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The Colombian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of t...

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Autores principales: Malagon, Clara, Mosquera Pongutà, Angela Catalina, De Inocencio, Jaime, Consolaro, Alessandro, Bovis, Francesca, Ruperto, Nicolino
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5893670/
https://www.ncbi.nlm.nih.gov/pubmed/29637372
http://dx.doi.org/10.1007/s00296-018-3941-4
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author Malagon, Clara
Mosquera Pongutà, Angela Catalina
De Inocencio, Jaime
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
author_facet Malagon, Clara
Mosquera Pongutà, Angela Catalina
De Inocencio, Jaime
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
author_sort Malagon, Clara
collection PubMed
description The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Colombian Spanish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, and construct validity (convergent and discriminant validity). A total of 22 JIA patients (9.1% systemic, 27.3% RF-negative polyarthritis, 36.4% enthesitis-related arthritis, 27.2% other categories) were enrolled in the paediatric centre of Bogota. All JAMAR components revealed good psychometric performances. In conclusion, the Colombian Spanish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
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spelling pubmed-58936702018-04-16 The Colombian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) Malagon, Clara Mosquera Pongutà, Angela Catalina De Inocencio, Jaime Consolaro, Alessandro Bovis, Francesca Ruperto, Nicolino Rheumatol Int Validation Studies The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Colombian Spanish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, and construct validity (convergent and discriminant validity). A total of 22 JIA patients (9.1% systemic, 27.3% RF-negative polyarthritis, 36.4% enthesitis-related arthritis, 27.2% other categories) were enrolled in the paediatric centre of Bogota. All JAMAR components revealed good psychometric performances. In conclusion, the Colombian Spanish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research. Springer Berlin Heidelberg 2018-04-07 2018 /pmc/articles/PMC5893670/ /pubmed/29637372 http://dx.doi.org/10.1007/s00296-018-3941-4 Text en © The Author(s) 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Validation Studies
Malagon, Clara
Mosquera Pongutà, Angela Catalina
De Inocencio, Jaime
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
The Colombian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title The Colombian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_full The Colombian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_fullStr The Colombian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_full_unstemmed The Colombian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_short The Colombian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_sort colombian spanish version of the juvenile arthritis multidimensional assessment report (jamar)
topic Validation Studies
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5893670/
https://www.ncbi.nlm.nih.gov/pubmed/29637372
http://dx.doi.org/10.1007/s00296-018-3941-4
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