Cargando…

Development and Validation of a Genomic Knowledge Scale to Advance Informed Decision-Making Research in Genomic Sequencing

Background: This study evaluated the psychometric properties of a new, comprehensive measure of knowledge about genomic sequencing, the University of North Carolina Genomic Knowledge Scale (UNC-GKS). Methods: The UNC-GKS assesses knowledge in four domains thought to be critical for informed decision...

Descripción completa

Detalles Bibliográficos
Autores principales:	Langer, Michelle M., Roche, Myra I., Brewer, Noel T., Berg, Jonathan S., Khan, Cynthia M., Leos, Cristina, Moore, Elizabeth, Brown, Michelle, Rini, Christine
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	SAGE Publications 2017
Materias:	Original Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6005662/ https://www.ncbi.nlm.nih.gov/pubmed/29928697 http://dx.doi.org/10.1177/2381468317692582

Ejemplares similares

Genomic Knowledge in the Context of Diagnostic Exome Sequencing: Changes over Time, Persistent Subgroup Differences, and Associations with Psychological Sequencing Outcomes
por: Rini, Christine, et al.
Publicado: (2019)

Incidental Findings with Genomic Testing: Implications for Genetic Counseling Practice
por: Roche, Myra I., et al.
Publicado: (2015)

Parental preferences toward genomic sequencing for non-medically actionable conditions in children: a discrete choice experiment
por: Lewis, Megan A., et al.
Publicado: (2017)

Informed Decision-making for Health Insurance Enrollment: Survey Study
por: Colón-Morales, Coralys M, et al.
Publicado: (2021)

It’s complicated: criteria for policy decisions for the clinical integration of genome-scale sequencing for reproductive decision making
por: Wilfond, Benjamin S, et al.
Publicado: (2015)

The who, what and why of research participants’ intentions to request a broad range of secondary findings in a diagnostic genomic sequencing study
por: Rini, Christine, et al.
Publicado: (2017)

Knowledge management tools and mechanisms for evidence-informed decision-making in the WHO European Region: a scoping review
por: El-Jardali, Fadi, et al.
Publicado: (2023)

A framework for genomic biomarker actionability and its use in clinical decision making
por: Vidwans, Smruti J., et al.
Publicado: (2014)

The Liberation Procedure Decision-Making Experience for People With Multiple Sclerosis
por: Murray, Cynthia L., et al.
Publicado: (2014)

An Alternative Theoretical Approach to Escape Decision-Making: The Role of Visual Cues
por: Javůrková, Veronika, et al.
Publicado: (2012)

Decision-making and the information system
por: Salles, Maryse
Publicado: (2015)

Personalized oncogenomic analysis of metastatic adenoid cystic carcinoma: using whole-genome sequencing to inform clinical decision-making
por: Chahal, Manik, et al.
Publicado: (2018)

Reproductive decision-making in the context of hereditary cancer: the effects of an online decision aid on informed decision-making
por: Reumkens, Kelly, et al.
Publicado: (2020)

Information quality in information fusion and decision making
por: Bossé, Éloi, et al.
Publicado: (2019)

How can knowledge exchange portals assist in knowledge management for evidence-informed decision making in public health?
por: Quinn, Emma, et al.
Publicado: (2014)

‘I have to live with the decisions I make’: laying a foundation for decision making for children with life-limiting conditions and life-threatening illnesses
por: Bluebond-Langner, Myra, et al.
Publicado: (2017)

Informing Evidence-Based Decision-Making for Patients with Comorbidity: Availability of Necessary Information in Clinical Trials for Chronic Diseases
por: Boyd, Cynthia M., et al.
Publicado: (2012)

Informed decision-making among students analyzing their personal genomes on a whole genome sequencing course: a longitudinal cohort study
por: Sanderson, Saskia C, et al.
Publicado: (2013)

Knowledge, attitudes and decision regret: a longitudinal survey study of participants offered genome sequencing in the 100,000 Genomes Project
por: Peter, Michelle, et al.
Publicado: (2023)

Developing informed intuition for decision-making
por: Liebowitz, Jay
Publicado: (2019)

Knowledge Translation Strategies for Enhancing Nurses’ Evidence-Informed Decision Making: A Scoping Review
por: Yost, Jennifer, et al.
Publicado: (2014)

Evaluating parents’ decisions about next-generation sequencing for their child in the NC NEXUS (North Carolina Newborn Exome Sequencing for Universal Screening) study: a randomized controlled trial protocol
por: Milko, Laura V., et al.
Publicado: (2018)

SIDEKICK: Genomic data driven analysis and decision-making framework
por: Doderer, Mark S, et al.
Publicado: (2010)

The Dilution Effect and Information Integration in Perceptual Decision Making
por: Hotaling, Jared M., et al.
Publicado: (2015)

Making sense of the linear genome, gene function and TADs
por: Long, Helen S., et al.
Publicado: (2022)

Shared decision-making and specific informed consent in patients with aortic aneurysms
por: Cunha, Marcela Juliano Silva, et al.
Publicado: (2023)

Impact of an organization-wide knowledge translation strategy to support evidence-informed public health decision making
por: Dobbins, Maureen, et al.
Publicado: (2018)

Knowledge Visualizations to Inform Decision Making for Improving Food Accessibility and Reducing Obesity Rates in the United States
por: Isokpehi, Raphael D., et al.
Publicado: (2020)

Patient-shared knowledge and information in clinical decision-making: an international survey of the perspectives and experiences of naturopathic practitioners
por: Steel, Amie, et al.
Publicado: (2023)

Patient decision making in the face of conflicting medication information
por: Elstad, Emily, et al.
Publicado: (2012)

The Path to Enlightenment: Making Sense of Genomic and Proteomic Information
por: Maurer, Martin H.
Publicado: (2004)

The Roulette Wheel: An Aid to Informed Decision Making
por: Hoffman, Jerome R, et al.
Publicado: (2006)

Adaptive Sampling of Information in Perceptual Decision-Making
por: Cassey, Thomas C., et al.
Publicado: (2013)

Informed Decision-Making and Breast Cancer Screening
por: Sasieni, PD, et al.
Publicado: (2015)

Fairness informs social decision making in infancy
por: Lucca, Kelsey, et al.
Publicado: (2018)

Action information contributes to metacognitive decision-making
por: Wokke, Martijn E., et al.
Publicado: (2020)

Informed decision‐making in hereditary angioedema prophylaxis
por: Burnette, Autumn Ford
Publicado: (2021)

Giraffes make decisions based on statistical information
por: Caicoya, Alvaro L., et al.
Publicado: (2023)

A semiquantitative metric for evaluating clinical actionability of incidental or secondary findings from genome-scale sequencing
por: Berg, Jonathan S., et al.
Publicado: (2016)

Evaluation of Information Sources in Plastic Surgery Decision-making
por: Parmeshwar, Nisha, et al.
Publicado: (2018)

Cannot write session to /tmp/vufind_sessions/sess_ha22tmg8hvisd40lm8c2f4vj24