Cargando…
Towards a national genomics medicine service: the challenges facing clinical-research hybrid practices and the case of the 100 000 genomes project
Clinical practice and research are governed by distinct rules and regulations and have different approaches to, for example, consent and providing results. However, genomics is an example of where research and clinical practice have become codependent. The 100 000 genomes project (100kGP) is a hybri...
Autores principales: | Dheensa, Sandi, Samuel, Gabrielle, Lucassen, Anneke M, Farsides, Bobbie |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2018
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5992369/ https://www.ncbi.nlm.nih.gov/pubmed/29496751 http://dx.doi.org/10.1136/medethics-2017-104588 |
Ejemplares similares
-
The UK’s 100,000 Genomes Project: manifesting policymakers’ expectations
por: Samuel, Gabrielle Natalie, et al.
Publicado: (2017) -
Healthcare professionals’ and patients’ perspectives on consent to clinical genetic testing: moving towards a more relational approach
por: Samuel, Gabrielle Natalie, et al.
Publicado: (2017) -
Public trust and ‘ethics review’ as a commodity: the case of Genomics England Limited and the UK’s 100,000 genomes project
por: Samuel, Gabrielle Natalie, et al.
Publicado: (2017) -
Genomics England’s implementation of its public engagement strategy: Blurred boundaries between engagement for the United Kingdom’s 100,000 Genomes project and the need for public support
por: Samuel, Gabrielle Natalie, et al.
Publicado: (2017) -
Consenting futures: professional views on social, clinical and ethical aspects of information feedback to embryo donors in human embryonic stem cell research
por: Ehrich, Kathryn, et al.
Publicado: (2010)