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What Matters Most at the End-of-Life for Chinese Americans?
Background: To provide optimal end-of-life (EOL) care in the Chinese American population, we need to have a better understanding of what matters most at EOL from their perspective. Experiencing a “good death” at the EOL is the optimal goal of palliative care. Studies show that the meaning and descri...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
SAGE Publications
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6050625/ https://www.ncbi.nlm.nih.gov/pubmed/30035200 http://dx.doi.org/10.1177/2333721418778195 |
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author | Lee, Mei Ching Hinderer, Katherine A. Alexander, Carla S. |
author_facet | Lee, Mei Ching Hinderer, Katherine A. Alexander, Carla S. |
author_sort | Lee, Mei Ching |
collection | PubMed |
description | Background: To provide optimal end-of-life (EOL) care in the Chinese American population, we need to have a better understanding of what matters most at EOL from their perspective. Experiencing a “good death” at the EOL is the optimal goal of palliative care. Studies show that the meaning and description of good death varies across cultures in different populations. In the United States, Chinese Americans comprise the largest Asian demographic. Aim: To describe EOL wishes, which define a good death for Chinese Americans. Method: Qualitative study using focus groups. A convenience sample of 60 Chinese Americans was recruited from a community organization in Maryland. Ten focus group discussion sessions were conducted. Results: Wishes at the EOL that defined a good death for the participants in this study included being pain-free, not being a burden to family, being with family, having a trusted physician, maintaining dignity, and prayer. Conclusion: A good death is a complex concept. What matters most to patients at the EOL differs depending on their cultural background. When caring for Chinese Americans, a comprehensive EOL care plan should include cultural considerations in addition to physical, psychosocial, and spiritual needs. |
format | Online Article Text |
id | pubmed-6050625 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-60506252018-07-20 What Matters Most at the End-of-Life for Chinese Americans? Lee, Mei Ching Hinderer, Katherine A. Alexander, Carla S. Gerontol Geriatr Med PINE Study - Quality of Life Background: To provide optimal end-of-life (EOL) care in the Chinese American population, we need to have a better understanding of what matters most at EOL from their perspective. Experiencing a “good death” at the EOL is the optimal goal of palliative care. Studies show that the meaning and description of good death varies across cultures in different populations. In the United States, Chinese Americans comprise the largest Asian demographic. Aim: To describe EOL wishes, which define a good death for Chinese Americans. Method: Qualitative study using focus groups. A convenience sample of 60 Chinese Americans was recruited from a community organization in Maryland. Ten focus group discussion sessions were conducted. Results: Wishes at the EOL that defined a good death for the participants in this study included being pain-free, not being a burden to family, being with family, having a trusted physician, maintaining dignity, and prayer. Conclusion: A good death is a complex concept. What matters most to patients at the EOL differs depending on their cultural background. When caring for Chinese Americans, a comprehensive EOL care plan should include cultural considerations in addition to physical, psychosocial, and spiritual needs. SAGE Publications 2018-07-17 /pmc/articles/PMC6050625/ /pubmed/30035200 http://dx.doi.org/10.1177/2333721418778195 Text en © 2018 The Author(s) http://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (http://www.creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page(https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | PINE Study - Quality of Life Lee, Mei Ching Hinderer, Katherine A. Alexander, Carla S. What Matters Most at the End-of-Life for Chinese Americans? |
title | What Matters Most at the End-of-Life for Chinese Americans? |
title_full | What Matters Most at the End-of-Life for Chinese Americans? |
title_fullStr | What Matters Most at the End-of-Life for Chinese Americans? |
title_full_unstemmed | What Matters Most at the End-of-Life for Chinese Americans? |
title_short | What Matters Most at the End-of-Life for Chinese Americans? |
title_sort | what matters most at the end-of-life for chinese americans? |
topic | PINE Study - Quality of Life |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6050625/ https://www.ncbi.nlm.nih.gov/pubmed/30035200 http://dx.doi.org/10.1177/2333721418778195 |
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