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The Castilian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of t...

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Autores principales: de Inocencio, Jaime, Anton, Jordi, Calvo Penades, Inmaculada, Mesa del Castillo Bermejo, Pablo, Alcobendas, Rosa, Boteanu, Alina Lucica, Bou, Rosa, Iglesias, Estibaliz, González Fernandez, María Isabel, López Montesinos, Berta, Santin, Palmira, Alcañiz Rodriguez, Paula, Lorente Sanchez, Maria Jose, Consolaro, Alessandro, Bovis, Francesca, Ruperto, Nicolino
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5893749/
https://www.ncbi.nlm.nih.gov/pubmed/29637328
http://dx.doi.org/10.1007/s00296-018-3976-6
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author de Inocencio, Jaime
Anton, Jordi
Calvo Penades, Inmaculada
Mesa del Castillo Bermejo, Pablo
Alcobendas, Rosa
Boteanu, Alina Lucica
Bou, Rosa
Iglesias, Estibaliz
González Fernandez, María Isabel
López Montesinos, Berta
Santin, Palmira
Alcañiz Rodriguez, Paula
Lorente Sanchez, Maria Jose
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
author_facet de Inocencio, Jaime
Anton, Jordi
Calvo Penades, Inmaculada
Mesa del Castillo Bermejo, Pablo
Alcobendas, Rosa
Boteanu, Alina Lucica
Bou, Rosa
Iglesias, Estibaliz
González Fernandez, María Isabel
López Montesinos, Berta
Santin, Palmira
Alcañiz Rodriguez, Paula
Lorente Sanchez, Maria Jose
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
author_sort de Inocencio, Jaime
collection PubMed
description The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Castilian Spanish language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability and construct validity (convergent and discriminant validity). A total of 526 JIA patients (8.6% systemic, 49.4% oligoarticular, 18.2% RF negative polyarthritis, 23.8% other categories) and 78 healthy children, were enrolled in six centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Castilian Spanish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practise and clinical research.
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spelling pubmed-58937492018-04-16 The Castilian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) de Inocencio, Jaime Anton, Jordi Calvo Penades, Inmaculada Mesa del Castillo Bermejo, Pablo Alcobendas, Rosa Boteanu, Alina Lucica Bou, Rosa Iglesias, Estibaliz González Fernandez, María Isabel López Montesinos, Berta Santin, Palmira Alcañiz Rodriguez, Paula Lorente Sanchez, Maria Jose Consolaro, Alessandro Bovis, Francesca Ruperto, Nicolino Rheumatol Int Validation Studies The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Castilian Spanish language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability and construct validity (convergent and discriminant validity). A total of 526 JIA patients (8.6% systemic, 49.4% oligoarticular, 18.2% RF negative polyarthritis, 23.8% other categories) and 78 healthy children, were enrolled in six centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Castilian Spanish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practise and clinical research. Springer Berlin Heidelberg 2018-04-07 2018 /pmc/articles/PMC5893749/ /pubmed/29637328 http://dx.doi.org/10.1007/s00296-018-3976-6 Text en © The Author(s) 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Validation Studies
de Inocencio, Jaime
Anton, Jordi
Calvo Penades, Inmaculada
Mesa del Castillo Bermejo, Pablo
Alcobendas, Rosa
Boteanu, Alina Lucica
Bou, Rosa
Iglesias, Estibaliz
González Fernandez, María Isabel
López Montesinos, Berta
Santin, Palmira
Alcañiz Rodriguez, Paula
Lorente Sanchez, Maria Jose
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
The Castilian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title The Castilian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_full The Castilian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_fullStr The Castilian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_full_unstemmed The Castilian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_short The Castilian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_sort castilian spanish version of the juvenile arthritis multidimensional assessment report (jamar)
topic Validation Studies
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5893749/
https://www.ncbi.nlm.nih.gov/pubmed/29637328
http://dx.doi.org/10.1007/s00296-018-3976-6
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