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Collaboration and Outside-the-Box Thinking to Overcome Training-Related Challenges for Including Patient Stakeholders as Data Collectors in a Patient-Engaged Research Project

Including patient stakeholders as active members of the research team is essential to a patient-engaged research design. To hire community-based research staff for a study comparing the effectiveness of diabetes self-management programs for Latinos, we had to provide phlebotomy training which was no...

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Autores principales: Page-Reeves, Janet, Regino, Lidia, McGrew, Hannah Cole, Tellez, Maria, Pedigo, Blanca, Overby, Amy, Cunningham, Abigail, Tigert, Susan, Burge, Mark
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6022949/
https://www.ncbi.nlm.nih.gov/pubmed/29978023
http://dx.doi.org/10.1177/2374373517729506
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author Page-Reeves, Janet
Regino, Lidia
McGrew, Hannah Cole
Tellez, Maria
Pedigo, Blanca
Overby, Amy
Cunningham, Abigail
Tigert, Susan
Burge, Mark
author_facet Page-Reeves, Janet
Regino, Lidia
McGrew, Hannah Cole
Tellez, Maria
Pedigo, Blanca
Overby, Amy
Cunningham, Abigail
Tigert, Susan
Burge, Mark
author_sort Page-Reeves, Janet
collection PubMed
description Including patient stakeholders as active members of the research team is essential to a patient-engaged research design. To hire community-based research staff for a study comparing the effectiveness of diabetes self-management programs for Latinos, we had to provide phlebotomy training which was not allowed under the fiscal guidelines of our funders. By collaborating with partners at the Clinical and Translational Science Center, we were not only able to find a creative solution and provide phlebotomy training to our research staff but the process of creating the training also contributed to improved infrastructure for patient-engaged research at our institution.
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spelling pubmed-60229492018-07-05 Collaboration and Outside-the-Box Thinking to Overcome Training-Related Challenges for Including Patient Stakeholders as Data Collectors in a Patient-Engaged Research Project Page-Reeves, Janet Regino, Lidia McGrew, Hannah Cole Tellez, Maria Pedigo, Blanca Overby, Amy Cunningham, Abigail Tigert, Susan Burge, Mark J Patient Exp Research Articles Including patient stakeholders as active members of the research team is essential to a patient-engaged research design. To hire community-based research staff for a study comparing the effectiveness of diabetes self-management programs for Latinos, we had to provide phlebotomy training which was not allowed under the fiscal guidelines of our funders. By collaborating with partners at the Clinical and Translational Science Center, we were not only able to find a creative solution and provide phlebotomy training to our research staff but the process of creating the training also contributed to improved infrastructure for patient-engaged research at our institution. SAGE Publications 2017-09-21 2018-06 /pmc/articles/PMC6022949/ /pubmed/29978023 http://dx.doi.org/10.1177/2374373517729506 Text en © The Author(s) 2017 http://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (http://www.creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Research Articles
Page-Reeves, Janet
Regino, Lidia
McGrew, Hannah Cole
Tellez, Maria
Pedigo, Blanca
Overby, Amy
Cunningham, Abigail
Tigert, Susan
Burge, Mark
Collaboration and Outside-the-Box Thinking to Overcome Training-Related Challenges for Including Patient Stakeholders as Data Collectors in a Patient-Engaged Research Project
title Collaboration and Outside-the-Box Thinking to Overcome Training-Related Challenges for Including Patient Stakeholders as Data Collectors in a Patient-Engaged Research Project
title_full Collaboration and Outside-the-Box Thinking to Overcome Training-Related Challenges for Including Patient Stakeholders as Data Collectors in a Patient-Engaged Research Project
title_fullStr Collaboration and Outside-the-Box Thinking to Overcome Training-Related Challenges for Including Patient Stakeholders as Data Collectors in a Patient-Engaged Research Project
title_full_unstemmed Collaboration and Outside-the-Box Thinking to Overcome Training-Related Challenges for Including Patient Stakeholders as Data Collectors in a Patient-Engaged Research Project
title_short Collaboration and Outside-the-Box Thinking to Overcome Training-Related Challenges for Including Patient Stakeholders as Data Collectors in a Patient-Engaged Research Project
title_sort collaboration and outside-the-box thinking to overcome training-related challenges for including patient stakeholders as data collectors in a patient-engaged research project
topic Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6022949/
https://www.ncbi.nlm.nih.gov/pubmed/29978023
http://dx.doi.org/10.1177/2374373517729506
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