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Adapting medical guidelines to be patient-centered using a patient-driven process for individuals with sickle cell disease and their caregivers

BACKGROUND: Evidence-based guidelines for sickle cell disease (SCD) health maintenance and management have been developed for primary health care providers, but not for individuals with SCD. To improve the quality of care delivered to individuals with SCD and their caregivers, the main purposes of t...

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Detalles Bibliográficos
Autores principales:	Cronin, Robert Michael, Mayo-Gamble, Tilicia L., Stimpson, Sarah-Jo, Badawy, Sherif M., Crosby, Lori E., Byrd, Jeannie, Volanakis, Emmanuel J., Kassim, Adetola A., Raphael, Jean L., Murry, Velma M., DeBaun, Michael R.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2018
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5994026/ https://www.ncbi.nlm.nih.gov/pubmed/29977566 http://dx.doi.org/10.1186/s12878-018-0106-3

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