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The Greek version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of t...
Autores principales: | , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Berlin Heidelberg
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5893705/ https://www.ncbi.nlm.nih.gov/pubmed/29637326 http://dx.doi.org/10.1007/s00296-018-3954-z |
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author | Pratsidou-Gertsi, Polyxeni Trachana, Maria Kanakoudi-Tsakalidou, Florence Tsitsami, Elena Tsinti, Maria Vougiouka, Olga Siamopoulou, Antigoni Alfantaki, Sapfo Stavrakidou, Maria Consolaro, Alessandro Bovis, Francesca Ruperto, Nicolino |
author_facet | Pratsidou-Gertsi, Polyxeni Trachana, Maria Kanakoudi-Tsakalidou, Florence Tsitsami, Elena Tsinti, Maria Vougiouka, Olga Siamopoulou, Antigoni Alfantaki, Sapfo Stavrakidou, Maria Consolaro, Alessandro Bovis, Francesca Ruperto, Nicolino |
author_sort | Pratsidou-Gertsi, Polyxeni |
collection | PubMed |
description | The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Greek language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographics, clinical data, and the JAMAR from 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). The Greek JAMAR was fully cross-culturally adapted with two forward and three backward translations. A total of 272 JIA patients (5.9% systemic, 57.7% oligoarticular, 21.3% RF negative poly-arthritis, 15.1% other categories), and 100 healthy children were enrolled in all centres. The JAMAR components discriminated well-healthy subjects from JIA patients; notably, there was no significant difference between healthy subjects and their affected peers in psychosocial quality of life and school-related items. All JAMAR components revealed good psychometric performances. In conclusion, the Greek version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and in clinical research. |
format | Online Article Text |
id | pubmed-5893705 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | Springer Berlin Heidelberg |
record_format | MEDLINE/PubMed |
spelling | pubmed-58937052018-04-16 The Greek version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) Pratsidou-Gertsi, Polyxeni Trachana, Maria Kanakoudi-Tsakalidou, Florence Tsitsami, Elena Tsinti, Maria Vougiouka, Olga Siamopoulou, Antigoni Alfantaki, Sapfo Stavrakidou, Maria Consolaro, Alessandro Bovis, Francesca Ruperto, Nicolino Rheumatol Int Validation Studies The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Greek language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographics, clinical data, and the JAMAR from 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). The Greek JAMAR was fully cross-culturally adapted with two forward and three backward translations. A total of 272 JIA patients (5.9% systemic, 57.7% oligoarticular, 21.3% RF negative poly-arthritis, 15.1% other categories), and 100 healthy children were enrolled in all centres. The JAMAR components discriminated well-healthy subjects from JIA patients; notably, there was no significant difference between healthy subjects and their affected peers in psychosocial quality of life and school-related items. All JAMAR components revealed good psychometric performances. In conclusion, the Greek version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and in clinical research. Springer Berlin Heidelberg 2018-04-07 2018 /pmc/articles/PMC5893705/ /pubmed/29637326 http://dx.doi.org/10.1007/s00296-018-3954-z Text en © The Author(s) 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. |
spellingShingle | Validation Studies Pratsidou-Gertsi, Polyxeni Trachana, Maria Kanakoudi-Tsakalidou, Florence Tsitsami, Elena Tsinti, Maria Vougiouka, Olga Siamopoulou, Antigoni Alfantaki, Sapfo Stavrakidou, Maria Consolaro, Alessandro Bovis, Francesca Ruperto, Nicolino The Greek version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) |
title | The Greek version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) |
title_full | The Greek version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) |
title_fullStr | The Greek version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) |
title_full_unstemmed | The Greek version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) |
title_short | The Greek version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) |
title_sort | greek version of the juvenile arthritis multidimensional assessment report (jamar) |
topic | Validation Studies |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5893705/ https://www.ncbi.nlm.nih.gov/pubmed/29637326 http://dx.doi.org/10.1007/s00296-018-3954-z |
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