Better governance, better access: practising responsible data sharing in the METADAC governance infrastructure

BACKGROUND: Genomic and biosocial research data about individuals is rapidly proliferating, bringing the potential for novel opportunities for data integration and use. The scale, pace and novelty of these applications raise a number of urgent sociotechnical, ethical and legal questions, including o...

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Detalles Bibliográficos
Autores principales: Murtagh, Madeleine J., Blell, Mwenza T., Butters, Olly W., Cowley, Lorraine, Dove, Edward S., Goodman, Alissa, Griggs, Rebecca L., Hall, Alison, Hallowell, Nina, Kumari, Meena, Mangino, Massimo, Maughan, Barbara, Mills, Melinda C., Minion, Joel T., Murphy, Tom, Prior, Gillian, Suderman, Matthew, Ring, Susan M., Rogers, Nina T., Roberts, Stephanie J., Van der Straeten, Catherine, Viney, Will, Wiltshire, Deborah, Wong, Andrew, Walker, Neil, Burton, Paul R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Primary Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5918902/
https://www.ncbi.nlm.nih.gov/pubmed/29695297
http://dx.doi.org/10.1186/s40246-018-0154-6

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5918902/
https://www.ncbi.nlm.nih.gov/pubmed/29695297
http://dx.doi.org/10.1186/s40246-018-0154-6

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