Cargando…

What Matters Most at the End-of-Life for Chinese Americans?

Background: To provide optimal end-of-life (EOL) care in the Chinese American population, we need to have a better understanding of what matters most at EOL from their perspective. Experiencing a “good death” at the EOL is the optimal goal of palliative care. Studies show that the meaning and descri...

Descripción completa

Detalles Bibliográficos
Autores principales: Lee, Mei Ching, Hinderer, Katherine A., Alexander, Carla S.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6050625/
https://www.ncbi.nlm.nih.gov/pubmed/30035200
http://dx.doi.org/10.1177/2333721418778195
_version_ 1783340376664309760
author Lee, Mei Ching
Hinderer, Katherine A.
Alexander, Carla S.
author_facet Lee, Mei Ching
Hinderer, Katherine A.
Alexander, Carla S.
author_sort Lee, Mei Ching
collection PubMed
description Background: To provide optimal end-of-life (EOL) care in the Chinese American population, we need to have a better understanding of what matters most at EOL from their perspective. Experiencing a “good death” at the EOL is the optimal goal of palliative care. Studies show that the meaning and description of good death varies across cultures in different populations. In the United States, Chinese Americans comprise the largest Asian demographic. Aim: To describe EOL wishes, which define a good death for Chinese Americans. Method: Qualitative study using focus groups. A convenience sample of 60 Chinese Americans was recruited from a community organization in Maryland. Ten focus group discussion sessions were conducted. Results: Wishes at the EOL that defined a good death for the participants in this study included being pain-free, not being a burden to family, being with family, having a trusted physician, maintaining dignity, and prayer. Conclusion: A good death is a complex concept. What matters most to patients at the EOL differs depending on their cultural background. When caring for Chinese Americans, a comprehensive EOL care plan should include cultural considerations in addition to physical, psychosocial, and spiritual needs.
format Online
Article
Text
id pubmed-6050625
institution National Center for Biotechnology Information
language English
publishDate 2018
publisher SAGE Publications
record_format MEDLINE/PubMed
spelling pubmed-60506252018-07-20 What Matters Most at the End-of-Life for Chinese Americans? Lee, Mei Ching Hinderer, Katherine A. Alexander, Carla S. Gerontol Geriatr Med PINE Study - Quality of Life Background: To provide optimal end-of-life (EOL) care in the Chinese American population, we need to have a better understanding of what matters most at EOL from their perspective. Experiencing a “good death” at the EOL is the optimal goal of palliative care. Studies show that the meaning and description of good death varies across cultures in different populations. In the United States, Chinese Americans comprise the largest Asian demographic. Aim: To describe EOL wishes, which define a good death for Chinese Americans. Method: Qualitative study using focus groups. A convenience sample of 60 Chinese Americans was recruited from a community organization in Maryland. Ten focus group discussion sessions were conducted. Results: Wishes at the EOL that defined a good death for the participants in this study included being pain-free, not being a burden to family, being with family, having a trusted physician, maintaining dignity, and prayer. Conclusion: A good death is a complex concept. What matters most to patients at the EOL differs depending on their cultural background. When caring for Chinese Americans, a comprehensive EOL care plan should include cultural considerations in addition to physical, psychosocial, and spiritual needs. SAGE Publications 2018-07-17 /pmc/articles/PMC6050625/ /pubmed/30035200 http://dx.doi.org/10.1177/2333721418778195 Text en © 2018 The Author(s) http://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (http://www.creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page(https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle PINE Study - Quality of Life
Lee, Mei Ching
Hinderer, Katherine A.
Alexander, Carla S.
What Matters Most at the End-of-Life for Chinese Americans?
title What Matters Most at the End-of-Life for Chinese Americans?
title_full What Matters Most at the End-of-Life for Chinese Americans?
title_fullStr What Matters Most at the End-of-Life for Chinese Americans?
title_full_unstemmed What Matters Most at the End-of-Life for Chinese Americans?
title_short What Matters Most at the End-of-Life for Chinese Americans?
title_sort what matters most at the end-of-life for chinese americans?
topic PINE Study - Quality of Life
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6050625/
https://www.ncbi.nlm.nih.gov/pubmed/30035200
http://dx.doi.org/10.1177/2333721418778195
work_keys_str_mv AT leemeiching whatmattersmostattheendoflifeforchineseamericans
AT hindererkatherinea whatmattersmostattheendoflifeforchineseamericans
AT alexandercarlas whatmattersmostattheendoflifeforchineseamericans