Huntington’s Disease Outpatient Clinic for Functional Diagnosis and Treatment: Coming to Consensus: How Long Term Care Facility Procedures Complement Specialist Diagnosis and Treatment

Huntington’s disease (HD) patients and families deserve expert treatment and care throughout their lives, but uniformity in functional diagnosis and treatment was lacking. In the aim of reaching this uniformity on day-to-day treatment and care offered by multidisciplinary outreach teams from Dutch l...

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Autores principales: Veenhuizen, Ruth, Nijsten, Hanneke, van Roosmalen, Paul, Lammertsen, Karen, Stor, Tom, de Jager, Lia, de Man, Jesseke, van der Doelen, Rina, Landa, Karin, Grond, Vera, Heffels, Joyce, Groenewoud, Rinske, Rovers, Luce, Bakker, Christian, Leiwakabessy, Saskia, van der Wedden, Dirk, van Blitterswijk, Jacqueline, van den Bosch, Dieuwke
Formato: Online Artículo Texto
Lenguaje:English
Publicado: IOS Press 2018
Materias:
Commentary
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6004894/
https://www.ncbi.nlm.nih.gov/pubmed/29843250
http://dx.doi.org/10.3233/JHD-180298
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author Veenhuizen, Ruth
Nijsten, Hanneke
van Roosmalen, Paul
Lammertsen, Karen
Stor, Tom
de Jager, Lia
de Man, Jesseke
van der Doelen, Rina
Landa, Karin
Grond, Vera
Heffels, Joyce
Groenewoud, Rinske
Rovers, Luce
Bakker, Christian
Leiwakabessy, Saskia
van der Wedden, Dirk
van Blitterswijk, Jacqueline
van den Bosch, Dieuwke
author_facet Veenhuizen, Ruth
Nijsten, Hanneke
van Roosmalen, Paul
Lammertsen, Karen
Stor, Tom
de Jager, Lia
de Man, Jesseke
van der Doelen, Rina
Landa, Karin
Grond, Vera
Heffels, Joyce
Groenewoud, Rinske
Rovers, Luce
Bakker, Christian
Leiwakabessy, Saskia
van der Wedden, Dirk
van Blitterswijk, Jacqueline
van den Bosch, Dieuwke
author_sort Veenhuizen, Ruth
collection PubMed
description Huntington’s disease (HD) patients and families deserve expert treatment and care throughout their lives, but uniformity in functional diagnosis and treatment was lacking. In the aim of reaching this uniformity on day-to-day treatment and care offered by multidisciplinary outreach teams from Dutch long term care facilities for ambulatory HD patients, a consensus trajectory was started to harmonise our care programme with international standards and within the country. The consensus statements, given as supplementary material, should lead to expert treatment and care for HD families throughout the Netherlands and this manuscript should contribute and revitalise a global discussion on standards of treatment and care.
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spelling pubmed-60048942018-06-25 Huntington’s Disease Outpatient Clinic for Functional Diagnosis and Treatment: Coming to Consensus: How Long Term Care Facility Procedures Complement Specialist Diagnosis and Treatment Veenhuizen, Ruth Nijsten, Hanneke van Roosmalen, Paul Lammertsen, Karen Stor, Tom de Jager, Lia de Man, Jesseke van der Doelen, Rina Landa, Karin Grond, Vera Heffels, Joyce Groenewoud, Rinske Rovers, Luce Bakker, Christian Leiwakabessy, Saskia van der Wedden, Dirk van Blitterswijk, Jacqueline van den Bosch, Dieuwke J Huntingtons Dis Commentary Huntington’s disease (HD) patients and families deserve expert treatment and care throughout their lives, but uniformity in functional diagnosis and treatment was lacking. In the aim of reaching this uniformity on day-to-day treatment and care offered by multidisciplinary outreach teams from Dutch long term care facilities for ambulatory HD patients, a consensus trajectory was started to harmonise our care programme with international standards and within the country. The consensus statements, given as supplementary material, should lead to expert treatment and care for HD families throughout the Netherlands and this manuscript should contribute and revitalise a global discussion on standards of treatment and care. IOS Press 2018-06-01 /pmc/articles/PMC6004894/ /pubmed/29843250 http://dx.doi.org/10.3233/JHD-180298 Text en © 2018 – IOS Press and the authors. All rights reserved https://creativecommons.org/licenses/by-nc/4.0/ This is an open access article distributed under the terms of the Creative Commons Attribution Non-Commercial (CC BY-NC 4.0) License (https://creativecommons.org/licenses/by-nc/4.0/) , which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Commentary
Veenhuizen, Ruth
Nijsten, Hanneke
van Roosmalen, Paul
Lammertsen, Karen
Stor, Tom
de Jager, Lia
de Man, Jesseke
van der Doelen, Rina
Landa, Karin
Grond, Vera
Heffels, Joyce
Groenewoud, Rinske
Rovers, Luce
Bakker, Christian
Leiwakabessy, Saskia
van der Wedden, Dirk
van Blitterswijk, Jacqueline
van den Bosch, Dieuwke
Huntington’s Disease Outpatient Clinic for Functional Diagnosis and Treatment: Coming to Consensus: How Long Term Care Facility Procedures Complement Specialist Diagnosis and Treatment
title Huntington’s Disease Outpatient Clinic for Functional Diagnosis and Treatment: Coming to Consensus: How Long Term Care Facility Procedures Complement Specialist Diagnosis and Treatment
title_full Huntington’s Disease Outpatient Clinic for Functional Diagnosis and Treatment: Coming to Consensus: How Long Term Care Facility Procedures Complement Specialist Diagnosis and Treatment
title_fullStr Huntington’s Disease Outpatient Clinic for Functional Diagnosis and Treatment: Coming to Consensus: How Long Term Care Facility Procedures Complement Specialist Diagnosis and Treatment
title_full_unstemmed Huntington’s Disease Outpatient Clinic for Functional Diagnosis and Treatment: Coming to Consensus: How Long Term Care Facility Procedures Complement Specialist Diagnosis and Treatment
title_short Huntington’s Disease Outpatient Clinic for Functional Diagnosis and Treatment: Coming to Consensus: How Long Term Care Facility Procedures Complement Specialist Diagnosis and Treatment
title_sort huntington’s disease outpatient clinic for functional diagnosis and treatment: coming to consensus: how long term care facility procedures complement specialist diagnosis and treatment
topic Commentary
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6004894/
https://www.ncbi.nlm.nih.gov/pubmed/29843250
http://dx.doi.org/10.3233/JHD-180298
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