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The Hebrew version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of t...

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Autores principales: Uziel, Yosef, Sherman, Gilad, Rabinowicz, Noa, Harel, Liora, Consolaro, Alessandro, Bovis, Francesca, Ruperto, Nicolino
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5893751/
https://www.ncbi.nlm.nih.gov/pubmed/29637355
http://dx.doi.org/10.1007/s00296-018-3956-x
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author Uziel, Yosef
Sherman, Gilad
Rabinowicz, Noa
Harel, Liora
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
author_facet Uziel, Yosef
Sherman, Gilad
Rabinowicz, Noa
Harel, Liora
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
author_sort Uziel, Yosef
collection PubMed
description The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Hebrew language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data, and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, and construct validity (convergent and discriminant validity). A total of 116 JIA patients (17.2% systemic, 56% oligoarticular, 20.7% RF negative poly-arthritis, and 6.1% other categories) and 98 healthy children were enrolled in two centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Hebrew version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and in clinical research.
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spelling pubmed-58937512018-04-16 The Hebrew version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) Uziel, Yosef Sherman, Gilad Rabinowicz, Noa Harel, Liora Consolaro, Alessandro Bovis, Francesca Ruperto, Nicolino Rheumatol Int Validation Studies The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Hebrew language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data, and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, and construct validity (convergent and discriminant validity). A total of 116 JIA patients (17.2% systemic, 56% oligoarticular, 20.7% RF negative poly-arthritis, and 6.1% other categories) and 98 healthy children were enrolled in two centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Hebrew version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and in clinical research. Springer Berlin Heidelberg 2018-04-07 2018 /pmc/articles/PMC5893751/ /pubmed/29637355 http://dx.doi.org/10.1007/s00296-018-3956-x Text en © The Author(s) 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Validation Studies
Uziel, Yosef
Sherman, Gilad
Rabinowicz, Noa
Harel, Liora
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
The Hebrew version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title The Hebrew version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_full The Hebrew version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_fullStr The Hebrew version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_full_unstemmed The Hebrew version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_short The Hebrew version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
title_sort hebrew version of the juvenile arthritis multidimensional assessment report (jamar)
topic Validation Studies
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5893751/
https://www.ncbi.nlm.nih.gov/pubmed/29637355
http://dx.doi.org/10.1007/s00296-018-3956-x
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