbi.nlm.nih.gov/pubmed/29645010 http://dx.doi.org/10.1186/s41687-017-0025-2

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