The who, what and why of research participants’ intentions to request a broad range of secondary findings in a diagnostic genomic sequencing study

PURPOSE: In a diagnostic exome sequencing study (NCGENES), we investigated adult patients’ intentions to request six categories of secondary findings (SFs) with low or no medical actionability and correlates of their intentions. METHODS: At enrollment, eligible participants (n=152) completed measure...

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Detalles Bibliográficos
Autores principales: Rini, Christine, Khan, Cynthia M., Moore, Elizabeth, Roche, Myra I., Evans, James P., Berg, Jonathan S., Powell, Bradford C., Corbie-Smith, Giselle, Foreman, Ann Katherine M., Griesemer, Ida, Lee, Kristy, O’Daniel, Julianne M., Henderson, Gail E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2017
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5920790/
https://www.ncbi.nlm.nih.gov/pubmed/29261173
http://dx.doi.org/10.1038/gim.2017.176

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