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Clinicians’ perspectives on and interest in participating in a clinical data research network across the Southeastern United States

BACKGROUND: Partnerships between clinicians and researchers could increase the generalizability of research findings and increase uptake of research results across populations. Yet engaging clinicians in research is challenging. Clinical Data Research Networks (CDRNs) provide access to a broad array...

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Autores principales: Unertl, Kim M., Fair, Alecia M., Favours, Jacquelyn S., Dolor, Rowena J., Smoot, Duane, Wilkins, Consuelo H.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6053753/
https://www.ncbi.nlm.nih.gov/pubmed/30029660
http://dx.doi.org/10.1186/s12913-018-3399-9
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author Unertl, Kim M.
Fair, Alecia M.
Favours, Jacquelyn S.
Dolor, Rowena J.
Smoot, Duane
Wilkins, Consuelo H.
author_facet Unertl, Kim M.
Fair, Alecia M.
Favours, Jacquelyn S.
Dolor, Rowena J.
Smoot, Duane
Wilkins, Consuelo H.
author_sort Unertl, Kim M.
collection PubMed
description BACKGROUND: Partnerships between clinicians and researchers could increase the generalizability of research findings and increase uptake of research results across populations. Yet engaging clinicians in research is challenging. Clinical Data Research Networks (CDRNs) provide access to a broad array of clinical data, patients, clinicians and health systems by building on existing health records (EHRs) to facilitate multi-site community engaged research (CEnR). METHODS: A mixed-methods sequential explanatory design was employed. Sixty semi-structured interviews with clinicians from various disciplines and healthcare settings were conducted using five open-ended questions. Inductive content analysis was used to identify emerging themes in the data. RESULTS: We identified the following emerging themes: 1) Research with relevance and benefits to clinics and provider’s patient population; 2) Difficulties of engaging in research with existing patient care demands; 3) Clear and continuous two-way communication about research, coordinated with provider and clinic needs; 4) Tailored compensation approaches meet provider preferences; 5) Increasing clinician awareness about Clinical Data Research Networks (CDRNs). CONCLUSION: Our interview study provides insight into community clinician perspectives on Clinical Data Research Networks, indicating motivations and challenges to research involvement including consequences of time spent on research participation, barriers to expanding research and meaningful involvement in research governance. Findings can be used to guide the development of strategies to better engage providers in research in clinical settings, which could ultimately improve patient outcomes. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1186/s12913-018-3399-9) contains supplementary material, which is available to authorized users.
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spelling pubmed-60537532018-07-23 Clinicians’ perspectives on and interest in participating in a clinical data research network across the Southeastern United States Unertl, Kim M. Fair, Alecia M. Favours, Jacquelyn S. Dolor, Rowena J. Smoot, Duane Wilkins, Consuelo H. BMC Health Serv Res Research Article BACKGROUND: Partnerships between clinicians and researchers could increase the generalizability of research findings and increase uptake of research results across populations. Yet engaging clinicians in research is challenging. Clinical Data Research Networks (CDRNs) provide access to a broad array of clinical data, patients, clinicians and health systems by building on existing health records (EHRs) to facilitate multi-site community engaged research (CEnR). METHODS: A mixed-methods sequential explanatory design was employed. Sixty semi-structured interviews with clinicians from various disciplines and healthcare settings were conducted using five open-ended questions. Inductive content analysis was used to identify emerging themes in the data. RESULTS: We identified the following emerging themes: 1) Research with relevance and benefits to clinics and provider’s patient population; 2) Difficulties of engaging in research with existing patient care demands; 3) Clear and continuous two-way communication about research, coordinated with provider and clinic needs; 4) Tailored compensation approaches meet provider preferences; 5) Increasing clinician awareness about Clinical Data Research Networks (CDRNs). CONCLUSION: Our interview study provides insight into community clinician perspectives on Clinical Data Research Networks, indicating motivations and challenges to research involvement including consequences of time spent on research participation, barriers to expanding research and meaningful involvement in research governance. Findings can be used to guide the development of strategies to better engage providers in research in clinical settings, which could ultimately improve patient outcomes. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1186/s12913-018-3399-9) contains supplementary material, which is available to authorized users. BioMed Central 2018-07-20 /pmc/articles/PMC6053753/ /pubmed/30029660 http://dx.doi.org/10.1186/s12913-018-3399-9 Text en © The Author(s). 2018 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research Article
Unertl, Kim M.
Fair, Alecia M.
Favours, Jacquelyn S.
Dolor, Rowena J.
Smoot, Duane
Wilkins, Consuelo H.
Clinicians’ perspectives on and interest in participating in a clinical data research network across the Southeastern United States
title Clinicians’ perspectives on and interest in participating in a clinical data research network across the Southeastern United States
title_full Clinicians’ perspectives on and interest in participating in a clinical data research network across the Southeastern United States
title_fullStr Clinicians’ perspectives on and interest in participating in a clinical data research network across the Southeastern United States
title_full_unstemmed Clinicians’ perspectives on and interest in participating in a clinical data research network across the Southeastern United States
title_short Clinicians’ perspectives on and interest in participating in a clinical data research network across the Southeastern United States
title_sort clinicians’ perspectives on and interest in participating in a clinical data research network across the southeastern united states
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6053753/
https://www.ncbi.nlm.nih.gov/pubmed/30029660
http://dx.doi.org/10.1186/s12913-018-3399-9
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