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Burden of heart failure on caregivers in China: results from a cross-sectional survey
PURPOSE: Family and friends play a pivotal role in caring for patients with heart failure (HF); however, evidence of the impact of caregiving is limited. The objectives of this study were to describe the burden of caregiving on informal caregivers of patients with chronic HF in China. MATERIALS AND...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Dove Medical Press
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5996855/ https://www.ncbi.nlm.nih.gov/pubmed/29922041 http://dx.doi.org/10.2147/DDDT.S148970 |
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author | Jackson, James DS Cotton, Sarah E Bruce Wirta, Sara Proenca, Catia C Zhang, Milun Lahoz, Raquel Calado, Frederico J |
author_facet | Jackson, James DS Cotton, Sarah E Bruce Wirta, Sara Proenca, Catia C Zhang, Milun Lahoz, Raquel Calado, Frederico J |
author_sort | Jackson, James DS |
collection | PubMed |
description | PURPOSE: Family and friends play a pivotal role in caring for patients with heart failure (HF); however, evidence of the impact of caregiving is limited. The objectives of this study were to describe the burden of caregiving on informal caregivers of patients with chronic HF in China. MATERIALS AND METHODS: A cross-sectional survey of cardiologists, their patients with HF, and those patients’ caregivers was conducted. Patient record forms were completed by 150 cardiologists for 10 consecutive patients. Caregivers of these patients were invited to complete a questionnaire. RESULTS: Overall, 458 caregivers completed a questionnaire (mean ± standard deviation age 60.1±10.6 years; 60% female; 77% spouses; 74% retired). Caregivers spent a mean of 24.5 (16.9) hours caregiving per week, and a third reported a reduction in their social activity, time for themselves, or time for family. Caregivers in employment took several days off work in the past 3 months owing to caregiving, sometimes resulting in reduced income. Up to 79% of caregivers reported an impact on their physical or emotional well-being, and 57% reported deterioration in their objective health status. Inconsistencies stemming from differences in the three-level five-dimension EuroQol questionnaire and HF Caregiver Questionnaire were observed for the impact of caregiving on caregivers’ health-related quality of life. CONCLUSION: Assisting patients with HF is associated with caregiver burden. Addressing the needs of caregivers may help to promote their continued support and improve patient outcomes. |
format | Online Article Text |
id | pubmed-5996855 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | Dove Medical Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-59968552018-06-19 Burden of heart failure on caregivers in China: results from a cross-sectional survey Jackson, James DS Cotton, Sarah E Bruce Wirta, Sara Proenca, Catia C Zhang, Milun Lahoz, Raquel Calado, Frederico J Drug Des Devel Ther Original Research PURPOSE: Family and friends play a pivotal role in caring for patients with heart failure (HF); however, evidence of the impact of caregiving is limited. The objectives of this study were to describe the burden of caregiving on informal caregivers of patients with chronic HF in China. MATERIALS AND METHODS: A cross-sectional survey of cardiologists, their patients with HF, and those patients’ caregivers was conducted. Patient record forms were completed by 150 cardiologists for 10 consecutive patients. Caregivers of these patients were invited to complete a questionnaire. RESULTS: Overall, 458 caregivers completed a questionnaire (mean ± standard deviation age 60.1±10.6 years; 60% female; 77% spouses; 74% retired). Caregivers spent a mean of 24.5 (16.9) hours caregiving per week, and a third reported a reduction in their social activity, time for themselves, or time for family. Caregivers in employment took several days off work in the past 3 months owing to caregiving, sometimes resulting in reduced income. Up to 79% of caregivers reported an impact on their physical or emotional well-being, and 57% reported deterioration in their objective health status. Inconsistencies stemming from differences in the three-level five-dimension EuroQol questionnaire and HF Caregiver Questionnaire were observed for the impact of caregiving on caregivers’ health-related quality of life. CONCLUSION: Assisting patients with HF is associated with caregiver burden. Addressing the needs of caregivers may help to promote their continued support and improve patient outcomes. Dove Medical Press 2018-06-08 /pmc/articles/PMC5996855/ /pubmed/29922041 http://dx.doi.org/10.2147/DDDT.S148970 Text en © 2018 Jackson et al. This work is published and licensed by Dove Medical Press Limited The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution – Non Commercial (unported, v3.0) License (http://creativecommons.org/licenses/by-nc/3.0/). By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed. |
spellingShingle | Original Research Jackson, James DS Cotton, Sarah E Bruce Wirta, Sara Proenca, Catia C Zhang, Milun Lahoz, Raquel Calado, Frederico J Burden of heart failure on caregivers in China: results from a cross-sectional survey |
title | Burden of heart failure on caregivers in China: results from a cross-sectional survey |
title_full | Burden of heart failure on caregivers in China: results from a cross-sectional survey |
title_fullStr | Burden of heart failure on caregivers in China: results from a cross-sectional survey |
title_full_unstemmed | Burden of heart failure on caregivers in China: results from a cross-sectional survey |
title_short | Burden of heart failure on caregivers in China: results from a cross-sectional survey |
title_sort | burden of heart failure on caregivers in china: results from a cross-sectional survey |
topic | Original Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5996855/ https://www.ncbi.nlm.nih.gov/pubmed/29922041 http://dx.doi.org/10.2147/DDDT.S148970 |
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