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The Greek version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of t...

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Autores principales: Pratsidou-Gertsi, Polyxeni, Trachana, Maria, Kanakoudi-Tsakalidou, Florence, Tsitsami, Elena, Tsinti, Maria, Vougiouka, Olga, Siamopoulou, Antigoni, Alfantaki, Sapfo, Stavrakidou, Maria, Consolaro, Alessandro, Bovis, Francesca, Ruperto, Nicolino
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5893705/
https://www.ncbi.nlm.nih.gov/pubmed/29637326
http://dx.doi.org/10.1007/s00296-018-3954-z
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author Pratsidou-Gertsi, Polyxeni
Trachana, Maria
Kanakoudi-Tsakalidou, Florence
Tsitsami, Elena
Tsinti, Maria
Vougiouka, Olga
Siamopoulou, Antigoni
Alfantaki, Sapfo
Stavrakidou, Maria
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
author_facet Pratsidou-Gertsi, Polyxeni
Trachana, Maria
Kanakoudi-Tsakalidou, Florence
Tsitsami, Elena
Tsinti, Maria
Vougiouka, Olga
Siamopoulou, Antigoni
Alfantaki, Sapfo
Stavrakidou, Maria
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
author_sort Pratsidou-Gertsi, Polyxeni
collection PubMed
description The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Greek language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographics, clinical data, and the JAMAR from 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). The Greek JAMAR was fully cross-culturally adapted with two forward and three backward translations. A total of 272 JIA patients (5.9% systemic, 57.7% oligoarticular, 21.3% RF negative poly-arthritis, 15.1% other categories), and 100 healthy children were enrolled in all centres. The JAMAR components discriminated well-healthy subjects from JIA patients; notably, there was no significant difference between healthy subjects and their affected peers in psychosocial quality of life and school-related items. All JAMAR components revealed good psychometric performances. In conclusion, the Greek version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and in clinical research.
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spelling pubmed-58937052018-04-16 The Greek version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) Pratsidou-Gertsi, Polyxeni Trachana, Maria Kanakoudi-Tsakalidou, Florence Tsitsami, Elena Tsinti, Maria Vougiouka, Olga Siamopoulou, Antigoni Alfantaki, Sapfo Stavrakidou, Maria Consolaro, Alessandro Bovis, Francesca Ruperto, Nicolino Rheumatol Int Validation Studies The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Greek language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographics, clinical data, and the JAMAR from 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). The Greek JAMAR was fully cross-culturally adapted with two forward and three backward translations. A total of 272 JIA patients (5.9% systemic, 57.7% oligoarticular, 21.3% RF negative poly-arthritis, 15.1% other categories), and 100 healthy children were enrolled in all centres. The JAMAR components discriminated well-healthy subjects from JIA patients; notably, there was no significant difference between healthy subjects and their affected peers in psychosocial quality of life and school-related items. All JAMAR components revealed good psychometric performances. In conclusion, the Greek version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and in clinical research. Springer Berlin Heidelberg 2018-04-07 2018 /pmc/articles/PMC5893705/ /pubmed/29637326 http://dx.doi.org/10.1007/s00296-018-3954-z Text en © The Author(s) 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Validation Studies
Pratsidou-Gertsi, Polyxeni
Trachana, Maria
Kanakoudi-Tsakalidou, Florence
Tsitsami, Elena
Tsinti, Maria
Vougiouka, Olga
Siamopoulou, Antigoni
Alfantaki, Sapfo
Stavrakidou, Maria
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
The Greek version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title The Greek version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_full The Greek version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_fullStr The Greek version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_full_unstemmed The Greek version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_short The Greek version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_sort greek version of the juvenile arthritis multidimensional assessment report (jamar)
topic Validation Studies
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5893705/
https://www.ncbi.nlm.nih.gov/pubmed/29637326
http://dx.doi.org/10.1007/s00296-018-3954-z
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