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Position Statement: Sharing of Clinical Research Data in Spinal Muscular Atrophy to Accelerate Research and Improve Outcomes for Patients
| Autores principales: | , , , , , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
IOS Press
2018
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6004907/ https://www.ncbi.nlm.nih.gov/pubmed/29865093 http://dx.doi.org/10.3233/JND-180325 |
| _version_ | 1783332606288330752 |
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| author | Lochmüller, Hanns Evans, David Farwell, Wildon Finkel, Richard Goemans, Nathalie de Lemus, Mencia Matyushenko, Vitaliy Muntoni, Francesco Ouillade, Marie-Christine Schwersenz, Inge Wilson, Petra |
| author_facet | Lochmüller, Hanns Evans, David Farwell, Wildon Finkel, Richard Goemans, Nathalie de Lemus, Mencia Matyushenko, Vitaliy Muntoni, Francesco Ouillade, Marie-Christine Schwersenz, Inge Wilson, Petra |
| author_sort | Lochmüller, Hanns |
| collection | PubMed |
| description | |
| format | Online Article Text |
| id | pubmed-6004907 |
| institution | National Center for Biotechnology Information |
| language | English |
| publishDate | 2018 |
| publisher | IOS Press |
| record_format | MEDLINE/PubMed |
| spelling | pubmed-60049072018-06-25 Position Statement: Sharing of Clinical Research Data in Spinal Muscular Atrophy to Accelerate Research and Improve Outcomes for Patients Lochmüller, Hanns Evans, David Farwell, Wildon Finkel, Richard Goemans, Nathalie de Lemus, Mencia Matyushenko, Vitaliy Muntoni, Francesco Ouillade, Marie-Christine Schwersenz, Inge Wilson, Petra J Neuromuscul Dis Commentary IOS Press 2018-05-29 /pmc/articles/PMC6004907/ /pubmed/29865093 http://dx.doi.org/10.3233/JND-180325 Text en © 2018 – IOS Press and the authors. All rights reserved https://creativecommons.org/licenses/by-nc/4.0/ This is an open access article distributed under the terms of the Creative Commons Attribution Non-Commercial (CC BY-NC 4.0) License (https://creativecommons.org/licenses/by-nc/4.0/) , which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited. |
| spellingShingle | Commentary Lochmüller, Hanns Evans, David Farwell, Wildon Finkel, Richard Goemans, Nathalie de Lemus, Mencia Matyushenko, Vitaliy Muntoni, Francesco Ouillade, Marie-Christine Schwersenz, Inge Wilson, Petra Position Statement: Sharing of Clinical Research Data in Spinal Muscular Atrophy to Accelerate Research and Improve Outcomes for Patients |
| title | Position Statement: Sharing of Clinical Research Data in Spinal Muscular Atrophy to Accelerate Research and Improve Outcomes for Patients |
| title_full | Position Statement: Sharing of Clinical Research Data in Spinal Muscular Atrophy to Accelerate Research and Improve Outcomes for Patients |
| title_fullStr | Position Statement: Sharing of Clinical Research Data in Spinal Muscular Atrophy to Accelerate Research and Improve Outcomes for Patients |
| title_full_unstemmed | Position Statement: Sharing of Clinical Research Data in Spinal Muscular Atrophy to Accelerate Research and Improve Outcomes for Patients |
| title_short | Position Statement: Sharing of Clinical Research Data in Spinal Muscular Atrophy to Accelerate Research and Improve Outcomes for Patients |
| title_sort | position statement: sharing of clinical research data in spinal muscular atrophy to accelerate research and improve outcomes for patients |
| topic | Commentary |
| url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6004907/ https://www.ncbi.nlm.nih.gov/pubmed/29865093 http://dx.doi.org/10.3233/JND-180325 |
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