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Barnhöft: a hip specific 6-item questionnaire for children

BACKGROUND: Health-related quality of life instruments, both general and more disease specific, would ideally be included in the evaluation of outcome in paediatric orthopaedics. The aim of this study was to translate and culturally adapt an instrument measuring hip function and pain for Swedish chi...

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Detalles Bibliográficos
Autores principales: Herngren, Bengt, Stenmarker, Margaretha, Enskär, Karin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5934911/
https://www.ncbi.nlm.nih.gov/pubmed/29757303
http://dx.doi.org/10.1186/s41687-017-0024-3
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author Herngren, Bengt
Stenmarker, Margaretha
Enskär, Karin
author_facet Herngren, Bengt
Stenmarker, Margaretha
Enskär, Karin
author_sort Herngren, Bengt
collection PubMed
description BACKGROUND: Health-related quality of life instruments, both general and more disease specific, would ideally be included in the evaluation of outcome in paediatric orthopaedics. The aim of this study was to translate and culturally adapt an instrument measuring hip function and pain for Swedish children 8-15 years old with a hip disorder. METHODS: Translation of an established questionnaire for hip disorder in children, CHOHES, was performed and called Barnhöft. Retrospective and cognitive debriefing interviews were conducted with 15 healthy children to test for the comprehensibility of the instrument. Children with slipped capital femoral epiphysis (n = 25) and healthy children (n = 35) participated in further testing through test-retest and with the comparison of answers given in a general health-related quality of life test, EQ-5D-Y (www.euroqol.org). A multi-professional expert committee supervised the process and judged the content validity. RESULTS: The test-retest method with a weighted Cohen’s kappa showed a good stability of the instrument. The construct validity for the pain domain (1-item) in EQ-5D-Y compared to the pain domain in Barnhöft showed a Spearman’s correlation coefficient of 0.73. The degree of hip pain in Barnhöft was also compared with the item “doing usual activities” in EQ-5D-Y with a Spearman’s correlation coefficient of 0.67. CONCLUSION: Barnhöft could be used as a simple 6-item questionnaire to identify children with pain and/or functional limitations due to sequelae related to a hip disease in childhood.
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spelling pubmed-59349112018-05-09 Barnhöft: a hip specific 6-item questionnaire for children Herngren, Bengt Stenmarker, Margaretha Enskär, Karin J Patient Rep Outcomes Research BACKGROUND: Health-related quality of life instruments, both general and more disease specific, would ideally be included in the evaluation of outcome in paediatric orthopaedics. The aim of this study was to translate and culturally adapt an instrument measuring hip function and pain for Swedish children 8-15 years old with a hip disorder. METHODS: Translation of an established questionnaire for hip disorder in children, CHOHES, was performed and called Barnhöft. Retrospective and cognitive debriefing interviews were conducted with 15 healthy children to test for the comprehensibility of the instrument. Children with slipped capital femoral epiphysis (n = 25) and healthy children (n = 35) participated in further testing through test-retest and with the comparison of answers given in a general health-related quality of life test, EQ-5D-Y (www.euroqol.org). A multi-professional expert committee supervised the process and judged the content validity. RESULTS: The test-retest method with a weighted Cohen’s kappa showed a good stability of the instrument. The construct validity for the pain domain (1-item) in EQ-5D-Y compared to the pain domain in Barnhöft showed a Spearman’s correlation coefficient of 0.73. The degree of hip pain in Barnhöft was also compared with the item “doing usual activities” in EQ-5D-Y with a Spearman’s correlation coefficient of 0.67. CONCLUSION: Barnhöft could be used as a simple 6-item questionnaire to identify children with pain and/or functional limitations due to sequelae related to a hip disease in childhood. Springer International Publishing 2017-12-19 /pmc/articles/PMC5934911/ /pubmed/29757303 http://dx.doi.org/10.1186/s41687-017-0024-3 Text en © The Author(s) 2017 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Research
Herngren, Bengt
Stenmarker, Margaretha
Enskär, Karin
Barnhöft: a hip specific 6-item questionnaire for children
title Barnhöft: a hip specific 6-item questionnaire for children
title_full Barnhöft: a hip specific 6-item questionnaire for children
title_fullStr Barnhöft: a hip specific 6-item questionnaire for children
title_full_unstemmed Barnhöft: a hip specific 6-item questionnaire for children
title_short Barnhöft: a hip specific 6-item questionnaire for children
title_sort barnhöft: a hip specific 6-item questionnaire for children
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5934911/
https://www.ncbi.nlm.nih.gov/pubmed/29757303
http://dx.doi.org/10.1186/s41687-017-0024-3
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