Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Using Citizens’ Juries

BACKGROUND: The secondary use of health data for research raises complex questions of privacy and governance. Such questions are ill-suited to opinion polling where citizens must choose quickly between multiple-choice answers based on little information. OBJECTIVE: The aim of this project was to ext...

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Detalles Bibliográficos
Autores principales: Tully, Mary P, Bozentko, Kyle, Clement, Sarah, Hunn, Amanda, Hassan, Lamiece, Norris, Ruth, Oswald, Malcolm, Peek, Niels
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2018
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5895919/
https://www.ncbi.nlm.nih.gov/pubmed/29592847
http://dx.doi.org/10.2196/jmir.7763

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