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Emerging models for facilitating contact between people genetically related through donor conception: a preliminary analysis and discussion

Previous research indicates interest among some donor-conceived people, donors and recipient parents in having contact. Outcomes of such contact appear largely, but not universally, positive. This paper seeks to understand better the characteristics of associated support services. Information gather...

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Autores principales: Crawshaw, Marilyn, Daniels, Ken, Adams, Damian, Bourne, Kate, van Hooff, J.A.P., Kramer, Wendy, Pasch, Lauri, Thorn, Petra
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6001351/
https://www.ncbi.nlm.nih.gov/pubmed/29911188
http://dx.doi.org/10.1016/j.rbms.2015.10.001
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author Crawshaw, Marilyn
Daniels, Ken
Adams, Damian
Bourne, Kate
van Hooff, J.A.P.
Kramer, Wendy
Pasch, Lauri
Thorn, Petra
author_facet Crawshaw, Marilyn
Daniels, Ken
Adams, Damian
Bourne, Kate
van Hooff, J.A.P.
Kramer, Wendy
Pasch, Lauri
Thorn, Petra
author_sort Crawshaw, Marilyn
collection PubMed
description Previous research indicates interest among some donor-conceived people, donors and recipient parents in having contact. Outcomes of such contact appear largely, but not universally, positive. This paper seeks to understand better the characteristics of associated support services. Information gathered using the authors' direct experiences and professional and personal networks in different parts of the world indicates the emergence of four main groupings: (i) publically funded services outside of treatment centers; (ii) services provided by fertility treatment or gamete bank services; (iii) services provided privately by independent psychosocial or legal practitioners; and (4) services organized by offspring and/or recipient parents. Key operational features examined were: (i) who can access such services and when; (ii) what professional standards and funding are in place to provide them; and (iii) how ‘matching’ and contact processes are managed. Differences appear influenced variously by the needs of those directly affected, local policies, national legislation and the interests of the fertility services which recruit gamete donors and/or deliver donor conception treatments. The paper is intended to inform fuller debate about how best to meet the needs of those seeking information and contact, the implications for the way that fertility treatment and gametes donation services are currently provided and future research needs.
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spelling pubmed-60013512018-06-15 Emerging models for facilitating contact between people genetically related through donor conception: a preliminary analysis and discussion Crawshaw, Marilyn Daniels, Ken Adams, Damian Bourne, Kate van Hooff, J.A.P. Kramer, Wendy Pasch, Lauri Thorn, Petra Reprod Biomed Soc Online Sociology and Social Policy Previous research indicates interest among some donor-conceived people, donors and recipient parents in having contact. Outcomes of such contact appear largely, but not universally, positive. This paper seeks to understand better the characteristics of associated support services. Information gathered using the authors' direct experiences and professional and personal networks in different parts of the world indicates the emergence of four main groupings: (i) publically funded services outside of treatment centers; (ii) services provided by fertility treatment or gamete bank services; (iii) services provided privately by independent psychosocial or legal practitioners; and (4) services organized by offspring and/or recipient parents. Key operational features examined were: (i) who can access such services and when; (ii) what professional standards and funding are in place to provide them; and (iii) how ‘matching’ and contact processes are managed. Differences appear influenced variously by the needs of those directly affected, local policies, national legislation and the interests of the fertility services which recruit gamete donors and/or deliver donor conception treatments. The paper is intended to inform fuller debate about how best to meet the needs of those seeking information and contact, the implications for the way that fertility treatment and gametes donation services are currently provided and future research needs. Elsevier 2015-11-10 /pmc/articles/PMC6001351/ /pubmed/29911188 http://dx.doi.org/10.1016/j.rbms.2015.10.001 Text en © 2016 The Authors http://creativecommons.org/licenses/by-nc-nd/4.0/ This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
spellingShingle Sociology and Social Policy
Crawshaw, Marilyn
Daniels, Ken
Adams, Damian
Bourne, Kate
van Hooff, J.A.P.
Kramer, Wendy
Pasch, Lauri
Thorn, Petra
Emerging models for facilitating contact between people genetically related through donor conception: a preliminary analysis and discussion
title Emerging models for facilitating contact between people genetically related through donor conception: a preliminary analysis and discussion
title_full Emerging models for facilitating contact between people genetically related through donor conception: a preliminary analysis and discussion
title_fullStr Emerging models for facilitating contact between people genetically related through donor conception: a preliminary analysis and discussion
title_full_unstemmed Emerging models for facilitating contact between people genetically related through donor conception: a preliminary analysis and discussion
title_short Emerging models for facilitating contact between people genetically related through donor conception: a preliminary analysis and discussion
title_sort emerging models for facilitating contact between people genetically related through donor conception: a preliminary analysis and discussion
topic Sociology and Social Policy
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6001351/
https://www.ncbi.nlm.nih.gov/pubmed/29911188
http://dx.doi.org/10.1016/j.rbms.2015.10.001
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