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Patient reported outcome measures in rare diseases: a narrative review

BACKGROUND: Rare diseases can lead to a significant reduction in quality of life for patients and their families. Ensuring the patients voice is central to clinical decision making is key to delivering, evaluating and understanding the efficacy of therapeutic interventions. Patient reported outcome...

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Detalles Bibliográficos
Autores principales:	Slade, Anita, Isa, Fatima, Kyte, Derek, Pankhurst, Tanya, Kerecuk, Larissa, Ferguson, James, Lipkin, Graham, Calvert, Melanie
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2018
Materias:	Review
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5914068/ https://www.ncbi.nlm.nih.gov/pubmed/29688860 http://dx.doi.org/10.1186/s13023-018-0810-x

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