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The French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of t...

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Autores principales: Quartier, Pierre, Hofer, Michael, Wouters, Carine, Truong, Thi Thanh Thao, Duong, Ngoc-Phoi, Agbo-Kpati, Kokou-Placide, Uettwiller, Florence, Melki, Isabelle, Mouy, Richard, Bader-Meunier, Brigitte, Consolaro, Alessandro, Bovis, Francesca, Ruperto, Nicolino
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5893704/
https://www.ncbi.nlm.nih.gov/pubmed/29637356
http://dx.doi.org/10.1007/s00296-018-3951-2
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author Quartier, Pierre
Hofer, Michael
Wouters, Carine
Truong, Thi Thanh Thao
Duong, Ngoc-Phoi
Agbo-Kpati, Kokou-Placide
Uettwiller, Florence
Melki, Isabelle
Mouy, Richard
Bader-Meunier, Brigitte
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
author_facet Quartier, Pierre
Hofer, Michael
Wouters, Carine
Truong, Thi Thanh Thao
Duong, Ngoc-Phoi
Agbo-Kpati, Kokou-Placide
Uettwiller, Florence
Melki, Isabelle
Mouy, Richard
Bader-Meunier, Brigitte
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
author_sort Quartier, Pierre
collection PubMed
description The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the French language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations and construct validity (convergent and discriminant validity). A total of 100 JIA patients (23% systemic, 45% oligoarticular, 20% RF negative polyarthritis, 12% other categories) and 122 healthy children, were enrolled at the paediatric rheumatology centre of the Necker Children’s Hospital in Paris. Notably, none of the enrolled JIA patients is affected with psoriatic arthritis. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the French version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
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spelling pubmed-58937042018-04-16 The French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) Quartier, Pierre Hofer, Michael Wouters, Carine Truong, Thi Thanh Thao Duong, Ngoc-Phoi Agbo-Kpati, Kokou-Placide Uettwiller, Florence Melki, Isabelle Mouy, Richard Bader-Meunier, Brigitte Consolaro, Alessandro Bovis, Francesca Ruperto, Nicolino Rheumatol Int Validation Studies The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the French language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations and construct validity (convergent and discriminant validity). A total of 100 JIA patients (23% systemic, 45% oligoarticular, 20% RF negative polyarthritis, 12% other categories) and 122 healthy children, were enrolled at the paediatric rheumatology centre of the Necker Children’s Hospital in Paris. Notably, none of the enrolled JIA patients is affected with psoriatic arthritis. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the French version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research. Springer Berlin Heidelberg 2018-04-07 2018 /pmc/articles/PMC5893704/ /pubmed/29637356 http://dx.doi.org/10.1007/s00296-018-3951-2 Text en © The Author(s) 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Validation Studies
Quartier, Pierre
Hofer, Michael
Wouters, Carine
Truong, Thi Thanh Thao
Duong, Ngoc-Phoi
Agbo-Kpati, Kokou-Placide
Uettwiller, Florence
Melki, Isabelle
Mouy, Richard
Bader-Meunier, Brigitte
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
The French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title The French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_full The French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_fullStr The French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_full_unstemmed The French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_short The French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_sort french version of the juvenile arthritis multidimensional assessment report (jamar)
topic Validation Studies
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5893704/
https://www.ncbi.nlm.nih.gov/pubmed/29637356
http://dx.doi.org/10.1007/s00296-018-3951-2
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