Cargando…

Strengthening Global Public Health Surveillance through Data and Benefit Sharing

Equitable sharing of public health surveillance data can help prevent or mitigate the effect of infectious diseases. Equitable data sharing includes working toward more equitable sharing of the public health benefits that data sharing brings and requires the engagement of those providing the data, t...

Descripción completa

Detalles Bibliográficos
Autores principales: Edelstein, Michael, Lee, Lisa M., Herten-Crabb, Asha, Heymann, David L., Harper, David R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Centers for Disease Control and Prevention 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6038731/
http://dx.doi.org/10.3201/eid2407.151830
_version_ 1783338555689402368
author Edelstein, Michael
Lee, Lisa M.
Herten-Crabb, Asha
Heymann, David L.
Harper, David R.
author_facet Edelstein, Michael
Lee, Lisa M.
Herten-Crabb, Asha
Heymann, David L.
Harper, David R.
author_sort Edelstein, Michael
collection PubMed
description Equitable sharing of public health surveillance data can help prevent or mitigate the effect of infectious diseases. Equitable data sharing includes working toward more equitable sharing of the public health benefits that data sharing brings and requires the engagement of those providing the data, those interpreting and using the data generated by others, those facilitating the data-sharing process, and those deriving and contributing to the benefit. An expert consultation conducted by Chatham House outlined 7 principles to encourage the process of equitable data sharing: 1) building trust; 2) articulating the value; 3) planning for data sharing; 4) achieving quality data; 5) understanding the legal context; 6) creating data-sharing agreements; and 7) monitoring and evaluation. Sharing of public health surveillance data is best done taking into account these principles, which will help to ensure data are shared optimally and ethically, while fulfilling stakeholder expectations and facilitating equitable distribution of benefits.
format Online
Article
Text
id pubmed-6038731
institution National Center for Biotechnology Information
language English
publishDate 2018
publisher Centers for Disease Control and Prevention
record_format MEDLINE/PubMed
spelling pubmed-60387312018-07-11 Strengthening Global Public Health Surveillance through Data and Benefit Sharing Edelstein, Michael Lee, Lisa M. Herten-Crabb, Asha Heymann, David L. Harper, David R. Emerg Infect Dis Policy Review Equitable sharing of public health surveillance data can help prevent or mitigate the effect of infectious diseases. Equitable data sharing includes working toward more equitable sharing of the public health benefits that data sharing brings and requires the engagement of those providing the data, those interpreting and using the data generated by others, those facilitating the data-sharing process, and those deriving and contributing to the benefit. An expert consultation conducted by Chatham House outlined 7 principles to encourage the process of equitable data sharing: 1) building trust; 2) articulating the value; 3) planning for data sharing; 4) achieving quality data; 5) understanding the legal context; 6) creating data-sharing agreements; and 7) monitoring and evaluation. Sharing of public health surveillance data is best done taking into account these principles, which will help to ensure data are shared optimally and ethically, while fulfilling stakeholder expectations and facilitating equitable distribution of benefits. Centers for Disease Control and Prevention 2018-07 /pmc/articles/PMC6038731/ http://dx.doi.org/10.3201/eid2407.151830 Text en https://creativecommons.org/licenses/by/4.0/This is a publication of the U.S. Government. This publication is in the public domain and is therefore without copyright. All text from this work may be reprinted freely. Use of these materials should be properly cited.
spellingShingle Policy Review
Edelstein, Michael
Lee, Lisa M.
Herten-Crabb, Asha
Heymann, David L.
Harper, David R.
Strengthening Global Public Health Surveillance through Data and Benefit Sharing
title Strengthening Global Public Health Surveillance through Data and Benefit Sharing
title_full Strengthening Global Public Health Surveillance through Data and Benefit Sharing
title_fullStr Strengthening Global Public Health Surveillance through Data and Benefit Sharing
title_full_unstemmed Strengthening Global Public Health Surveillance through Data and Benefit Sharing
title_short Strengthening Global Public Health Surveillance through Data and Benefit Sharing
title_sort strengthening global public health surveillance through data and benefit sharing
topic Policy Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6038731/
http://dx.doi.org/10.3201/eid2407.151830
work_keys_str_mv AT edelsteinmichael strengtheningglobalpublichealthsurveillancethroughdataandbenefitsharing
AT leelisam strengtheningglobalpublichealthsurveillancethroughdataandbenefitsharing
AT hertencrabbasha strengtheningglobalpublichealthsurveillancethroughdataandbenefitsharing
AT heymanndavidl strengtheningglobalpublichealthsurveillancethroughdataandbenefitsharing
AT harperdavidr strengtheningglobalpublichealthsurveillancethroughdataandbenefitsharing