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Burden of heart failure on caregivers in China: results from a cross-sectional survey

PURPOSE: Family and friends play a pivotal role in caring for patients with heart failure (HF); however, evidence of the impact of caregiving is limited. The objectives of this study were to describe the burden of caregiving on informal caregivers of patients with chronic HF in China. MATERIALS AND...

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Autores principales: Jackson, James DS, Cotton, Sarah E, Bruce Wirta, Sara, Proenca, Catia C, Zhang, Milun, Lahoz, Raquel, Calado, Frederico J
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Dove Medical Press 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5996855/
https://www.ncbi.nlm.nih.gov/pubmed/29922041
http://dx.doi.org/10.2147/DDDT.S148970
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author Jackson, James DS
Cotton, Sarah E
Bruce Wirta, Sara
Proenca, Catia C
Zhang, Milun
Lahoz, Raquel
Calado, Frederico J
author_facet Jackson, James DS
Cotton, Sarah E
Bruce Wirta, Sara
Proenca, Catia C
Zhang, Milun
Lahoz, Raquel
Calado, Frederico J
author_sort Jackson, James DS
collection PubMed
description PURPOSE: Family and friends play a pivotal role in caring for patients with heart failure (HF); however, evidence of the impact of caregiving is limited. The objectives of this study were to describe the burden of caregiving on informal caregivers of patients with chronic HF in China. MATERIALS AND METHODS: A cross-sectional survey of cardiologists, their patients with HF, and those patients’ caregivers was conducted. Patient record forms were completed by 150 cardiologists for 10 consecutive patients. Caregivers of these patients were invited to complete a questionnaire. RESULTS: Overall, 458 caregivers completed a questionnaire (mean ± standard deviation age 60.1±10.6 years; 60% female; 77% spouses; 74% retired). Caregivers spent a mean of 24.5 (16.9) hours caregiving per week, and a third reported a reduction in their social activity, time for themselves, or time for family. Caregivers in employment took several days off work in the past 3 months owing to caregiving, sometimes resulting in reduced income. Up to 79% of caregivers reported an impact on their physical or emotional well-being, and 57% reported deterioration in their objective health status. Inconsistencies stemming from differences in the three-level five-dimension EuroQol questionnaire and HF Caregiver Questionnaire were observed for the impact of caregiving on caregivers’ health-related quality of life. CONCLUSION: Assisting patients with HF is associated with caregiver burden. Addressing the needs of caregivers may help to promote their continued support and improve patient outcomes.
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spelling pubmed-59968552018-06-19 Burden of heart failure on caregivers in China: results from a cross-sectional survey Jackson, James DS Cotton, Sarah E Bruce Wirta, Sara Proenca, Catia C Zhang, Milun Lahoz, Raquel Calado, Frederico J Drug Des Devel Ther Original Research PURPOSE: Family and friends play a pivotal role in caring for patients with heart failure (HF); however, evidence of the impact of caregiving is limited. The objectives of this study were to describe the burden of caregiving on informal caregivers of patients with chronic HF in China. MATERIALS AND METHODS: A cross-sectional survey of cardiologists, their patients with HF, and those patients’ caregivers was conducted. Patient record forms were completed by 150 cardiologists for 10 consecutive patients. Caregivers of these patients were invited to complete a questionnaire. RESULTS: Overall, 458 caregivers completed a questionnaire (mean ± standard deviation age 60.1±10.6 years; 60% female; 77% spouses; 74% retired). Caregivers spent a mean of 24.5 (16.9) hours caregiving per week, and a third reported a reduction in their social activity, time for themselves, or time for family. Caregivers in employment took several days off work in the past 3 months owing to caregiving, sometimes resulting in reduced income. Up to 79% of caregivers reported an impact on their physical or emotional well-being, and 57% reported deterioration in their objective health status. Inconsistencies stemming from differences in the three-level five-dimension EuroQol questionnaire and HF Caregiver Questionnaire were observed for the impact of caregiving on caregivers’ health-related quality of life. CONCLUSION: Assisting patients with HF is associated with caregiver burden. Addressing the needs of caregivers may help to promote their continued support and improve patient outcomes. Dove Medical Press 2018-06-08 /pmc/articles/PMC5996855/ /pubmed/29922041 http://dx.doi.org/10.2147/DDDT.S148970 Text en © 2018 Jackson et al. This work is published and licensed by Dove Medical Press Limited The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution – Non Commercial (unported, v3.0) License (http://creativecommons.org/licenses/by-nc/3.0/). By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed.
spellingShingle Original Research
Jackson, James DS
Cotton, Sarah E
Bruce Wirta, Sara
Proenca, Catia C
Zhang, Milun
Lahoz, Raquel
Calado, Frederico J
Burden of heart failure on caregivers in China: results from a cross-sectional survey
title Burden of heart failure on caregivers in China: results from a cross-sectional survey
title_full Burden of heart failure on caregivers in China: results from a cross-sectional survey
title_fullStr Burden of heart failure on caregivers in China: results from a cross-sectional survey
title_full_unstemmed Burden of heart failure on caregivers in China: results from a cross-sectional survey
title_short Burden of heart failure on caregivers in China: results from a cross-sectional survey
title_sort burden of heart failure on caregivers in china: results from a cross-sectional survey
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5996855/
https://www.ncbi.nlm.nih.gov/pubmed/29922041
http://dx.doi.org/10.2147/DDDT.S148970
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