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The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment

BACKGROUND: The internet is increasingly being used to disseminate health information. Given the complexity of pediatric oncology clinical trials, we developed Delta, a Web-based decision aid to support families deciding whether or not to enroll their child with cancer in a clinical trial. OBJECTIVE...

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Autores principales: Robertson, Eden G, Wakefield, Claire E, Cohn, Richard J, O'Brien, Tracey, Ziegler, David S, Fardell, Joanna E
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5960036/
https://www.ncbi.nlm.nih.gov/pubmed/29728347
http://dx.doi.org/10.2196/resprot.9258
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author Robertson, Eden G
Wakefield, Claire E
Cohn, Richard J
O'Brien, Tracey
Ziegler, David S
Fardell, Joanna E
author_facet Robertson, Eden G
Wakefield, Claire E
Cohn, Richard J
O'Brien, Tracey
Ziegler, David S
Fardell, Joanna E
author_sort Robertson, Eden G
collection PubMed
description BACKGROUND: The internet is increasingly being used to disseminate health information. Given the complexity of pediatric oncology clinical trials, we developed Delta, a Web-based decision aid to support families deciding whether or not to enroll their child with cancer in a clinical trial. OBJECTIVE: This paper details the Agile development process of Delta and user testing results of Delta. METHODS: Development was iterative and involved 5 main stages: a requirements analysis, planning, design, development, and user testing. For user testing, we conducted 13 eye-tracking analyses and think-aloud interviews with health care professionals (n=6) and parents (n=7). RESULTS: Results suggested that there was minimal rereading of content and a high level of engagement in content. However, there were some navigational problems. Participants reported high acceptability (12/13) and high usability of the website (8/13). CONCLUSIONS: Delta demonstrates the utility for the use of Agile in the development of a Web-based decision aid for health purposes. Our study provides a clear step-by-step guide to develop a Web-based psychosocial tool within the health setting.
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spelling pubmed-59600362018-05-30 The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment Robertson, Eden G Wakefield, Claire E Cohn, Richard J O'Brien, Tracey Ziegler, David S Fardell, Joanna E JMIR Res Protoc Original Paper BACKGROUND: The internet is increasingly being used to disseminate health information. Given the complexity of pediatric oncology clinical trials, we developed Delta, a Web-based decision aid to support families deciding whether or not to enroll their child with cancer in a clinical trial. OBJECTIVE: This paper details the Agile development process of Delta and user testing results of Delta. METHODS: Development was iterative and involved 5 main stages: a requirements analysis, planning, design, development, and user testing. For user testing, we conducted 13 eye-tracking analyses and think-aloud interviews with health care professionals (n=6) and parents (n=7). RESULTS: Results suggested that there was minimal rereading of content and a high level of engagement in content. However, there were some navigational problems. Participants reported high acceptability (12/13) and high usability of the website (8/13). CONCLUSIONS: Delta demonstrates the utility for the use of Agile in the development of a Web-based decision aid for health purposes. Our study provides a clear step-by-step guide to develop a Web-based psychosocial tool within the health setting. JMIR Publications 2018-05-04 /pmc/articles/PMC5960036/ /pubmed/29728347 http://dx.doi.org/10.2196/resprot.9258 Text en ©Eden G Robertson, Claire E Wakefield, Richard J Cohn, Tracey O'Brien, David S Ziegler, Joanna E Fardell. Originally published in JMIR Research Protocols (http://www.researchprotocols.org), 04.05.2018. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Research Protocols, is properly cited. The complete bibliographic information, a link to the original publication on http://www.researchprotocols.org, as well as this copyright and license information must be included.
spellingShingle Original Paper
Robertson, Eden G
Wakefield, Claire E
Cohn, Richard J
O'Brien, Tracey
Ziegler, David S
Fardell, Joanna E
The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment
title The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment
title_full The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment
title_fullStr The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment
title_full_unstemmed The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment
title_short The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment
title_sort development of delta: using agile to develop a decision aid for pediatric oncology clinical trial enrollment
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5960036/
https://www.ncbi.nlm.nih.gov/pubmed/29728347
http://dx.doi.org/10.2196/resprot.9258
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