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Disease surveillance data sharing for public health: the next ethical frontiers

In the recent years, we have been witnessing a digital revolution in public and global health creating unprecedented opportunities for epidemic intelligence and public health emergencies. However, these opportunities created a double edge sword as access to data, quality monitoring and assurance, as...

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Detalles Bibliográficos
Autor principal: Kostkova, Patty
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6029986/
https://www.ncbi.nlm.nih.gov/pubmed/29971516
http://dx.doi.org/10.1186/s40504-018-0078-x
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author Kostkova, Patty
author_facet Kostkova, Patty
author_sort Kostkova, Patty
collection PubMed
description In the recent years, we have been witnessing a digital revolution in public and global health creating unprecedented opportunities for epidemic intelligence and public health emergencies. However, these opportunities created a double edge sword as access to data, quality monitoring and assurance, as well as governance and regulation frameworks for data privacy are lagging behind technological achievements. In this paper we identify three ethical challenges: sharing data across various early warning tools to support risk assessment. Secondly, define the challenges to be addressed by the legal frameworks for public health data sharing to unlock the potential of population-level datasets for research with no impact on citizens privacy. The third challenge lies with stricter regulation of the IT industry with regards to manipulating user data - such an initiative, GDPR, comes to force in the EU in May 2018.
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spelling pubmed-60299862018-07-23 Disease surveillance data sharing for public health: the next ethical frontiers Kostkova, Patty Life Sci Soc Policy Research In the recent years, we have been witnessing a digital revolution in public and global health creating unprecedented opportunities for epidemic intelligence and public health emergencies. However, these opportunities created a double edge sword as access to data, quality monitoring and assurance, as well as governance and regulation frameworks for data privacy are lagging behind technological achievements. In this paper we identify three ethical challenges: sharing data across various early warning tools to support risk assessment. Secondly, define the challenges to be addressed by the legal frameworks for public health data sharing to unlock the potential of population-level datasets for research with no impact on citizens privacy. The third challenge lies with stricter regulation of the IT industry with regards to manipulating user data - such an initiative, GDPR, comes to force in the EU in May 2018. Springer Berlin Heidelberg 2018-07-04 /pmc/articles/PMC6029986/ /pubmed/29971516 http://dx.doi.org/10.1186/s40504-018-0078-x Text en © The Author(s). 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Research
Kostkova, Patty
Disease surveillance data sharing for public health: the next ethical frontiers
title Disease surveillance data sharing for public health: the next ethical frontiers
title_full Disease surveillance data sharing for public health: the next ethical frontiers
title_fullStr Disease surveillance data sharing for public health: the next ethical frontiers
title_full_unstemmed Disease surveillance data sharing for public health: the next ethical frontiers
title_short Disease surveillance data sharing for public health: the next ethical frontiers
title_sort disease surveillance data sharing for public health: the next ethical frontiers
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6029986/
https://www.ncbi.nlm.nih.gov/pubmed/29971516
http://dx.doi.org/10.1186/s40504-018-0078-x
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