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The Lithuanian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of t...

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Autores principales: Rusoniene, Skirmante, Panaviene, Violeta, Jankauskaitė, Kristina, Cvilik, Diana, Consolaro, Alessandro, Bovis, Francesca, Ruperto, Nicolino
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5893746/
https://www.ncbi.nlm.nih.gov/pubmed/29637353
http://dx.doi.org/10.1007/s00296-018-3970-z
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author Rusoniene, Skirmante
Panaviene, Violeta
Jankauskaitė, Kristina
Cvilik, Diana
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
author_facet Rusoniene, Skirmante
Panaviene, Violeta
Jankauskaitė, Kristina
Cvilik, Diana
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
author_sort Rusoniene, Skirmante
collection PubMed
description The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Lithuanian language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 101 JIA patients (5.9% systemic, 38.6% oligoarticular, 23.8% RF negative polyarthritis, 31.7% other categories) and 116 healthy children, were enrolled at the paediatric rheumatology centre in Vilnius. The JAMAR components discriminated well healthy subjects from JIA patients. Notably, there is no significant difference between healthy subjects and their affected peers in the school-related problems variable. All JAMAR components revealed good psychometric performances. In conclusion, the Lithuanian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
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spelling pubmed-58937462018-04-16 The Lithuanian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) Rusoniene, Skirmante Panaviene, Violeta Jankauskaitė, Kristina Cvilik, Diana Consolaro, Alessandro Bovis, Francesca Ruperto, Nicolino Rheumatol Int Validation Studies The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Lithuanian language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 101 JIA patients (5.9% systemic, 38.6% oligoarticular, 23.8% RF negative polyarthritis, 31.7% other categories) and 116 healthy children, were enrolled at the paediatric rheumatology centre in Vilnius. The JAMAR components discriminated well healthy subjects from JIA patients. Notably, there is no significant difference between healthy subjects and their affected peers in the school-related problems variable. All JAMAR components revealed good psychometric performances. In conclusion, the Lithuanian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research. Springer Berlin Heidelberg 2018-04-07 2018 /pmc/articles/PMC5893746/ /pubmed/29637353 http://dx.doi.org/10.1007/s00296-018-3970-z Text en © The Author(s) 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Validation Studies
Rusoniene, Skirmante
Panaviene, Violeta
Jankauskaitė, Kristina
Cvilik, Diana
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
The Lithuanian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title The Lithuanian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_full The Lithuanian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_fullStr The Lithuanian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_full_unstemmed The Lithuanian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_short The Lithuanian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_sort lithuanian version of the juvenile arthritis multidimensional assessment report (jamar)
topic Validation Studies
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5893746/
https://www.ncbi.nlm.nih.gov/pubmed/29637353
http://dx.doi.org/10.1007/s00296-018-3970-z
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