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Advocacy for children with epilepsy: Leveraging the WHA resolution. Advocacy Task Force, Commission of Pediatrics, International League Against Epilepsy

In May 2015 the World Health Assembly (WHA) approved the Resolution on the Global Burden of Epilepsy. This report addresses how the Resolution can be leveraged to improve the care of children with epilepsy worldwide. Children with epilepsy have unique needs and face unique challenges from stigma at...

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Autores principales: Wilmshurst, Jo M., Guekht, Alla, Secco, Mary, Helen Cross, J., Perucca, Emilio
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5983105/
https://www.ncbi.nlm.nih.gov/pubmed/29881796
http://dx.doi.org/10.1002/epi4.12220
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author Wilmshurst, Jo M.
Guekht, Alla
Secco, Mary
Helen Cross, J.
Perucca, Emilio
author_facet Wilmshurst, Jo M.
Guekht, Alla
Secco, Mary
Helen Cross, J.
Perucca, Emilio
author_sort Wilmshurst, Jo M.
collection PubMed
description In May 2015 the World Health Assembly (WHA) approved the Resolution on the Global Burden of Epilepsy. This report addresses how the Resolution can be leveraged to improve the care of children with epilepsy worldwide. Children with epilepsy have unique needs and face unique challenges from stigma at all levels of society. Children lack a voice to lobby for their own needs, including their right to have access to education. Effective leadership and governance should be enhanced through the support of stakeholders empowered to counsel, advise, and lobby for appropriate care. National health care plans should integrate primary and specialist care, and they need to be adapted to local specificities. Antiepileptic medicines should be widely accessible in appropriate, sustained, and affordable ways. Public awareness initiatives are needed to improve the inclusion of affected children in society and to reduce stigma. Cost‐effective interventions are also needed to address preventable causes of epilepsy. Without greater investment in research, evidence‐based interventions cannot be implemented. Through all of this, civil society must be engaged to ensure that the multivariate dimensions from the clinic to the community are addressed to fulfil the needs of children with epilepsy.
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spelling pubmed-59831052018-06-07 Advocacy for children with epilepsy: Leveraging the WHA resolution. Advocacy Task Force, Commission of Pediatrics, International League Against Epilepsy Wilmshurst, Jo M. Guekht, Alla Secco, Mary Helen Cross, J. Perucca, Emilio Epilepsia Open Critical Review and Invited Commentary In May 2015 the World Health Assembly (WHA) approved the Resolution on the Global Burden of Epilepsy. This report addresses how the Resolution can be leveraged to improve the care of children with epilepsy worldwide. Children with epilepsy have unique needs and face unique challenges from stigma at all levels of society. Children lack a voice to lobby for their own needs, including their right to have access to education. Effective leadership and governance should be enhanced through the support of stakeholders empowered to counsel, advise, and lobby for appropriate care. National health care plans should integrate primary and specialist care, and they need to be adapted to local specificities. Antiepileptic medicines should be widely accessible in appropriate, sustained, and affordable ways. Public awareness initiatives are needed to improve the inclusion of affected children in society and to reduce stigma. Cost‐effective interventions are also needed to address preventable causes of epilepsy. Without greater investment in research, evidence‐based interventions cannot be implemented. Through all of this, civil society must be engaged to ensure that the multivariate dimensions from the clinic to the community are addressed to fulfil the needs of children with epilepsy. John Wiley and Sons Inc. 2018-05-14 /pmc/articles/PMC5983105/ /pubmed/29881796 http://dx.doi.org/10.1002/epi4.12220 Text en © 2018 The Authors. Epilepsia Open published by Wiley Periodicals Inc. on behalf of International League Against Epilepsy. This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Critical Review and Invited Commentary
Wilmshurst, Jo M.
Guekht, Alla
Secco, Mary
Helen Cross, J.
Perucca, Emilio
Advocacy for children with epilepsy: Leveraging the WHA resolution. Advocacy Task Force, Commission of Pediatrics, International League Against Epilepsy
title Advocacy for children with epilepsy: Leveraging the WHA resolution. Advocacy Task Force, Commission of Pediatrics, International League Against Epilepsy
title_full Advocacy for children with epilepsy: Leveraging the WHA resolution. Advocacy Task Force, Commission of Pediatrics, International League Against Epilepsy
title_fullStr Advocacy for children with epilepsy: Leveraging the WHA resolution. Advocacy Task Force, Commission of Pediatrics, International League Against Epilepsy
title_full_unstemmed Advocacy for children with epilepsy: Leveraging the WHA resolution. Advocacy Task Force, Commission of Pediatrics, International League Against Epilepsy
title_short Advocacy for children with epilepsy: Leveraging the WHA resolution. Advocacy Task Force, Commission of Pediatrics, International League Against Epilepsy
title_sort advocacy for children with epilepsy: leveraging the wha resolution. advocacy task force, commission of pediatrics, international league against epilepsy
topic Critical Review and Invited Commentary
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5983105/
https://www.ncbi.nlm.nih.gov/pubmed/29881796
http://dx.doi.org/10.1002/epi4.12220
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