Cargando…

Diagnosis of a severe congenital anomaly: A qualitative analysis of parental decision making and the implications for healthcare encounters

OBJECTIVE: To explore parental decision making following diagnosis of a severe congenital anomaly, and implications for healthcare encounters. DESIGN: Qualitative semi‐structured interviews with 38 parents‐to‐be were collated and triangulated with data generated from consultation recordings. ANALYSI...

Descripción completa

Detalles Bibliográficos
Autores principales:	Lotto, Robyn, Smith, Lucy K., Armstrong, Natalie
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley and Sons Inc. 2018
Materias:	Original Research Papers
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5980539/ https://www.ncbi.nlm.nih.gov/pubmed/29392858 http://dx.doi.org/10.1111/hex.12664

Ejemplares similares

Clinicians’ perspectives of parental decision-making following diagnosis of a severe congenital anomaly: a qualitative study
por: Lotto, Robyn, et al.
Publicado: (2017)

Clinical Characteristics and Surgical Decision Making for Infants with Metopic Craniosynostosis in Conjunction with Other Congenital Anomalies
por: Birgfeld, Craig B., et al.
Publicado: (2013)

Shared decision‐making in tinnitus care – An exploration of clinical encounters
por: Pryce, Helen, et al.
Publicado: (2018)

Prevalence of Congenital Anomalies in an Indian Maternal Cohort: Healthcare, Prevention, and Surveillance Implications
por: Bhide, Prajkta, et al.
Publicado: (2016)

Prenatal diagnosis of congenital anomalies
por: Todros, T, et al.
Publicado: (2001)

COVID-19 and children with congenital anomalies: a European survey of parents’ experiences of healthcare services
por: Latos-Bieleńska, Anna, et al.
Publicado: (2022)

Parents of Children Diagnosed with Congenital Anomalies or Cerebral Palsy: Identifying Needs in Interaction with Healthcare Services
por: Santos, Ana João, et al.
Publicado: (2023)

Parents’ Psychological and Decision-Making Outcomes following Prenatal Diagnosis with Complex Congenital Heart Defect: An Exploratory Study
por: Thorpe, Alistair, et al.
Publicado: (2023)

Decision making preferences in the medical encounter – a factorial survey design
por: Müller-Engelmann, Meike, et al.
Publicado: (2008)

Assessment of Medical Students’ Shared Decision-Making in Standardized Patient Encounters
por: Hauer, Karen E., et al.
Publicado: (2010)

Bisalbuminemia: A Rarely Encountered Protein Anomaly
por: Chhabra, Seema, et al.
Publicado: (2013)

The qualitative experience of telehealth access and clinical encounters in Australian healthcare during COVID-19: implications for policy
por: White, Jennifer, et al.
Publicado: (2022)

Prevalence of congenital anomalies in newborns with congenital heart disease diagnosis
por: Egbe, Alexander, et al.
Publicado: (2014)

Adaptation and qualitative evaluation of encounter decision aids in breast cancer care
por: Hahlweg, Pola, et al.
Publicado: (2019)

Chinese immigrant parents’ vaccination decision making for children: a qualitative analysis
por: Wang, Linda DL, et al.
Publicado: (2014)

Parents’ Decision Making During Their Child’s Asthma Attack: Qualitative Systematic Review
por: Goddard, Bernadette M M, et al.
Publicado: (2022)

Healthcare decision-making capacity in old age: A qualitative study
por: Amaral, Ana Saraiva, et al.
Publicado: (2022)

Perception of the Saudi Population on Abortion Decisions in Congenital Fetal Anomalies
por: Alharbi, Rahaf H, et al.
Publicado: (2022)

Decision-making approaches in transgender healthcare: conceptual analysis and ethical implications
por: Gerritse, Karl, et al.
Publicado: (2021)

Physicians' perspectives on communication and decision making in clinical encounters for treatment of latent tuberculosis infection
por: Dobler, Claudia C., et al.
Publicado: (2018)

Parents' perspectives on user participation and shared decision‐making in adolescents' inpatient mental healthcare
por: Bjønness, Stig, et al.
Publicado: (2022)

Parental Decision Making in Male Circumcision
por: Sardi, Lauren, et al.
Publicado: (2015)

Parental Decision-Making on Childhood Vaccination
por: Damnjanović, Kaja, et al.
Publicado: (2018)

Parent-son decision-making about human papillomavirus vaccination: a qualitative analysis
por: Alexander, Andreia B, et al.
Publicado: (2012)

Parent perceptions and decision making about treatments for epilepsy: a qualitative evidence synthesis
por: Uhl, Stacey, et al.
Publicado: (2023)

Decision-making on terminating pregnancy for Muslim Arab women pregnant with fetuses with congenital anomalies: maternal affect and doctor-patient communication
por: Gesser-Edelsburg, Anat, et al.
Publicado: (2017)

Parental decision-making following a prenatal diagnosis that is lethal, life-limiting, or has long term implications for the future child and family: a meta-synthesis of qualitative literature
por: Blakeley, Claire, et al.
Publicado: (2019)

Silent loss and the clinical encounter: Parents’ and physicians’ experiences of stillbirth–a qualitative analysis
por: Kelley, Maureen C, et al.
Publicado: (2012)

The design and development of an encounter tool to support shared decision making about preventing cardiovascular events
por: Hartasanchez, Sandra A., et al.
Publicado: (2022)

Factors that influence family and parental preferences and decision making for unscheduled paediatric healthcare – systematic review
por: Nicholson, E., et al.
Publicado: (2020)

Understanding the Influences Behind Parents’ Asthma Decision-Making: A Qualitative Exploration of the Asthma Network of Parents with Children with Asthma
por: Srour-Alphonse, Pamela, et al.
Publicado: (2021)

The Voice of Parents of Children With a Congenital Anomaly – A EUROlinkCAT Study
por: Holm, Kristina Garne, et al.
Publicado: (2021)

Vigilance in the Decision-Making Process Regarding Termination of Pregnancy Following Prenatal Diagnosis of Congenital Heart Disease—Application of the ‘Conflict Decision-Making Model’
por: Gendler, Yulia, et al.
Publicado: (2022)

A qualitative systematic review of factors influencing parents’ vaccination decision-making in the United Kingdom
por: Forster, Alice S., et al.
Publicado: (2016)

Swedish parents' experiences of their role in treatment for children with congenital limb reduction deficiency: Decision‐making and treatment support
por: Sjöberg, Lis, et al.
Publicado: (2020)

Vascular Anomaly in the Fallopian Canal Encountered Unexpectedly During Cochlear Implantation
por: Chen, Itay, et al.
Publicado: (2021)

On the ethics of algorithmic decision-making in healthcare
por: Grote, Thomas, et al.
Publicado: (2020)

Representation in participatory healthcare decision‐making
por: Moore, Emma L., et al.
Publicado: (2022)

Living With My Baby With Congenital Anomaly: A Qualitative Case Report
por: Özer Özlü, Nazife Gamze, et al.
Publicado: (2022)

Decision-Making about the HPV Vaccine among Ethnically Diverse Parents: Implications for Health Communications
por: Allen, Jennifer D., et al.
Publicado: (2012)

Cannot write session to /tmp/vufind_sessions/sess_itgeb0uc9rm4896q0fdlilebqv