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Worries and needs of adults and parents of adults with neurofibromatosis type 1

Neurofibromatosis type 1 (NF1) is a neurocutaneous disorder associated with lifelong tumor growth propensity and neurocognitive impairments. Although follow‐up of adults with NF1 often focuses on tumor growth, follow‐up of cognitive or social problems and other NF1‐related comorbidity is often not a...

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Detalles Bibliográficos
Autores principales:	Rietman, Andre B., van Helden, Hanneke, Both, Pauline H., Taal, Walter, Legerstee, Jeroen S., van Staa, AnneLoes, Moll, Henriette A., Oostenbrink, Rianne, van Eeghen, Agnies M.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley and Sons Inc. 2018
Materias:	Original Articles
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5947156/ https://www.ncbi.nlm.nih.gov/pubmed/29681082 http://dx.doi.org/10.1002/ajmg.a.38680

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