Cargando…

Health Democracy Index: Development and Validation of a Self-Reported Instrument for Measuring Patient Participation in Health Policy

Introduction: Patient participation has emerged as a preponderant theme in contemporary health and healthcare; however there is a dearth of research on the degree and impact of collective patient participation on shaping health policy. In this frame, the current study endeavored to validate a scale...

Descripción completa

Detalles Bibliográficos
Autores principales: Souliotis, Kyriakos, Peppou, Lily E., Agapidaki, Eirini, Tzavara, Chara
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6056676/
https://www.ncbi.nlm.nih.gov/pubmed/30065919
http://dx.doi.org/10.3389/fpubh.2018.00194
_version_ 1783341382951239680
author Souliotis, Kyriakos
Peppou, Lily E.
Agapidaki, Eirini
Tzavara, Chara
author_facet Souliotis, Kyriakos
Peppou, Lily E.
Agapidaki, Eirini
Tzavara, Chara
author_sort Souliotis, Kyriakos
collection PubMed
description Introduction: Patient participation has emerged as a preponderant theme in contemporary health and healthcare; however there is a dearth of research on the degree and impact of collective patient participation on shaping health policy. In this frame, the current study endeavored to validate a scale for assessing patients' association (PA) participation in health policy processes. Furthermore, PAs' participation in health policy decision making in Greece was explored. Materials and Methods: The Health Democracy Index (HDI) is an eight-item scale enquiring about PAs' participation in important facets of health policy. To investigate its psychometric properties, 414 members of PAs in Greece were randomly recruited. By employing a self-reported questionnaire, construct validity was examined through exploratory and confirmatory factor analysis, while convergent validity was investigated through an additional question asking respondents to rate the degree of their association's participation in health policy processes. Moreover, the internal consistency of the scale and its test-retest reliability were explored. Results: The scale showed high internal consistency (Cronbach a = 0.85) and test-retest reliability (ICC = 0.89, p < 0,001). Exploratory factor analysis suggested a unidimensional construct; while confirmatory factor analysis indicated an adequate fit of the one-factor model (RMSEA = 0.079, CFI = 0.976, and GFI = 0.972). Regarding convergent validity, the HDI composite score displayed strong and positive correlation with the item asking respondents to rate the degree of PA participation in health policy processes (rho = 0.73, p < 0.0001). Concerning the pattern of results in Greece, PAs' participation was found to be low. The lowest level was observed for the item enquiring about PA participation in the national parliament and the highest for panels at influential health-related organizations. Conclusion: The HDI is a valid and reliable tool that can be utilized to serve policy-related as well as research purposes. PAs' participation in Greece is weak and thus efforts should be made to enhance it.
format Online
Article
Text
id pubmed-6056676
institution National Center for Biotechnology Information
language English
publishDate 2018
publisher Frontiers Media S.A.
record_format MEDLINE/PubMed
spelling pubmed-60566762018-07-31 Health Democracy Index: Development and Validation of a Self-Reported Instrument for Measuring Patient Participation in Health Policy Souliotis, Kyriakos Peppou, Lily E. Agapidaki, Eirini Tzavara, Chara Front Public Health Public Health Introduction: Patient participation has emerged as a preponderant theme in contemporary health and healthcare; however there is a dearth of research on the degree and impact of collective patient participation on shaping health policy. In this frame, the current study endeavored to validate a scale for assessing patients' association (PA) participation in health policy processes. Furthermore, PAs' participation in health policy decision making in Greece was explored. Materials and Methods: The Health Democracy Index (HDI) is an eight-item scale enquiring about PAs' participation in important facets of health policy. To investigate its psychometric properties, 414 members of PAs in Greece were randomly recruited. By employing a self-reported questionnaire, construct validity was examined through exploratory and confirmatory factor analysis, while convergent validity was investigated through an additional question asking respondents to rate the degree of their association's participation in health policy processes. Moreover, the internal consistency of the scale and its test-retest reliability were explored. Results: The scale showed high internal consistency (Cronbach a = 0.85) and test-retest reliability (ICC = 0.89, p < 0,001). Exploratory factor analysis suggested a unidimensional construct; while confirmatory factor analysis indicated an adequate fit of the one-factor model (RMSEA = 0.079, CFI = 0.976, and GFI = 0.972). Regarding convergent validity, the HDI composite score displayed strong and positive correlation with the item asking respondents to rate the degree of PA participation in health policy processes (rho = 0.73, p < 0.0001). Concerning the pattern of results in Greece, PAs' participation was found to be low. The lowest level was observed for the item enquiring about PA participation in the national parliament and the highest for panels at influential health-related organizations. Conclusion: The HDI is a valid and reliable tool that can be utilized to serve policy-related as well as research purposes. PAs' participation in Greece is weak and thus efforts should be made to enhance it. Frontiers Media S.A. 2018-07-17 /pmc/articles/PMC6056676/ /pubmed/30065919 http://dx.doi.org/10.3389/fpubh.2018.00194 Text en Copyright © 2018 Souliotis, Peppou, Agapidaki and Tzavara. http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Public Health
Souliotis, Kyriakos
Peppou, Lily E.
Agapidaki, Eirini
Tzavara, Chara
Health Democracy Index: Development and Validation of a Self-Reported Instrument for Measuring Patient Participation in Health Policy
title Health Democracy Index: Development and Validation of a Self-Reported Instrument for Measuring Patient Participation in Health Policy
title_full Health Democracy Index: Development and Validation of a Self-Reported Instrument for Measuring Patient Participation in Health Policy
title_fullStr Health Democracy Index: Development and Validation of a Self-Reported Instrument for Measuring Patient Participation in Health Policy
title_full_unstemmed Health Democracy Index: Development and Validation of a Self-Reported Instrument for Measuring Patient Participation in Health Policy
title_short Health Democracy Index: Development and Validation of a Self-Reported Instrument for Measuring Patient Participation in Health Policy
title_sort health democracy index: development and validation of a self-reported instrument for measuring patient participation in health policy
topic Public Health
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6056676/
https://www.ncbi.nlm.nih.gov/pubmed/30065919
http://dx.doi.org/10.3389/fpubh.2018.00194
work_keys_str_mv AT souliotiskyriakos healthdemocracyindexdevelopmentandvalidationofaselfreportedinstrumentformeasuringpatientparticipationinhealthpolicy
AT peppoulilye healthdemocracyindexdevelopmentandvalidationofaselfreportedinstrumentformeasuringpatientparticipationinhealthpolicy
AT agapidakieirini healthdemocracyindexdevelopmentandvalidationofaselfreportedinstrumentformeasuringpatientparticipationinhealthpolicy
AT tzavarachara healthdemocracyindexdevelopmentandvalidationofaselfreportedinstrumentformeasuringpatientparticipationinhealthpolicy