Cargando…

General Practice Care for Patients with Rare Diseases in Belgium. A Cross-Sectional Survey

There are almost no studies about rare diseases in general practice. This study examined care characteristics of active rare disease patients in the Belgian Network of Sentinel General Practices (SGP) and the importance of rare diseases in general practice by its caseload, general practitioner (GP)–...

Descripción completa

Detalles Bibliográficos
Autores principales:	Boffin, Nicole, Swinnen, Elfriede, Wens, Johan, Urbina, Montse, Van der Heyden, Johan, Van Casteren, Viviane
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	MDPI 2018
Materias:	Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6025074/ https://www.ncbi.nlm.nih.gov/pubmed/29874870 http://dx.doi.org/10.3390/ijerph15061180

Ejemplares similares

Care of general practice patients preceding and following a suicide attempt: observational study in Flemish general practices
por: Boffin, Nicole, et al.
Publicado: (2019)

General practice patients treated for substance use problems: a cross-national observational study in Belgium
por: Boffin, Nicole, et al.
Publicado: (2016)

Surveillance of suicidal behaviour by the Belgian Network of Sentinel General Practices: trends over two decades
por: Boffin, Nicole, et al.
Publicado: (2015)

Trends from the surveillance of suicidal behaviour by the Belgian Network of Sentinel General Practices over two decades: a retrospective observational study
por: Boffin, Nicole, et al.
Publicado: (2015)

Readiness of the Belgian network of sentinel general practitioners to deliver electronic health record data for surveillance purposes: results of survey study
por: Boffin, Nicole, et al.
Publicado: (2010)

What determines inclusion in the early phase of the type 2 diabetes care trajectory in Belgium?
por: Vanthomme, Katrien, et al.
Publicado: (2014)

Activity limitations predict health care expenditures in the general population in Belgium
por: Van der Heyden, Johan, et al.
Publicado: (2015)

Dying at home in Belgium: a descriptive GP interview study
por: Leemans, Kathleen, et al.
Publicado: (2012)

Four sexually transmitted infections (STIs) in Belgian general practice: first results (2013–2014) of a nationwide continuing surveillance study
por: Boffin, N, et al.
Publicado: (2017)

Nationwide monitoring of end-of-life care via the Sentinel Network of General Practitioners in Belgium: the research protocol of the SENTI-MELC study
por: Van den Block, Lieve, et al.
Publicado: (2007)

Euthanasia and other end-of-life decisions: a mortality follow-back study in Belgium
por: Van den Block, Lieve, et al.
Publicado: (2009)

Clinical inertia in general practice, a matter of debate: a qualitative study with 114 general practitioners in Belgium
por: Aujoulat, Isabelle, et al.
Publicado: (2015)

Comparing health insurance data and health interview survey data for ascertaining chronic disease prevalence in Belgium
por: Berete, Finaba, et al.
Publicado: (2020)

Correction to: Comparing health insurance data and health interview survey data for ascertaining chronic disease prevalence in Belgium
por: Berete, Finaba, et al.
Publicado: (2020)

Euthanasia and other end of life decisions and care provided in final three months of life: nationwide retrospective study in Belgium
por: Van den Block, Lieve, et al.
Publicado: (2009)

Predictors of nursing home admission in the older population in Belgium: a longitudinal follow-up of health interview survey participants
por: Berete, Finaba, et al.
Publicado: (2022)

Opportunities for a population-based cohort in Belgium
por: Schutte, Nienke, et al.
Publicado: (2022)

Comparing self-reported health interview survey and pharmacy billing data in determining the prevalence of diabetes, hypertension, and hypercholesterolemia in Belgium
por: Vasquez, Maria Salve, et al.
Publicado: (2023)

Contribution of chronic diseases to the mild and severe disability burden in Belgium
por: Yokota, Renata T. C., et al.
Publicado: (2015)

Prevalence estimates of genital Chlamydia trachomatis infection in Belgium: results from two cross-sectional studies
por: Fischer, Natalie, et al.
Publicado: (2021)

The objective structured clinical examination revisited for postgraduate trainees in general practice
por: Schoenmakers, Birgitte, et al.
Publicado: (2014)

Linking health survey data with health insurance data: methodology, challenges, opportunities and recommendations for public health research. An experience from the HISlink project in Belgium
por: Berete, Finaba, et al.
Publicado: (2023)

Health care costs and lost productivity costs related to excess weight in Belgium
por: Gorasso, Vanessa, et al.
Publicado: (2022)

The health and economic impact of acute gastroenteritis in Belgium, 2010–2014
por: Papadopoulos, Theofilos, et al.
Publicado: (2019)

Implementation of a Care Pathway for Primary Palliative Care in 5 research clusters in Belgium: quasi-experimental study protocol and innovations in data collection (pro-SPINOZA)
por: Leysen, Bert, et al.
Publicado: (2015)

Study protocol of OncoTolk: an observational study on communication problems in language-mediated consultations with migrant oncology patients in Flanders (Belgium)
por: Krystallidou, Demi, et al.
Publicado: (2020)

Autochthonous tick-borne encephalitis virus (TBEV) - seropositive cattle in Belgium: a risk-based targeted serological survey
por: Roelandt, S, et al.
Publicado: (2014)

Does the Belgian diabetes type 2 care trajectory improve quality of care for diabetes patients?
por: Van Casteren, Viviane F. A., et al.
Publicado: (2015)

Trends in genotype frequency resulting from breeding for resistance to classical scrapie in Belgium (2006~2011)
por: Dobly, Alexandre, et al.
Publicado: (2013)

The health and economic burden of musculoskeletal disorders in Belgium from 2013 to 2018
por: Gorasso, Vanessa, et al.
Publicado: (2023)

All-cause mortality supports the COVID-19 mortality in Belgium and comparison with major fatal events of the last century
por: Bustos Sierra, Natalia, et al.
Publicado: (2020)

Physician reports of medication use with explicit intention of hastening the end of life in the absence of explicit patient request in general practice in Belgium
por: Meeussen, Koen, et al.
Publicado: (2010)

General practice patients starting treatment for substance use problems: observations from two data sources across levels of care
por: Boffin, Nicole, et al.
Publicado: (2020)

Hospital Laboratory Survey for Identification of Candida auris in Belgium
por: Dewaele, Klaas, et al.
Publicado: (2019)

QALY losses for chronic diseases and its social distribution in the general population: results from the Belgian Health Interview Survey
por: Van Wilder, Lisa, et al.
Publicado: (2022)

HIV testing within general practices in Europe: a mixed-methods systematic review
por: Deblonde, Jessika, et al.
Publicado: (2018)

Implementing a Reminder System in the Northern Part of Belgium to Stimulate Postpartum Screening for Glucose Intolerance in Women with Gestational Diabetes: The “Sweet Pregnancy” Project
por: Benhalima, Katrien, et al.
Publicado: (2017)

Reporting of euthanasia in medical practice in Flanders, Belgium: cross sectional analysis of reported and unreported cases
por: Smets, Tinne, et al.
Publicado: (2010)

Assessing the benefits of hypothetical air pollution reduction interventions on stroke in Belgium
por: Pelgrims, I, et al.
Publicado: (2023)

Online monitoring of flu in Belgium
por: Devroey, Dirk, et al.
Publicado: (2011)

Cannot write session to /tmp/vufind_sessions/sess_n4jf95731odj4nsuea3ct7fs7k