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Strengthening Global Public Health Surveillance through Data and Benefit Sharing
Equitable sharing of public health surveillance data can help prevent or mitigate the effect of infectious diseases. Equitable data sharing includes working toward more equitable sharing of the public health benefits that data sharing brings and requires the engagement of those providing the data, t...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Centers for Disease Control and Prevention
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6038731/ http://dx.doi.org/10.3201/eid2407.151830 |
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author | Edelstein, Michael Lee, Lisa M. Herten-Crabb, Asha Heymann, David L. Harper, David R. |
author_facet | Edelstein, Michael Lee, Lisa M. Herten-Crabb, Asha Heymann, David L. Harper, David R. |
author_sort | Edelstein, Michael |
collection | PubMed |
description | Equitable sharing of public health surveillance data can help prevent or mitigate the effect of infectious diseases. Equitable data sharing includes working toward more equitable sharing of the public health benefits that data sharing brings and requires the engagement of those providing the data, those interpreting and using the data generated by others, those facilitating the data-sharing process, and those deriving and contributing to the benefit. An expert consultation conducted by Chatham House outlined 7 principles to encourage the process of equitable data sharing: 1) building trust; 2) articulating the value; 3) planning for data sharing; 4) achieving quality data; 5) understanding the legal context; 6) creating data-sharing agreements; and 7) monitoring and evaluation. Sharing of public health surveillance data is best done taking into account these principles, which will help to ensure data are shared optimally and ethically, while fulfilling stakeholder expectations and facilitating equitable distribution of benefits. |
format | Online Article Text |
id | pubmed-6038731 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | Centers for Disease Control and Prevention |
record_format | MEDLINE/PubMed |
spelling | pubmed-60387312018-07-11 Strengthening Global Public Health Surveillance through Data and Benefit Sharing Edelstein, Michael Lee, Lisa M. Herten-Crabb, Asha Heymann, David L. Harper, David R. Emerg Infect Dis Policy Review Equitable sharing of public health surveillance data can help prevent or mitigate the effect of infectious diseases. Equitable data sharing includes working toward more equitable sharing of the public health benefits that data sharing brings and requires the engagement of those providing the data, those interpreting and using the data generated by others, those facilitating the data-sharing process, and those deriving and contributing to the benefit. An expert consultation conducted by Chatham House outlined 7 principles to encourage the process of equitable data sharing: 1) building trust; 2) articulating the value; 3) planning for data sharing; 4) achieving quality data; 5) understanding the legal context; 6) creating data-sharing agreements; and 7) monitoring and evaluation. Sharing of public health surveillance data is best done taking into account these principles, which will help to ensure data are shared optimally and ethically, while fulfilling stakeholder expectations and facilitating equitable distribution of benefits. Centers for Disease Control and Prevention 2018-07 /pmc/articles/PMC6038731/ http://dx.doi.org/10.3201/eid2407.151830 Text en https://creativecommons.org/licenses/by/4.0/This is a publication of the U.S. Government. This publication is in the public domain and is therefore without copyright. All text from this work may be reprinted freely. Use of these materials should be properly cited. |
spellingShingle | Policy Review Edelstein, Michael Lee, Lisa M. Herten-Crabb, Asha Heymann, David L. Harper, David R. Strengthening Global Public Health Surveillance through Data and Benefit Sharing |
title | Strengthening Global Public Health Surveillance through Data and Benefit Sharing |
title_full | Strengthening Global Public Health Surveillance through Data and Benefit Sharing |
title_fullStr | Strengthening Global Public Health Surveillance through Data and Benefit Sharing |
title_full_unstemmed | Strengthening Global Public Health Surveillance through Data and Benefit Sharing |
title_short | Strengthening Global Public Health Surveillance through Data and Benefit Sharing |
title_sort | strengthening global public health surveillance through data and benefit sharing |
topic | Policy Review |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6038731/ http://dx.doi.org/10.3201/eid2407.151830 |
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